Get email alerts Get E-mail Alerts  

  • Articles  ||  Forum Home  ||  Gluten-Free Mall  ||  Store  ||  Journal of Gluten Sensitivity

  • Ads by Google:

    • Announcements

      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


    Advanced Members
    • Content count

    • Joined

    • Last visited

    Community Reputation

    0 Neutral

    About LynneM

    • Rank
      New Community Member
    • Birthday 02/28/1957

    Profile Information

    • Gender Female
    • Location Los Angeles

    LynneM's Activity

    1. LynneM added a topic in Celiac Disease - Doctors   

      How To Interview Prospective Doctors?
      I've recently moved to Portland Oregon, and soon will be looking for a new general practitioner. We have Blue Cross insurance, so I have quite a few doctors to choose from. I'm trying to figure out if there is any way to "interview" doctors before choosing them to see how familiar they are with celiac. When I first broached the subject with my old doctor, she disdainfully called celiac the "disease de jour" and grudgingly gave me a blood test which of course came back negative since I'd already been gluten-free for six months. I later got tested by Enterolab, but I didn't even bother telling her about that.

      I'd love to be able to find a doctor who could look at my Enterolab results and say "yep" and then be able to assess my health from the celiac perspective. Has anyone ever "interviewed" doctors before? How would you go about it?
      • 0 replies
    2. LynneM added a post in a topic Anxiety And Depression In Remission After 4 Years gluten-free?   

      Thank you for the responses. Skylark, I had read on another thread your response with the information about the vitamin supplements. That sounds like a very good idea. I can't afford those at the moment, but if my symptoms come back I will definitely consider that before I try anything else. Lucia, that gives me hope! ravenwoodglass, yes, I discussed it with my doctor, but to tell you the truth, I know more about it than she does. She's one of those that doesn't really understand how addictive paxil is, her advice about tapering is way too fast, you know, "oh, just take half a pill for a week or so then stop." I've moved recently and will be finding a new doctor, and I'm determined this time to find one who is knowledgeable about celiac.
      • 0
    3. LynneM added a topic in Celiac Disease - Related Disorders & Research   

      Anxiety And Depression In Remission After 4 Years gluten-free?
      In 2003 I was diagnosed with severe depression/anxiety disorder and was prescribed Paxil. It worked wonderfully for me, and I have been on 20mg. per day ever since. In 2006 I discovered that I have celiac, and have been on a gluten-free diet since then. I am currently enjoying excellent health, both mentally and physically. I now want to try to wean myself off of Paxil and am hoping that the depression and anxiety were caused by the celiac, and will not return after I am Paxil-free. (I realize that I will experience symptoms as I wean myself from the Paxil, I am doing it VERY slowly. After four days of cutting down to 17.5mg I am already experiencing insomnia and minor heart palpitations.)

      Wondering if anyone here has experience with this. Have you had success with eliminating anxiety/depression with a gluten-free diet? I feel fairly confident that celiac is the cause of my problem, because my mom, both my brothers, my mom's brother and his son all developed mental illnesses at middle-age (none of them ever did a gluten-free diet).

      As anyone who has tried to get off Paxil knows, the withdrawal symptoms can be severe, and I'd hate to go through it (it's going to take months) and then have the anxiety and depression come back. So I'd really appreciate hearing from anyone who has been through this! Thanks all.
      • 4 replies
    4. LynneM added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Substitute For Vital Wheat Gluten?
      Does anyone have a recipe that reasonably takes the place of vital wheat gluten? I was thinking I'd like to try make my own versions of vegetarian "meat", just to add some variety to my diet, but I can't find anything to replace the wheat gluten. Of course, I guess that's why all the foods I eat are gluten free, because they don't contain that 'vital gluten'. (Vital to who, I would like to know?)

      I thought maybe someone here might have some suggestions. Thanks!
      • 2 replies
    5. LynneM added a post in a topic Ankylosing Spondylitis   

      Hi Nicole,

      I assume you mean vitamins? Which are you taking that help your symptoms?

      • 0
    6. LynneM added a post in a topic Ankylosing Spondylitis   

      Thanks for the info and link. And it's actually (not com). I'll forward all of this to my friend.
      • 0
    7. LynneM added a topic in Celiac Disease - Related Disorders & Research   

      Ankylosing Spondylitis
      I'm researching this for a friend who's daughter has been diagnosed with Ankylosing Spondylitis. I'm celiac myself, as was my mom, with horrible consequences, so when I hear of someone with something like this my first thought is gluten. I can't really find much info on research or connections. Ankylosing Spondylitis is a very debilitating form of arthritis, and since rheumatoid arthritis is possibly linked to celiac, I think this could be too. I'd like to collect some data to present to my friend, because, as you know, many people just don't take the gluten thing seriously. Anybody have any experiences, or links to sites I could research?
      • 7 replies
    8. LynneM added a post in a topic Migraines Too?   

