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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About WakeupNurse

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  1. Scd Diet

    I got very sick a back in January with intestinal troubles. Lost about 40 pounds within a month, constant D, nausea, couldn't eat or drink, had to have weekly IV's. Doctors said they thought it was celiac (negative blood tests) but I didn't get any better on gluten free diet. Had to go on medical leave because I was so weak...wound up in hospital for 6 days, was so dehydrated I couldn't walk and every system in my body was starting to suffer. Wound up going on SCD after I got out of the hospital and all of my symptoms went away. really quickly. They're still pretty sure it's celiac, but because it got so out of hand I have basically developed secondary allergies/malabsorption issues. As long as I stay on it I'm pretty good, as soon as I go off of it, I'm feelin it. The planning and not being able to eat out on SCD sucks but for me it means my life. I'm still working on finding some things that seem to upset my balance lately that I might be missing but at least I feel like I'm starting to live again. A lot of my coworkers have made the comments "i don't think I could do that....that's way too much don't get to eat any real food..." but I think people fail to realize how healthy of a diet it really is and you'll do anything you have to when you've been where I was.
  2. Help! Oversleep & Fatigued

    I have to agree with capshert. I too was plagued by constant fatigue & sleepiness for years. I kept going to doctor after doctor saying "I'm so tired I can't get through the day, I have to take naps all day, then I sleep 8-12 hours a night and wake up feeling like I ran a marathon!" They kept saying I was depressed, most never tried to find any apparent cause. I had a sleep study that showed I had narcolepsy, after learning more about it I realized I had all of the classic symptoms. I now take stimulants that help make my day a little more bearable and sedatives at night to make my nighttime sleep more restorative. Not saying you have narcolepsy or idiopathic hypersomnia, but there are a several sleep disorders out there that can cause you to be excessively sleepy (restless leg, apnea). It is definately something to look into because most people with sleep disorders don't know that they have them since they are so under-diagnosed. You sound very much like me prior to my diagnosis. Sleeping that much is NOT normal, and don't let doctors tell you it is, or that it's all in your head! Overwelming sleepiness is not the same as fatigue that you may have from celiac so if it's not improving with your gluten-free diet and is affecting your daily life you def. should have it checked out. Hope you find some answers that you were looking for!
  3. Donna- how did you finally figure out what all of your intolerances were? Going gluten & casein free was nothing compared to actually doing the SCD by the book. It's REALLY tough not to have any of the contrabands! Oh well I'm so miserable now in my current state I guess it doesn't really matter how restrictive a diet is because I can't really eat anyway! Wow, first time in my life I've had this problem....
  4. These looked super yummy when they made them, I can't wait to try out the recipe! The bakery is in NYC and is all gluten & allergy free because she's a fellow celiac, I wish we had one of those bakeries here! I just had to share the recipe though! Makes about 5 dozen mini brownies Note: This recipe is free of wheat, gluten, dairy, casein, and eggs. 1/2 cup canola oil, plus more for pans 3/4 cup plus 2 tablespoons garbanzo and fava bean flour 1/4 cup potato starch 2 tablespoons arrowroot 1 cup unrefined sugar or 10 tablespoons plus 2 teaspoons agave nectar 2 1/4 teaspoons baking powder 1/4 teaspoon baking soda 1/4 teaspoon xanthan gum 1 teaspoon salt 1/2 cup unsweetened cocoa powder 1/2 cup store-bought unsweetened applesauce 2 tablespoons pure vanilla extract 1/2 cup brewed coffee or hot water 2 cups vegan gluten-free chocolate chips, such as Tropical Source 1. Preheat oven to 325
  5. This was on Martha Stewart today, normally I don't care for her show but I had to catch it because they looked so yummy! The girl has a bakery in NYC with nothing but gluten-free & allergy free food in it, could you imagine! She's a fellow celiac. Cinnamon Toasties Serves about 10 Note: This recipe is free of wheat, gluten, dairy, nuts, casein, soy, and eggs. 1/2 cup canola oil, plus more for pan 1 cup garbanzo and fava bean flour 1/2 cup potato starch 1/4 cup arrowroot 1 1/4 cups unrefined sugar 2 1/4 teaspoons baking powder 1/4 teaspoon baking soda 1 teaspoon salt 1/2 teaspoon xanthan gum 2 tablespoons ground cinnamon 1/3 cup store-bought unsweetened applesauce 1. Preheat oven to 325
