Adaruth replied to Adaruth's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThank you for responding. I have no one to talk to and I am nuts about it. I thought a definitive answer would be good. What never damage remains with you? It does run in families I take it. I wondered that. Do you think my IGA being 22.7 when 25 is positive a sign that I am, esp. when I was gluten free almost for three months? I am lactose intolerant. This is what brought me to founding out about gluten. I thought I had gotton to the point that Lactaid Milk wasn''t working either so I switched to goats, but I was exerpering too much pain. I hope you and your family stay well, thank you for writing me!
Adaruth posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI have had a slow brain wave abnormal result a few years ago after suffereing many headaches and generally I was always fatigued. Then about a year ago I began having indigesting, distention, bloating, severe back and adominal pain. Not long after neuropaty began in hands and feet. Tingling on my back and face, my one foot felt like someone slammed me with a hammer on the sole. All I know is this. An epstein Barr Virus IGg and Igm come out abnormal all the time since 2001. No answer to this. Low petide C flaged. An A gliadin IGA that read 22.7 and IGG at 1.0 (1116) The referance on this was <=25.0 ENDOMYSIAL AB 1116 Negative F RECTICULAN 1116 Negative F This test was done while I have been on a gluten free with tiny bits of it getting through for almost three months. (The pain lessoned and I no longer needed my cruthces or wheelchair.) Then I wanted confirmation and requested this test. The docs office said I was all neg. That's it. So I sarted to ingest gluten again. The pain is bad and begining to worsen. My fatigue is so bad I am almost hosue bound. I am in a brain fog. My stomach is distended again and the reflux is back. So is the back pain and the joint pains at times. This makes me very sad. All I want is to get better and know for sure what is causing it. The doc said I would be losing weight if I had celiac disease and have diarreha. I like to eat even if I am not well, and I have constipation. I have given up on the doctors helping me where I live, so I pray to God someone can help. At times my adominal pain is so bad I must go to bed and hope I can lay down and sometimes the bowels get lazy. Then I go to the hospital. This happpens about once a year. I get shot up with muscle relaxes, pain killers and anti inflamtory. From a past hysterectomy it is known that I have massive amounts of scarr tissue and some glueing my intestines to other things. I don't want surgery, just a doctor who won't give up on me and get down to the root of these pains. I felt it may be this gluten and I still do. I should have been giving some time to ingest gluten before taking the test. Oh Please, forgive me for this pouring out but I am without a good doctor here in Wichita falls, Texas.