      Hi Rachael, I hear you! I've had migraines for 20 years. They pretty much stopped right away after going gluten free. I also had terrible canker sores in my mouth, those too have gone away. I still get a migraine every now and then, and I can always trace it to something I've eaten, because I'm also lactose/casein and soy intolerant. I would recommend getting tested for all the major food allergies/intolerances. Also, I always get a migraine the day before my period starts, and nothing changes that one.

      And by the way, coffee doesn't give me a migraine at all, in fact it helps when I have one!
      • 0
    9. LynneM added a post in a topic Just Got Results And What's This Double Dq Thing You Talk About?   

      Wow, the gene thing is really fascinating. Paula, my brother hasn't been tested (and won't, I'm sure, he doesn't take it all that seriously), but when he was a kid, as well as nosebleeds and being skinny, he also suffered from what was diagnosed as an "ulcer". But then it mysteriously "disappeared". And I was incredibly moody as a kid too, I remember being the same way as your stepson, happy one minute, and then crying the next.

      Hi Viola, glad you registered! The schizophrenia thing is really interesting to me too, because I'm convinced that mental illness runs in my mom's family (she is the one who had undiagnosed celiac, and suffered horribly). My brother who "developed" schizophrenia was a heavy wheat eater, in fact, he was convinced that he could live just on wheat bread! I always thought his obsession with wheat was rather weird, and then he finally descended into total paranoid schizophrenia. As I said above, I've suffered from major depression and anxiety disorder all my life, I started taking paxil four years ago. I haven't stopped taking it since going gluten-free, but I have noticed that I'm feeling even better mentally now. Perhaps one day I'll take the plunge and stop the paxil, but it really saved my life and I'm afraid of going back to how it was before.
      • 0
    10. LynneM added a post in a topic Migraines And Celiac   

      Migraines were the clue which lead me to celiac. I stopped eating gluten and the migraines went away, then had a blood test which came back negative. But I recently was tested positive through enterolab, so I would suggest trying a gluten-free diet and see if the migraines stop.
      • 0
    11. LynneM added a post in a topic Just Got Results And What's This Double Dq Thing You Talk About?   

      Paula, that IS interesting, because my brother used to have terrible nosebleeds when he was a kid and was very skinny, he always said he thought he had a tapeworm. And I don't see a lot of references here to canker sores, although it was one of the questions that enterolab asked about.
      • 0
    12. LynneM added a post in a topic Just Got Results And What's This Double Dq Thing You Talk About?   

      Paula, that's very interesting, what were his symptoms that tipped you off? My only really bad symptoms were migraines and canker sores in my mouth, both of which disappeared when I stopped eating gluten. I had the genetic test to see if I was prone to celiac disease, and now I know I can't cheat. Boo hoo:(

      And foxglove, I got the full test array from Enterolab. They do a stool and DNA analysis (from cheek swabs). The full works cost about $560, but I'm so glad I did it, because now all my questions have been answered about my food intolerances.
      • 0
    13. LynneM added a post in a topic Just Got Results And What's This Double Dq Thing You Talk About?   

      I've suffered from depression and anxiety disorder all my life, along with both my parents and two brothers. One brother has taken it all the way to schizophrenia. Isn't gene sharing a wonderful thing?
      • 0
    14. LynneM added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Just Got Results And What's This Double Dq Thing You Talk About?
      Hi, I was just reading some of the other posts and saw some references to double DQ, what is that? Just got my test results today, apparently I do have the main gene that predisposes to celiac and then the other that predisposes to sensitivity. I'm so glad I caught it before I ended up with all the horrible illnesses my mom had. If only I'd known about this earlier, it could have saved her a lot of suffering too. Here are the results, any comments would be appreciated, especially about the HLA gene analysis, I'd like to understand it better. Thanks.
      Fecal Antigliadin IgA 17 (Normal Range <10 Units)

      Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)

      Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

      Fecal anti-casein (cow
      • 14 replies
    15. LynneM added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Question About Enterolab
      Hi all, wondering about Enterolab. I've been gluten-free for about 4 months, and a recent blood test came back negative, but I still have strong suspicions about being celiac. I was looking at Enterolab's site, and it says that you don't have to be ingesting gluten for their tests to be accurate. Is that true, has anyone here gotten the test after being gluten-free for a time and still gotten a positive? It's very expensive, but it would be worth it if I can trust the results. Since gluten-free is a life-long commitment, it would be nice to know exactly what's going on. Any feedback would be appreciated, thanks.
      • 8 replies

    Ads by Google: