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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    runner girl

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    1. runner girl added a post in a topic Marathon Training :-)   

      I have run several half marathons and two full marathons since being diagnosed 3 years ago with Celiac. I personally use Infinit which is a sports drink that has everything you need nutrition wise in it for your race. You can order it at The people there are very knowledgeable and can help you with the formula that will work best for you. I carry a water bottle and then baggies of powder with me to mix at aide stations when my bottle is empty. I have also used Sharkies and Powergel.

      As for the carbo loading the night before, you can do rice or even a gluten free pasta. I like the Tinkanyada (sp?)rice pasta. You can also do chicken breasts for protein. The morning of, I usually will have a gluten free bagel with peanut butter and a banana.

      I am attempting my first Ironman Triathlon this coming weekend. Wish me luck!

      Good luck with your fundraising and marathon!

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    2. runner girl added a post in a topic Pei Wei Question   

      Pei Wei is my favorite place to eat. The gluten-free sweet and sour chicken/shrimp is awesome. It is very sweet and served with pinapple and green peppers, which can easily be pushed to the side. The gluten-free Chicken salad rolls are really good too, but I am not sure how kid friendly they are. Pei Wei, in my experience has always been really careful about making sure it is gluten-free, though they do give you soy sauce (in little packets)that has wheat in it, so stay away from the soy sauce. I would definitely recommend Pei Wei!
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    3. runner girl added a post in a topic Skosh Monahan's In Costa Mesa, Ca   

      thanks for posting. We live close by and will have to try eating there!
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    4. runner girl added a post in a topic Gluten-free Survey, Please Read!   

      Survey completed, good luck with your study!
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    5. runner girl added a post in a topic Scary 1/2 Marathon At Disneyland Today   

      I too am a runner, have completed 3 marathons, several half marathons, one half Ironman and am now training for my first 50K Before long runs I usually eat a banana, have a power gel and wash it down with about 16 oz water. I always carry water on my runs and use powergel and clif shot blocks as fuel. You may want to try and find a recovery drink to use after longer workouts.

      I also eat rice pasta as a pre long run/race meal. Tinkanyada sp? is a good brand. Rice also works.

      Hope this helps!
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    6. runner girl added a post in a topic Gaining Weight Training For 1/2 Ironman Instead Of Losing   

      During long runs and bike rides, I alternate between shot blocks and powergel. I just finished a half ironman and thought I had my nutrition down, but at the tail end of the bike leg, I was so hungry, something I was totally unprepared for because I had never experience that during training. I ended up eating bananas during the run along with my get and shot blocks and had a few oranges as well because that was all that they had at the aid stations that was gluten free. Has anyone tried Perpetum? My husband uses it and likes it and it appears to be gluten free. I would appreciate any other nutrition information if anyone would care to share.
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    7. runner girl added a post in a topic Pre-race "carbo Loading"?   

      I have run 1 marathon, several half marathons, and just finished a half ironman last month, since being diagnosed with Celiac. The night before the half ironman, I ate rice pasta and some gluten free bread. I felt amazing during the race. I think you are able to get enough carbs this way. I have also used rice to carbo load. I don;t think there is anything wrong with carbo loading. Too much protein and fat the night before a race can leave you with "icky tummy" the next morning because it does not digest as easily.

      I do agree that if there is any way you can prepare your own meal the day before, you should. If you accidentally have some gluten contamination, it can ruin your race.

      Good luck with the marathon. Once you've run one marathon, you'll be hooked. It is such an amazing feeling crossing the finish line after all the training you put in. Make sure you enjoy the race, it will be over before you know it!
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    8. runner girl added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Gluten Free Oyster Sauce
      Does anyone know of any gluten free oyster sauces and where to buy them. After searching on the internet, I came across Choy sun Oyster Sauce and Chang' oyster sauce, but have no idea how to go about buying them.

      thanks for your help!

      • 19 replies
    9. runner girl added a topic in Gluten-Free Restaurants   

      Restaurants In Spokane, Wa
      I will be traveling to Spokane WA and Couer d'Alene, ID at the end of June. Does anyone know of any good restaurants in those areas?

      • 1 reply
    10. runner girl added a post in a topic Gluten Free Menus   

      The Spaghetti Factory also has gluten free pasta and a gluten free menu. Chili's also has some gluten free items as well.
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    11. runner girl added a post in a topic Testing Kids   

      How did you go about having the genetic testing ordered? If you don't mind me asking, did your insurance pay for this or did you have to do it out of pocket. I would like to know if my kids carry the gene, just so I know if I need to keep an eye on them. My pediatrician has ordered the celiac panel blood test for my youngest and we are waiting for the results. My two oldest do not show any symptoms and are quite tall for their age, so I don't think they have it now, but I would like to know if they carry the gene. Thanks for all your info.

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    12. runner girl added a post in a topic 7 Weeks gluten-free   

      I am 6 weeks gluten free and now feel like I have more energy. I used to be tired all the time, thought that it was normal, now I have so much more energy. Because of this, I feel I am better able to deal with stress and seem to be more tolerant.

      Good luck and congrats on 7 weeks gluten free!


      P.S. I made the best pinapple upside down cake the other day. It tasted so good! The first baked good in 6 weeks. The recipe was in The Gluten Free Gourmet Makes Desert. I highly recommend it, it wasn't hard to make either!
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    13. runner girl added a topic in Celiac Disease - Coping With   

      Accidental Glutening
      I was just wondering how long it takes before symptoms appear after accidentally eating gluten. I ate a salad last night that had croutons on top. I picked off the croutons and the top layer of the salad then ate the rest after washing my hands. I felt really "gassy" an hour later and was wondering if that was the cause. Before being diagnosed, I did not have symptoms except anemia (was tested because of family history). I have been gluten free for about 6 weeks and do notice I am not tired all the time like I used to be. I like to think that is because my iron levels are coming up and my intestines are healing.

      Thanks in advance for your advice.

      • 2 replies
    14. runner girl added a topic in Celiac Disease - Coping With   

      Another Question From Newbie
      Hi all,

      First, I just want to thank everyone for all you're help and advice. It is nice to have a support system to help, especially since this is only week 2 of being gluten free.

      My question is, since celiac causes malabsorbtion in the intestine until things have a chance to heal, is birth control affected? I wonder if it is being absorbed. I have an appointment with my ob/gyn tomorrow and figure he won't know much about celiac, so I want to have as many facts as possible. Sorry for being graphic, but the reason I am on birth control is because I am having huge issues with spotting and the birth control has not helped at all.

      Again, thanks in advance for your advice and answers!

      Warm regards,

      runner girl
      • 2 replies
    15. runner girl added a topic in Celiac Disease - Coping With   

      Contamination From Touching?
      Is it ok to touch things with gluten as long as they are not put in the mouth. I was making paper maiche with my daughter and used regular flour. I am hoping this is not a problem. If so, how do you guys deal with cooking "gluten" food for your families?

      Thanks in advance
      • 6 replies

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