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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About gfgypsyqueen

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  1. Would You Trust The Allergist?

    I always feel that Drs are just like regular people. Some people you just get along with and have an easy friendship and other people drive you crazy from day one. Most people can use any dr and do fine. Celiacs have such specialized needs that I think it is very important to find a Dr who is willing to listen to you, learn about Celiacs, and work to find a resolution for the issues. Typically I ask very vague questions about Celiacs and food allergies when I go to a new Dr. Then I wait to hear the response. There response dictates whether or not I will ever go back. One Dr actually got excited to hear I had CEliacs. He was the best Dr by far. Other Drs have told me some crazy thoughts about Celiacs and food allergies. Some Drs are willing to ask me questions and have a conversation to learn more about my health issues and what I am going through. I like these Drs. Other Drs tell me exactly what is in my head and what is wrong with me without a single test. I don't go back. Some of my favorite Drs tell me exactly what is wrong, then order the tests, then acknowldge the right and the wrong diagnosis until we find what works for me. In the end it is a process of in depth interviews of Drs until you find one you like. Your crazy allergist has got to go!
  2. Gluten Free In Cancun

    Many years ago I had a great trip to Cancun and stayed at an all inclusive place. Beautiful area! Had a great time!!! I brought some dry cereal, cookies, crackers, etc. nothing that had to be cooked. Also brought a letter from Dr stating medically necessary diet...You may need to verify the new and improved security and travel rules. Also, call the resort and talk to the chef. They should be able to help you with the diet. They should have someone on staff who speaks English if you do not speak Spanish. Find a translation dictionary (pocket size) and bring it with you. See if you can get the Spanish version chef cards before your trip. Hope you have a great trip!
  3. Help

    First off, you are new to this, right. The reaction to gluten after you have healed and are 100% gluten-free will be worse than before you were diagnosed. When I first started this diet, and everytime we add a new food allergy to the house, I go through this process. Mark every product that you have verified is gluten-free and whatever else you are avoiding. Keep to basic foods until you heal and get a better grasp on the diet. It's really irritating to have to call on everything, but your list of safe foods and food you like will grow. Here are a couple of thoughts. 1. Call Campbells and verify the soup is gluten-free. I have never bought that brand again since going gluten-free, thought there was a problem with it. (Progresso labels well) 2. Lay off the salad dressing for a while until you really heal. I vomit and get the "sick all over" feeling from too much acidic stuff like pineapple and salad dressing just sends me over the edge. 3. Check your toothpaste, lipstic/chapstick, etc. 4. Check those teas. They sound good And check the Aloe Juice. Verify the Soy milk not all are gluten-free. 5. Check the jelly, BBQ, etc. Hope you feel better.
  4. Celiac Disease Effects

    I'm right there with ya! I was diagnosed in Georgia. It only took 3 or 4 yrs with active problems to by chance get the right dr, and it still took forever to figure out the problem was Celiacs! I have had problems in the past and only figured it out after checking every single item in the house! Cleaners, soaps, lotions, bath stuff, make up, food, drinks,....huge phone bill! One company makes a small change and we pay dearly! Maybe something else is getting you sick too? Have you looked into a kinesiologist (sp?)? They might be able to help find a way to reduce the bloat and get your system under more control for you. It was a huge help for me
  5. What Do I Do Now

    I find that Benadryl and Motrin help with some of the symptoms. But there is no way to speed the recovery process along. At least I have not found one yet. If you are new to this, start looking for symptoms and note how long until they go away. At least you will have a better idea of what you are in for next time. Otherwise, buy some comfy fitting decent looking clothes to have in the closet in case of emergency... Hope you feel better soon!
  6. Frustrated With Allergy Doc

