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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  • Location Bay Area, CA
  1. Have you or has someone you know been diagnosed with celiac disease? Do you or does someone you know have gluten intolerance? Are you looking for possible answers to your health problems? Would you like to find out more about the gluten-free diet? If the answer is yes to any of the above questions, please come to a class called "Living Gluten-Free" on March 15 in San Francisco. Alison St. Sure be speaking at the Community Health Resource Center at California Pacific Medical Center from 6-8 pm. This class will provide you with invaluable information about the gluten-free diet. Topics include symptoms, diagnosis and follow-up, shopping, cooking, product information and more! I hope to see you there! Living Gluten-Free Speaker: Alison St. Sure When: March 15, 2010, 6-8 pm Where: California Pacific Medical Center (Pacific Campus) 2333 Buchanan St., Enright Room To register, call 415-923-3155 or email or register online at Directions
  2. The brand-new Gluten Intolerance Resource Group of Marin (Marin County, California) will have its first meeting TUESDAY JUNE 2, 2009 7:00pm - 8:30pm Location: 5 Bon Air Road, C-116, Larkspur, CA, 94939 Sheila Wagner, PT, CN and Alison St. Sure, celiac and founder of invite you to come to the meeting to learn, share, exchange great recipes and meet others who live gluten free and are better off for it! You are not alone! ALL ARE WELCOME, whether you have celiac disease, are gluten intolerant, or even suspect that gluten may be a problem in your or your family
  3. My mom had polymyalgia rheumatica, an inflammatory muscle disorder (different than fibromyalgia). She tested negative for celiac, but went gluten-free with me the day I got my celiac diagnosis. She no longer has any pain from polymyalgia like she did before and no longer takes any medication for it, unless she has gluten -- then the symptoms come back!
  4. Don't give up on mixes! They are a huge time-saver and there are many that are really good. I am a huge fan of Pamela's mixes. They are versatile, with lots of different recipes on the package and they always come out great-tasting (in my experience). I also think 1-2-3 Gluten-Free is excellent. 'Cause You're Special makes good ones A small company in Oregon called Laurel's Sweet Treats is great. There are others, but these are my favorites.
  5. That's pretty much it, unless they want to check her vitamin levels for deficiency due to celiac disease. Vitamin levels should normalize on a gluten-free diet anyway, so be careful about any supplements if she is already taking, especially iron. You probably won't get much help or advice from your doctor about living gluten-free but there are lots of resources on the web!
  6. The problem with just giving a child a piece of bread to see what happens is that it can take days, months, even years for symptoms of gluten intolerance or celiac to manifest. During that time, there could be damage happening that are not obvious gastrointestinal problems like vomiting or diarrhea. It could be subtle behavioral or neurological problems. I am curious what "gluten allergy" tests gfb1 recommends? A child cannot be tested for celiac or gluten intolerance if they haven't been eating gluten. It could take months or even years of eating gluten to test positive on the current accepted medical tests for celiac. A test for wheat allergy (IgE antibodies) can be done by an allergist, but this is a whole different thing. What is a simple gluten allergy test?
  7. Both my daughters have been gluten-free since the womb -- they are now almost 5 and 3. We are a gluten-free household and I agree with many people that have said already that the inconvenience of having a child gluten-free outweighs the risks associated with giving him gluten. I strongly believe that I am preventing possible health problems that have been associated with gluten and that are seen in many kids these days -- speech delay, attention problems, stomach aches, moodiness, crying easily, diarrhea, constipation, growth delay, night terrors. Even diabetes gets diagnosed before celiac when it could possibly have been prevented. Don't worry about any stigma attached to having your child gluten-free in school or anywhere else -- do what is right for the child!
  8. Hi - If you live in or near San Francisco and would like to help educate dieticians about celiac disease, they are looking for young people to be on a panel of speakers. They want to hear your frustrations and successes associated with having celiac disease. They will probably ask questions and then all the people will give their answers. It is on April 22 in San Francisco. The conference goes from 10 am to 2 pm, but the panel will go from 1-2 pm. If you are interested, you can contact Katie Clark, president of the Bay Area Dietetic Association. Her email is or phone 415-722-6557. Please come and talk! Alison St. Sure
  9. Sucessful Pregnancy With Cd

    Hello everyone! I wrote a while ago (look back a few posts) while I was pregnant. I thought it was time to give an update. 3 1/2 months ago I gave birth to a perfect, beautiful girl! She weighed 7 lbs 2 oz and arrived only 4 hours past her due date. For those of you who are worried about the nutrition of the baby or your own nutrition, remember that you and your baby are healthier for being on the gluten-free diet. Because I am gluten-free, my baby is also (I am breast-feeding). She has NO tummy troubles, no gas, and is never "fussy." I truly believe it is because of my diet. Good luck to all!
  10. Yes, high liver enzymes are related to celiac disease -- this has been confirmed to me by doctors who know about celiac. Mine were high, as were several celiacs that I have talked to. The numbers fell into the normal range once going gluten-free.
  11. I had asthma my entire life and was on steroids for years before my diagnosis. Before I went on the steroids, I woke up every night because I couldn't breathe. I would also get asthma while exercising (but not always). After being gluten-free for about 3 months, I decided to take myself completely off the steroids. I had never had a reaction strong enough to put me in the hospital, so I knew that if I had a reaction, it could be controlled with medication. The results... I have not had an asthma attack and I have not used one puff of medication since. That was 1 year and 3 months ago! There is a connection...
  12. Genetics

    I was diagnosed with celiac disease. My parents have since been gene tested and each possesses a gene that predisposes someone to gluten intolerance (mom has DQ2 and dad has DQ8). They are both gluten-free and feel much better for it -- they are clearly gluten sensitive. I got gene tested also and ended up with both DQ2 and DQ8. According to the geneticist, a person with 2 genes is more likely to develop celiac disease. Also, my child (I am pregnant) has a 100% chance of inheriting one of the genes.
  13. I was severely anemic for 10 years (at least) before being diagnosed with celiac disease. I had tried iron pills but when your intestines are damaged you cannot absorb iron. After going gluten-free, my iron levels were back up to normal within 3-6 months!! My doctor couldn't believe it. I certainly felt the difference too -- more energy, more color in my skin, no more leg cramps at night, no more ice cravings (a weird symptom of iron deficiency). A word of caution, you should not take iron pills without knowing what your iron levels are -- too much iron can be toxic. The reason why they say not to take calcium with iron is that calcium blocks iron absorption and vitamin C helps it (but if your intestines are damaged, it won't make much difference anyway).
  14. Hi everyone, haven't posted in a while, but I'm in the book too! (just tooting my own horn! ) I have been reading the book non-stop since I got it and am so amazed by everyone's stories. I am tempted to get a copy for each of my doctors and send it to them -- especially the gastroentreologist from my story! Congrats to everyone for sharing their stories with a positive outlook on life.
  15. Sucessful Pregnancy With Cd

    I was diagnosed with celiac disease a year and a half ago. I was severely anemic at the time and had horrible digestive problems (and a bunch of other problems that I won't go into here). I am now 5 months pregnant with my first child and am so grateful that I was on the gluten-free diet before getting pregnant. I have had a wonderful pregnancy with NO morning sickness, NO fatigue, NO leg cramps (which I used to have every night) and NO aches and pains. I credit it all to being gluten-free and shudder to think what a pregnancy would have been like pre-diagnosis. I can't wait for this gluten-free baby to enter the world!