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lorna

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About lorna

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    Female
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    fife, scotland
  1. Hey Disneyfan, thanks for your response. I have had a bone density scan and no osteporosis. Was diagnosed with malabsorbtion issues, main concern being iron deficient. Not sports injury as i have pains in both elbows which was firstly diagnosed as golfers elbows (in both elbows). Ithink there maybe something that I am still eating thats casuing pain. Either that or need to try cutting out dairy produce to see if that makes any difference.
  2. I have been gluten free since march this year but have had burning pains in my elbows since. the pain is so severe it wakens me in the middle of the night. I am on my 3rd type of anti-inflamittary but to not avail, is this gluten related.
  3. I was diagnosed with Celiac when I was 5 years old and was in and out of hospital getting all the tests and biopsy's etc. Up until I went to secondary school I did stick strictly to a gluten-free diet with the aid of my mum to keep me right. Unfortunately in my teens I rebelled a bit and decided I knew everything and started introducing wheatproducts into my diet, mainly crisps & fat cakes etc. I didn't seem to be suffering any side effects although was a bit irratable at times but this was just put down to my age. Had another few test done and low and behold it came back I was no longer Celiac. I have then since carried on with a normal diet, although through the years have had very bad eczema, psiorias of the scalp, and now I am begining to suffer from short pain spasms in my knee. My hair has been thinning at the front of my head for the last 10 years and have learned to accept this by colouring my hair light shades to camaflage my scalp. I have been to my GP twice now enquiring if there are any treatments available to re-grow my hair, the first time was about 20 years ago and the second time was in December of last year. Both times I have been told that there are no roots therefore it is unlikely that re-growth will occur. Never has there been any link to my Celiac history, but I am starting to wonder if all this time I have actually been Celiac and wrongly diagnosed in my teenage years. I have bloods back and I am definately ceoliac, been and had DXA scan done for osteoporisis this is clear as i do regulary go to the gym I think this has helped. Bloods also show that I am severely aneamic and on 400mg of ferrous sulphate daily. I have been on a gluten free diet since February this year and the changes I have notice is that I do now sleep at night and feel drugged when I get up in the morning for havingso much rest. How ever since changing my diet I now have joint pain that I never had before in both my elbows, not sure whats causing this, can anyone shed some light. have had 2 different anti inflamitary courses from docs but to no availe. This may not be related to ceoliac the doc did say I had golfers elbows but I have not done anything different apart from change my diet and thats when it started. The big test will be on friday of this week when I have my Endoscopy again!!!
  4. i can't believe that the GP never picked up on my symptons .......... Altough when I spoke to my GP today who wasn't in practice 25 yars ago she can't understand why I was informed that I was not coeliac all those years ago. Something to think about though... i had called on monday of this week and ws told the results were negative tehn the GP called me today and told me they were positive. Its like they were looking at some other patients results and not mine!!!!!!!!! Maybe that's what happened 25 years ago thats the NHS for you not impressed
  5. never thought of shampoo/hairdye etc being the cause of my hair to fallout. I think itwas originally the DH that caused it. although I will be more vigilant from now on and check what ingredients are in theproducts that I use.......... Thaks for that advice
  6. Hey folks not sure if any of you remember me but I posted on this site a few weeks ago saying that I was diagnosed when I ws 5 years old and had not stuck to a normal diet since I was 17 because the docs told me I was no longer coeliac..... I phone the docs on monday and was told that my blood tests were clear. I was not convinced and decided to go gluten free on my own. How ever I got a phone call at work today to say that I am infact coeliac and they could not understand why I had been told otherwise 25 years ago. I am horrified at the damage that may have done over the last 25 years thru miss diagnosis. I am now waiting to get a density scan and further blood tests. I did actually have skin problems for years and my hair is falling out and yet the doc had made no conection until I asked to be re-tested. has anyone else had this problem. I know I will have to contniue to dye my hair to camoflage the baldness but maybe it will grow in stronger and not break so easily.
  7. I was diagnosed twice with biopsy's as a child, then when the blood test came back clear as a teenager it suited me to be able to eat normal food. I can only assume that if I am tested positive again that it is of a milder nature that most people on this forum. Over the years I have had depression, skin problems and psoriasis of the scalp which would explain the hair loss. But maybe all along its been coeliac, but it never once entered my mind that it was. i havn't thought about this for years, it was my mum who printed alot of info from the web for me and she made the link. My immediate reaction was to go gluten free, until I read all the inof on this forum. This is a source of knowledge better than any GP. you would think the Gp's would have made the link by now....or maybe not, like everything else you usually diagnose yourself these days. I have an appointment to see the GP tomorrow to get them to trace back my records and test results and to arrange to be tested again.
  8. I can't believe this!!!!!!!! I have had a twitch in my ee on and of for the last year and am still waiting to be diagnosed
  9. I was diagnosed with Celiac when I was 5 years old and was in and out of hospital getting all the tests and biopsy's etc. Up until I went to secondary school I did stick strictly to a gluten-free diet with the aid of my mum to keep me right. Unfortunately in my teens I rebelled a bit and decidedI knew everything and started introducing wheatproducts into my diet, mainly crisps & fat cakes etc. I didn't seem to be suffering any side effects although was a bit irratable at times but this was just put down to my age. Had another few test done and low and behold it came back I was no longer Celiac. I have then since carried on with a normal diet, although through the years have had very bad eczema, psiorias of the scalp, and now I am begining to suffer from short pain spasms in my knee. My hair has been thinning at the from of my head for the last 10 years and have learned to accept this by coloring my hair light shades to camaflage my scalp. I have been to my GP twice now enquiring if there are any treatments available to re-grow my hair, the first time was about 20 years ago and the second time was in December of last year. Both times I hav been told that there are no roots therefore it is unlikely that re-growth will occur. Never ha there been any link to my Celiac history, but I am starting to wonder if all this time I have actually been Celiac and wrongly diagnosed in my teenage years. I am waiting on an appointment to see a dermatologist for my scalp. But I think meantime I need to make an appointment to have a blood test. Has anyone else had similar experince?