    My daughter had a rash that responded to nothing and came and went with no ryhme or reason. The combination of gluten-free & CF made all the difference. She gets a rash from trace amounts of dairy. So maybe that would do the trick? Not sure of the age of your daughter and that might make a difference. But, I have learned to politely go head to head with the doctors and correct them when they are wrong. I am sure one day it will embarrass my kids, but it also proves that Drs are just people...not demi-gods. I have corrected them when they are wrong about Celiacs, argued about her symptoms and that they are not a non-issue, and insisted on testing. I have also made them explain their thoughts and reasoning for other tests and in the end, it is my child, I need to understand what they are doing and why and what my child will be going through. Yes, I do the same thing with my Drs. So in my opinion, you stand up for your child in every other situation, right? Same thing happens in the Drs office. No yelling and screaming. Just a lively debate to make sure issues are addressed and understood by all. Always be polite and respectful. And by all means, insist that they speak positively about Celiacs from the first negative mention!
  7. I have a three year old who is gluten-free/CF, so feel free to PM me if you need more info. Here is what she likes: Oscar Myers Hot dogs Boars Head Ham (Not so found of turkey) Chicken wings (BBQ sauce) Chicken (I grill as much as possible, but baked is good too) Grilled fish BBQ ribs Pork Tenderloin Belle and Evans Chicken nuggets (expensive but really great!) Homemade chicken nuggets (I use a Fish Fry mix in an egg wash for the batter.) Soup! (Chicken broth with chunks of chicken is her favorite) Van's Waffles (gluten-free Original) Bob's Red Mill Pancake mix Chocolate chip muffins (gluten-free Pantry mix & Enjoy Life Chocolate Chips) KinnikKinnik Donuts - Expensive, but haven't found a recipe I like yet ( Bacon & Eggs Grits (gluten-free/CF butter & sugar) Rice French Fries (but HATES a baked potato!) Broccoli Corn carrots Apples Bananas Ener-G Crackers Glutino Pretzles Mrs Leepers Alphabet Pasta (no sauce) English Bay Milk (gluten-free/CF) is the best! Hershey's chocolate syrup for a treat! Other treats: CherryBrooke Kitchen chocolate cake mix gluten-free Pantry Brownies, Coffee cake, muffins Glutino Waffer cookies Lunche box lunches are styled like "Stackers". Sliced or chunked meat left overs. Sliced apples or other fruit. Crackers or Pretzels. Juice boxes. I try to keep lunches as "Cold lunch only" to make life easier. But pasta, hot dogs, and chicken nuggets go to school occassionally. When she gets older I might have to do sandwiches, but right now she prefers this. What helped me at first with the CF shopping was to look for VEGAN dairy substitute foods. Non-Dairy and Lactose free foods can still contain casein. As for the behavior issue, every time my little Silly is glutened, her behavior is off the charts uncontrollable. It lasts for days. Once she is gluten-free/CF again and tummy has healed, she is happy, healthy, funny, easy going kid. That alone is a reason to keep her gluten-free/CF in my book! Be advised that some dried herbs have milk products. Check the creams, lotions, liquid soaps, bath products, and your lipstick too. I have found gluten and dairy in some weird products! Ask more questions if you need anything!
  8. Different Symtoms

    Unfortunately this disease has many symptoms. My child and I had very different symptoms. Even our reactions are different. I thnk in the end, do a gluten challenge to test the diet is the only way to really "see" what it does for your child.
  9. One of my kids had a dairy allergy from birth. She wouldn't spit up much, but she wouldn't sleep, had rashes, tons of gas, etc. Her stomach sounded like a popcorn popper. We had to use homeopathic drops to help her. (Newton's Indigestion and gas was one of them. I can't remember the other. Sorry. But the gas stuff worked soooo much better than the stuff you are using.) Using Soy formula really helped her out. Also, your child is close enough to the one yr mark, talk to the dr about remmoving formula for a few days or a week. Are you nursing? If so, are you consuiming ANY dairy products? If so, remove all dairy (to trace level if you can) and see how baby is doing. My kid ended up being a Celiac, having a dairy allergy, a few food allergies, and we are still working on finding the latest problem.
  10. It is really hard dealing with a sick baby or toddler. It is only harder on you when is simple diagnosis is just not available. I hear ya on the lack of sleep My little Silly never slept more than a few hours before going gluten-free/CF. She still has somethign bothering her and we are workign on determining what it is, but overall she is so much better. We are all better now that everyone gets some sleep! Hopefully your little one will start feeling better soon and hopefully the biopsy will not be positive for any of those hard diseases you were mentioning. Keep asking questions on this site. There is a huge wealth of knowledge here. Good luck on the testing. PM if you need some food or snack ideas or anything.
  11. Food Ideas For Moving

