This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
When I go gluten free (third attempt now), I notice a change in my eyes right away. Usually everything gets clearer and sharper, but right now, it's like my vision is changing and it feels weird. Did anyone else notice anything with their eyes? How long before I adjust to my new, clearer eyesight?
My doc wants it between 1 and 2. I also have bipolar disorder and hypothyroidism can complicate it. When I am above 2, I get terrible mood swings. I was in the psych hospital when my TSH reached 4. How do you feel?
I have been playing with gluten free on and off over the past few years. I even have an Enterolab diagnosis. I don't know what it's going to take to get me to stick with it. I have had terrible psychiatric problems over the years; you'd think staying out of the psych ward would be reason enough to keep me gluten free (i always feel better sans gluten).
Anyway, I've had this strange symptom in the past that I'm curious about. Normally I am extremely good with words and very verbal. I am a great conversationalist normally.
But I have had periods in the past when I just can't talk. It's like the verbal part of my brain is impaired or something. Can gluten cause this type of symptom? I liken it to being somewhat autistic. I just can't communicate when I get like that.
Most of my gluten symptoms are in the brain, I think. I've never noticed any serious bowel issues, but holy cow, I sure have been crazy! My moods are terrible, also diagnosed bipolar, and sometimes, dare I admit, even a bit psychotic. There are many studies showing the efficacy of gluten free and gluten free/casein free on schizophrenia and some historians theorize that one of the possibilities behind the hysterical girls who launched the Salem Witch Trials was a grain allergy. Funny, huh!
I started taking a special vitamin supplement for mental health and I can feel it changing me day by day. I think there are severe nutritional deficiencies in me impacting my mood, but also, I have autoimmune thyroiditis as well, so I know that an autoimmune process has been launched in me, perhaps by the gluten. I am attacking my thyroid, so perhaps I am attacking my brain as well! Hopefully, removing the gluten (and casein, I'm also doing that) will slow or reverse the autoimmune process.
Thanks. I must be a reactor too. I used to eat Lays stuff all the time, but I've only been gluten free for a month and this was my first attempt while gluten free. My tummy and intestines are still bothering me and I'm so sleepy!
I'm still pretty new to eating gluten free and have been, I think, very good for the last month. Could today's incident be a gluten reaction?
I woke up late and missed breakfast. At school (I'm a teacher) during my free period I bought an apple and two bags of Frito Lay Baked Lays to eat. The only questionable ingredient was "modified food starch" but I thought I had read somewhere that their food starch was corn-derived.
About 2-3 hours later, around 1 pm, I had stomach and instestinal pains and then I slept all afternoon, I felt so drowsy. My stool this afternoon was slightly "off" but not too bad (I don't want to give too much detail!!).
Since I never noticed my reactions to gluten before and/or I'm getting more sensitive now that I'm gluten free, I wondered if this was a gluten reaction. Does it seem like one? Thanks.
I'm not officially diagnosed; my gastro doesn't think celiac disease as only the anti-gliadin was high, but my enterolab results were very very high so I went gluten free (and casein free) on Saturday.
Already, I am feeling much much clearer in my head (the "fog" has lifted) and my ears have cleared up, but my stools are getting worse. (sorry for the descriptiveness) I didn't really have stool symptoms before, maybe they were a little soft, pale, and floaty, but not a big deal. But now, they are almost like D and this has been in the days since I quit gluten and casein. Does anyone know what's going on? Why would I be getting worse? I would appreciate your stories/advice/theories. Thanks so much.
I am new myself, so maybe someone else can be more helpful, but there's a great little database of gluten-free foods you can download from www.clanthompson.com. I haven't used it that much yet, and I just have the demo version, but you might want to check it out. You can search by category, name, etc. and it tells you the product's status and gives you the 800 number to call. It looks pretty good!
You might also have some luck if you go right to the manufacturer's website and see if they list their gluten-free products there.
Clan Thompson, I think, also distributes a printed list. They have a great site, so go poke around there and good luck!
I had my appointment today where I met my new gastro and asked for a celiac panel and other blood tests. She complied, but admitted she knew nothing about stool tests for Celiac (I brought my Enterolab results). I can understand a primary care doctor not having enough time to keep up with Celiac, but I'm surprised that a gastro doc woudn't. Around her office, she had pamphlets for IBS, Crohns, Ulcerative Colitis, and Colon Cancer, but nothing on Celiac, anywhere. Weird. I don't get it.
But anyway, she ordered the celiac panel and a bunch of other things like a CBC, iron, B12, calcium, etc.
I had to drive over to the hospital lab and I think they took like 7 or 8 vials. I just kept my eyes shut and tried not to think about. (I have a history of fainting). It was actually easy! I walked out in a flash; I didn't have to lay down or drink any juice, I was so proud of myself. I overheard the phlebotomist say "no these three vials are going to Specialty Labs" which made me think those were the Celiac vials. I was psyched because I hadn't gotten up the courage to dictate which laboratory to use, but it looks like my hospital uses one of the good Celiac labs.
Anyway, I ate a ton of bread and pretzels today and I feel kind of gross...I'll keep everyone updated when the results come back.
That's great! I also have lab results from Enterolab as well as an at-home blood test from York Labs. I have my appt with a new gastro on Thursday. I am a little nervous about it. You hear so many horror stories about doctors basically just laughing at us. But you know, that's why I went the Enterolab route in the first place; I was scared to bother my doctor with my "petty" concerns and sure enough, Dr. Fine's results came back positive. So I figure, I have to follow up, don't I? I have to try not to be nervous....ugh...
Do you mind me asking what were your Enterolab results? I'm trying to get a sense of what his numbers are like compared to people's symptoms and other blood tests as well as biopsies.
I came back with 269 (normal <10) for the Anti-gliadin
and 121 (normal <10) for the tTG, which seem pretty high compared to some other numbers other people have shared. But, I don't seem to be having a lot of symptoms. I have low energy, depression, and easy bruising, but not the classic gastro symptoms. My York Labs blood test came back high for Anti-gliadin.
When is your endoscopy? Keep me posted...looks like we might be on a similar route/timeline with this. I'll let you know how my gastro appt goes.
I basically just went on a diet. I had my metabolism measured at the gym (Bally Fitness) and they told me my basal metabolic rate after measuring it with this device that you breathe into for 10 minutes. They then recommened how many calories I could eat a day based on my metabolism.
I also got a heart rate monitor that measures how many calories I burn when I exercise. I keep track of what I eat and how much I burn in exercise in a software program called FitDay. If you burn 500 more calories per day than you take in, you will lose a pound a week.
It's a pain to keep track of your eating if you're not used to it, but it's such a part of my day now that I like to do it. I use the FitDay software to also keep track of what percentage is protein, carbs, and fat and I do best on a balanced diet, like maybe 40-50 percent carbs, 30 percent fat, 30 percent protein. I'm not so hungry when I eat that way. The software is fun too because you can print out all these cool graphs and stuff. The heart rate monitor I got comes with software too so you can download your workout and see a graph of your heart rate during your workout and how many calories you burned.
Some people also have success with Weight Watchers. I've done it. It's a great program and you can totally adapt it to gluten-free eating. I think, in general, gluten-free products are higher in carbs and calories than their glutened counterparts so you may need to start keeping track of your intake.
You can email me at email@example.com if you want to talk more.
You know Schnee, I just thought of another thing. Your local doctor should be able to help you out more. All your local doctor has to do is take some of your blood and then have it sent to a specialized celiac disease lab. I would think that just about any local doctor can draw your blood for testing???
Good labs for celiac disease testing are
I know most of the labs will mail a collection kit and instructions to your doctor.