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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About JennyC

    • Rank
      Advanced Community Member
    • Birthday 08/01/1982

    Profile Information

    • Gender Female
    • Location Portland, OR

    JennyC's Activity

    1. JennyC added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Gluten-Free Cheese Ravioli At Costco
      Hi everyone,

      I have not posted in quite awhile, but I thought I'd share that I found gluten free cheese ravioli next to the other refrigerated ravioli at Costco! I sampled it in the store and it was very good. I have not made it at home yet, but I'm very excited to do so. The Costco location was Clackamas, Oregon. I hope it is at other locations as well.
      • 3 replies
    2. JennyC added a post in a topic The Most Delicious Home-made Gluten Free Bread I've Ever Tasted...   

      Sounds like too much liquid.
      • 0
    3. JennyC added a post in a topic Anyone Familiar With This Book....?   

      I've tried a couple of her recipes that I have come across on different gluten-free blogs. Her cheese cracker and cinnamon rolls are amazing! I was just thinking about trying to find her book on amazon!
      • 0
    4. JennyC added a post in a topic Rustic Crust Pizza Crust   

      Where can I find these delicious crusts?
      • 0
    5. JennyC added a post in a topic Is There An Expert In Immunology Here?   

      I have studied celiac disease, and I want to share this article with you. The only thing that it does not cover is how gluten makes it through the tight gap junctions of the small intestine. The article focuses on immunology.

      Also, I don't think it takes months in many cases for antibody levels to increase in response to consuming gluten. We were going to try the gluten challenge with my 6 year old son, so we gave him gluten for 3 days and he had to stop the challenge. We went in to have his blood drawn and his tTG went from 9 to 17 after 3 days of gluten!
      • 0
    6. JennyC added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Gluten Challenge
      I have not posted in a long time, but I thought that I would come here to share my recent experience. My son was diagnosed with celiac disease three years ago based on clinical symptoms and blood work. When he went gluten-free all of his many symptoms went away. He has been under the care of a great pediatric gastroenterologist for the last three years. At his recent visit, she asked if we would be interested in doing a gluten challenge. I agreed because I thought that having a positive biopsy might make his life easier a later on. I started giving him gluten on Wednesday and he got SO sick. He is back to his pre-diagnosis symptoms, having D three times a day. He is also in a great deal of pain. He wants to go back to eating gluten-free, and I am not about to force him to eat gluten! So now we are going to get a tTG drawn. I feel so bad for him. I've been giving him Tylenol. The GI told me to give him Gas-X. Does anyone know if I can give him Pepto? He is nearly 7 years old and weighs 47 pounds.

      Thanks for listening!
      • 7 replies
    7. JennyC added a post in a topic Gluten-Free Elephant Ears?   

      We use pie crust and sprinkle it generously with cinnamon and sugar. It's surprising how much it takes! It's not quite like the fried version, but I guess that you could try putting a thick coating of oil on the cookie sheet if you want to try to mimic the fried texture. Even without the oil it's delicious and a little healthier too!
      • 0
    8. JennyC added a post in a topic Sorry . . . Diaper Question!   

      Add me to the list! My son's diapers were like that before he was diagnosed with celiac disease and placed on a gluten free diet. They looked like light tan sand with occasional mucous. I think that was a result of malabsorption. I would get your child tested for celiac. If the test is negative, then I would try the gluten free diet to see if the diaper situation improves!
      • 0
    9. JennyC added a post in a topic Donating Blood/Plasma?   

      Yes, you can donate blood products. It's a great thing to do for others.
      • 0
    10. JennyC added a post in a topic Vitamin D Deficiency   

      I just thought that I'd add that vitamin D deficiency is very common. I work in a hospital laboratory and nearly every patient we test is vitamin D deficient. A tech tested her own blood, and she too was deficient even though she takes vitamin D supplements each day.
      • 0
    11. JennyC added a post in a topic Need A Doctor For Child In Oregon   

      Dr. Terry is great! She's also recommended by GIG. If you think something else is going on with your kiddo, try going to the pediatrician I listed. She has no problems referring you to a specialist. I was concerned about my son's growth and she was more than willing to refer him to an endocrinologist. (In the end, we did not do that because his rate of growth has been increasing.) She takes your concerns seriously, which is enormously important.
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    12. JennyC added a post in a topic Need A Doctor For Child In Oregon   

      Doernbecher Children's Hospital has some great doctors.

      This is my son's pediatric gastroenterologist, Dr. Terry:

      This is his pediatrician. She is great and really takes the concerns of parents seriously. Her name is Tara Schwab.
      • 0
    13. JennyC added a post in a topic Do Non Certified Oats Really Have Gluten?   

      Bob's Red Mill gluten free oats are grown separate from wheat, processed by wheat-free equipment on the field, transported and stored separate from wheat, and processed in a separate factory. BRM goes through a lot of effort to ensure the gluten free status of their oats. Remember that oats do have some structural similarities with gluten grains, and an estimated ten percent of celiac patients react to gluten free oats. If you can tolerate oats, I think the extra cost is well worth it.
      • 0
    14. JennyC added a post in a topic Question On Ig A Deficiency   

      1. Would an Ig A deficiency cause me to not react on an allergy panel, or to have a delayed reaction to the testing?

      No, allergy panels are based off of IgE antibodies. IgA bodies are mainly found in the gut, saliva, tears, and milk.

      2. If I am Ig A deficient would I even feel those allergic reactions to pollens and stuff (mostly stuffy nose and itchy

      IgA deficiency would not impact allergies.

      3. I know that Ig A deficiency does affect the outcome of the celiac panel, so is there another blood panel that can be done for people who are Ig A deficient?

      The most specific serological test for celiac is tTG IgA because IgA is found in the gut, and that is the location of the autoimmune reaction. You can have tTG IgG tested if you are IgA deficient.

      How do I know if I am Ig A deficient for sure?

      Get a total IgA count.
      • 0
    15. JennyC added a post in a topic Is This Iga Deficiency?   

      The tests that were run were for tissue transglutaminase antibodies, for both IgG and IgA antibody classes. Both of the tests are for celiac disease. You did not post any tests regarding antibody deficiency. A test for IgA deficiency would likely be called "IgA toal" or just "IgA."
      • 0

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