    Have you thought of hotels with stoves, fridges and microwaves? If not, see if you can bring a single portable burner and a frying pan and pot. Or a small forman grill. Plan to have a small cooler in the car near the kids. Then have the big cooler stocked and accessible in the truck. Look into all the portable things. Canned chicken, tuna, veggies, black beans, salsa, chips. You can mix these up and make a cold can snack for the drive each night. Stock up on fresh fruits. Prior to move day, cook and freeze muffins, cookies, etc. Safe snacks for the ride. dry cereal is a good snack too. See if you can pre-plan you trip a little and figure out cities and locations that have either restaurants that work for you or have grocery stores and health food stores. You can even call ahead and place an order for them to hold for you to pick up on your way. Hope you have an easy move!
  12. I can't tell you how much gluten is needed to see damage, but I would guess a significant amount at every meal for a few months. Since you only have one month, I would guess heavy gluten at every meal is your best bet to attempt to see damage in the biopsy. That being said, listen to the issues with my little one. I have Celiacs. So I know the signs and when hers started at 9 mths I started saying this needs to be checked. Nope. The Dr wouldn't do it. Close to the one year check up the Dr was finally agreeing that the hunger, months of diarrhea, unexplained rashes, and the constantly dropping percentages on the growth chart needed to be checked for Celiacs. But we were moving so it couldn't be done by that Dr. In the new city the Drs flat out refused. They had to go through the whole process again, they saw her as petite. I saw her as eating non-stop, not sleeping well, diarrhea, rashes, not growing in an upward percentages on the charts. Finally I had to start fighting and demanding that they test her. We had a few months of that. Yes she was constantly ill and at the Dr office. It was not pretty, but she finally got the blood work and then the biopsy. That was her second birthday present - a biopsy. Huge production, very emotional for us, and in the end worthless. By this point she was falling off the growth charts. The biopsy was inconclusive. But luckily they did the gene test, which was positive. The Pediatric Gastro Dr actually yelled at me for making her gluten-free without his permission. She has also been dairy free for life. Always had problems with it. So we tried a month or so of 100% dairy free not a trace or anything. She still had some problems. Then against the wishes of all of her Drs, I made her gluten-free/CF. Within a week she had formed poop for the first time in her life. She started to sleep through the night. She was no longer starving. Her behavior improved tremendously. Things went away that I didn't even realize were Celiac related. Now it has been a little more than 6 mths gluten-free/CF. She has grown several inches, packed on the pounds, and went through two clothing sizes. She is still very small for her age. The pediatrician sees the changes and agrees that it works for her and that she has Celiacs. I do not have a Pediatric Gastro any longer. Why did I wait so long? Because I wanted a solid diagnosis for her. So there would be no debatting later on that she is a Celiac or is not a Celiac. I still don't have that. She had over a year of daily gluten and a sick body that was not growing and she was getting worse by the day. Even with all that, they still did not find any damage on her Celiac biopsy panels. So in my opinion only, I understand why you may want the biopsy and the difinative answer of yes it is Celiacs. But I think with kids this young it is so hard to get that 100% accurate biopsy that it is Celiacs. However, I do agree with having the scope to look for the other diseases and rule out the other issues. When it comes to Celaics and a young child that is already gluten-free, I don't think one month is enough time and even with enough time they still might not get the damaged piece in their biopsy slides. Best of luck with your decisions and the upcoming biopsies. I just wanted to tell you our story.
  13. So sorry to hear your wife is having those problems at PF changs! I love that place. I have had similar "break downs in the process" at other gluten-free menu restaurants. I just had this happen about a month ago and I am still recovering!!! I hate to give up on a restaurant since we have so few good ones to choose from. But in the end, writing corp is the best! I guess we all now know to include a copy of our receipts with these letters. Let us know the outcome.
  14. Eating Out.

    I would recomend the restaurants with gluten-free menus at first. After you get the idea of the diet under control then start checking out how the family's favorite restaurants will incorporate her diet. gluten-free Menus: Caraba's PF Chang's Outback Wendys Moe's Chipoltes (sp?) Red Robin Cheeseburger in paradise Lee Roy Selman's Boston Market (they had stuff years ago...not sure about now) Cold Stone Creamery (nothing on the slab...ask for scoops from the back freezer) Baskin & Robbins (labels for allergens) Just call the franchises in the area and ask if they have a gluten-free menu or look online. You can still eat out with some precautions. When it was only Celiacs, it was easy to eat out.
  15. I guess my family handles thigns differently than some. I have Celiacs. My spouse does not. One kid has severe food allergy. Other kid (3 yr old) has Celiac, dairy allergy, and other allergies being tested. We go through tons of silverware, cutting boards, and plates in the day. When we go out to eat, each person has their own silverware and ONLY that silverware is used on that plate and the food on that plate. I mean most of the meals the Celiac child eats do not involve her picking them up like a sandwich. If needed, get an extra fork and knife that you can touch with wiped (gluteny) hands and cut the food more etc. I have not purposefully touched wheat in years. But my husband eats gluteny stuff when we eat out. We just wipe our hands off (wipes) well if we are touching somethign the kids can't have to eat. We get extra napkins when eating out. The kids tend to drop theirs or crumble it up into a ball that is unusable....When they need cleaned up, it is their napkin or a new napkin. Or wipes if it is a really big mess. There is no touching of plates or sharing of glasses especially between the kids. At home, the kids generally sit in the same spot at the table. And they are only allowed to eat at the table (keep those crumbs in one place ) I guess they have gotten used to the rules because it is second nature now. Sounds a bit crazy, but it works for us.