This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
It is possible that you don't tolerate rice. Some people don't tolerate rice. You could try an alternative grain like teff, quinoa, buckwheat, millet, or amaranth. Quinoa come in flakes that can replace oatmeal. If you like oatmeal just make sure it is certified gluten free.
I'm in nearly the same boat as you. It has taken me 40+ years just to gain a few pounds. My normal weight for many years was 73 pounds. Only in the past year have I been able to gain and at last check up I was up to 85. That is just a few pounds under my 9 month pregnant weight. So yes there is hope.
One thing I do for calories is eat dried fruit after my meal. I'm not hungry but I do it for the calories.
My all time favorite for yum is to cook rice then mash an avocado and mix them together.
Welcome, Yes you are one of us. It is overwhelming at first. It looks like you have many of the neurological symtoms of celiac. The unidentified white spots are one. It also sounds like you have Dermatitis herpetforma which is the skin form of celiac.
I have had a few times where dizziness was a side effect for me.
It is best to start simple. As long as you just eat whole foods meats, fruit and vegetables. you may have to drop dairy for a while because the villi that absorb the lactose are damaged and need to heal.
You will need a new toaster, pasta strainer and wooden spoons etc. Condiments are another issue. You need your own that has not touched wheat bread (mustard, mayo, butter, peanut butter, etc.)
It will get easier as time goes on. One more thing all first degree relatives need to be tested.
Take it from an old pro. Amy's zapped me too. Pre gluten free I could eat it. Once I went gluten free I ate one of Amy's and the next day the room was spinning for six hours. I'll never touch it again. That brand has too many CC issues.
I disagree with the other posters. You will start to heal on a gluten free diet and that will not really be your baseline. Also as you start to heal that could make the biopsy negative. I would continue to eat gluten until all testing is done.
Here is my story. I was 50+ when I was at a health fair. A heal scan already was -3. I had done nothing to stop it. I looked up an osteoporosis doctor. My first scan confirmed I was a -3. I was started on Forteo and began calcium and vitamin D. I began to gain in bone density slowly. The whole time I am having malabsorbtion issues as I did for 20 years prior.
I am currently on Prolia, probiotics, calcium and vitamin D and exercise (weight bearing) and I have finally stopped loosing bone. I still have osteoporosis but it is better.
I have used a Nomato sauce. It is a mixture of beets, carrots onion and spices. It can be ordered from this site. Just clicl on the Gluten-Free Mall tab under condiments. I also found a recipe and made it once.
I live in Atlanta and there is one store here that carries it.
I use a Microsoft Word table. You need to have the date. I think I had different columns for breakfast, lunch and dinner. there is one more column for reactions. Or you could list all your foods in one square per day. That way you would only need 3 columns. The first one is 5 columns.