  6. OK so I've always had GI problems but never thought that I had Celiac, call me naive but I just always thought a 6 minute digestive track was normal. Then about 2 months ago I abruptly starting having continuous D, nausea, loss of appetite, tachycardia, weakness, worsening symptoms of my dysautonomia- to the point that I've required weekly IV's and have lost +30 pounds. After about 3 weeks they ran the celiac blood tests and they came back negative, however my progressive thinking doctor knew I could very well still have it. So...I went gluten & casein free and still no improvement, actually my condition has worsened as the majority of my weight loss and symptoms have been since then because I can't eat and what I do goes straight through! All of my labs are fairly normal and they're at a loss. So I had a test called a CRT (computerized regulation thermography) done. The results showed that I still had SEVERE food allergies and fermentation and that my gut was indeed the source of all of my problems. (have multiple other health issues too) He put me on the Specific Carbohydrate Diet and gave me this book called Breaking the Vicious Cycle. It is very restricting, does not allow any grains at all, no sugar, no potatoes, no rice, no corn. Basically meats, and most fruits & vegetables. Apparently there have been drastic results with people with Celiac & all sorts of IBD's that have been unresponsive to the other treatments. So I was wondering if anyone has tried this diet because I know I've seen from this site that a lot of you continue to struggle with symptoms even after going gluten free? Even as restricting as it is I'm going to give it a 100% attempt because I've been so sick I've had to go on medical leave because I can't walk across the room without blacking out! Any feedback would be appreciated!
  7. It is probably definately related to the new Mg supplements. Try cutting back to just one a day for awhile and maybe work up to two if you need them. Classic symptom of too much magnesium is diarrhea. That's usually how a lot of people who take Mg kind of know how much they need to take is when they reach the point of D, they back up until their stools return to normal and that's how much they need. You may find a pill that is a little less concentrated so you can take more pills and find out exactly how much you need a day before you find negative side effects. My Mg pills are 250mg so I can titrate them a little more closely depending on my needs. Happy supplementing!
  8. I too have been wondering if I am also suffering from Addison's disease. I go back to my doctor tomorrow and am going to ask him to check my cortisol levels. My health severely diminished about 2 months ago and have had to go on medical leave due to D, weight loss, nausea, loss of appetite, dehydration etc. We immediately suspected Celiac because I had always had some GI issues as well as autoimmune issues. I have gone gluten and casein free even though my blood tests were negative. My other health problems and fibromyalgia-like symptoms seem to be improving but these new severe symptoms are not and no one seems to know what is going on. I don't in particular have hyperpigmentation either but I seem to have all of the other symptoms. I'll let you know how it goes, I'd be curious to know if you find out anything else.
  9. I think this is pretty common among celiacs but also many people with other autoimmune diseases. It can be pretty scary when you quit feeling your feet and hands like you should and can't remember things like before! I have a lot of neuropathy issues also. Mine are mostly caused from malabsorption and pernicious anemia (low B12). A good fish oil omega three supplement can help with neuropathy, as well as B12 or Bcomplex supplementation. There is also a med called Cerefolin with NAC out there that is prescribed for neuropathy that is several vitamins (B6, folate, methylcobalamin, & NAC if I'm not mistaken) that is often prescribed to diabetics with neuropathy that might help. Making sure you're getting enough of your calcium, potassium, and magnesium will help also. I wound up taking my vitamins in shot form because my absorption is so poor we couldn't ever get my levels up. Good luck!
  10. I am still in the beginning stages of finding out if I am celiac or not. However, my question is about dairy. I have always known that I am lactose intolerant but have been able to eat some things without "apparent" consequences. If I'm going to eat pure milk products or processed cheeses then I take Lactaid and I'm usually ok. For those of you with dairy intolerances, do you find that taking Lactaid prevents your symptoms or do you have to avoid all dairy all together? I never really thought that some of my other symptoms could be related to the dairy I was ingesting that just weren't causing the very noticable reactions. Any opinions would be appreciated!
  11. So I'll try to keep this fairy short but I've been diagnosed with a long list of problems throughout the last few years and my doc finally decided maybe it was celiac. My dx & sx include Vit D, Vit B12, and Iron Deficiencies, severe fatigue, peripheral neuropathy, fibromyalgia (recent onset since the stomach stuff has gotten worse it seems), GERD, narcolepsy (not related), and weight loss related to the fact that every time I eat I have the big D within 5-10 minutes. I have hardly any appetite and everything makes me sick. I am on a ton of meds for various ailments but they pretty much decided none of them were causing the distress. So he ran the blood work, in the mean time I went 100% gluten free, two week ago. Blood work says I don't have celiac, but he said possible still gluten intolerance. My question is, if it is gluten intolerance causing all of this, when will I start to feel better because I still can't get more than 5 bites into a meal without running to bathroom, and am dropping weight like an ethiopian. While I have some weight to lose, I'd prefer not to lose it this way since my neuropathy has since come on since all of this worsened and I know that this is not healthy weight loss. I'm more fatigued than ever because I know that I'm volume & nutrient depleted but can't keep anything around long enough to absorb it! I've been extremely diligent and have a pretty good handle on nutrition concepts so I'm pretty sure I'm not being accidently glutened. Any ideas that some of you long-timers might have as to what might help would be greatly appreciated!