This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
InterestsWe're a blended family w/6 kids, ages 5-21 (and the poster children for poor family planning, evidently!)<br>I'm an ER nurse<br>We're into the kid's sports (football, basketball) and family time
I know before the new wave of hormone treatment,soy products etc., our ancestors just had to "grin and bear it". That is kinda what I am doing, just hoping it will pass with age.
Just my 2 cents worth on the joys of menapause...
You're right about the natural approach that seemed to work for generations and still works for other countries (the US is by far the biggest market for hormone replacement). Several years ago I began using progesterone cream, made from some type of wild yam. Check with a trusted health food store to see which brand they recommend. You just rub it on your belly or breasts (it's absorbed into the fat). The research behind this is explained in a book called "What Your Doctor May Not Tell You About Menapause", and I'm sorry, I can't remember the author. Hang in there!
Please take the advise the others have already given to heart...they know what they're talking about, and I promise you, we all felt the same at some point.
One thing I'd like to add about the missing work because of "the poops" or any other celiac disease GI complaint, is an FMLA. I urge everyone to check with their employer to see if they work the required hours to qualify for FMLA leave. I, too, was in danger of loosing my job, but my GI doc filled out the forms for an "intermittant" FMLA--meaning I can take a day here and there as needed for testing or illness, and my job can not penalize me for any of those absences. You parents of celiac disease kids out there need to apply, also....the "F" stands for "family" and your job will be protected, too, while you take care of the little one's medical needs.
Don't wait until you're sick as a dog and need time off...most companies will not "retro" the start date back to the previous/current illness, but will only begin coverage from the day the paperwork is approved. Check with you HR department for more info...and don't take "no" for an answer!!
Job security is the last thing we need to worry about, protect yourself, and take care of yourself...you deserve it
Who knew about Tropicana juice?! I had NO IDEA..but it certainly clears up a few bacon/egg breakfasts out that ended in disaster!
Thank you so much, this one in particular really makes a difference to me.
Right there with ya, sister! I've been hypothyroid since high school, but not diagnosed until my mid 20's. After 20+ years on synthroid and several doctors, I can only confirm what you already are learning...there are no easy answers. In all these years I've only had one doctor who would allow my "theraputic" level of TSH venture outside the "normal" levels. Only he acknowledged some people just need more to feel right. Everyone else has cut my dose to fit what THEY think it should be. I'm still battling that one.
I found I gained alot of weight when I ate more of the gluten-free "substitute" foods, ie: gluten-free crackers, cereals, etc. The grains used to make these have a higher glycemic index, thereby wreeking havic with blood sugar levels and metabolism (already a problem with celiac disease and hypothyroid).
Yes, it ultimately comes down to intake/expenditure, we just have a wider chasm to bridge. Keep up the good work, and it will come. If you stop, it never will. We can do it!!
I, too, have the majority of my bone pain in my hips and thighs. Before I was diagnosed my arms also ached. Now I take 600mg ibuprofen at least twice a day (with food). The pain is much more manageable since going gluten-free, and sleeping with them elevated helps, too.
It's interesting about the other food intolerances...I have some known food allergies (watermelon, waterchestnuts, cashews, bananas, avacados), so I'm going to pay closer attention to any symptoms that coincide with soy.
Thanks, and good luck,
I'm so sorry...I don't know how my tag line got added to the end of someone else's post! I'm new at this blog thing, too, and was just trying to add my 2cents worth.
I agree it's probably a good idea to play it safe with any products we put on our bodies. I don't know if it coincidental or not, but even the smell of lotions and such with lemongrass makes me nauseated. (or I'm just a freak in addition to being a rude blogger!)
[quote name='mytummyhurts' date='Jul 22 2005, 05:13 PM']I don't know if this reply is going to be e-mailed to you or not. I'm still getting used to this blog thing.
I'm going to go gluten free on every product that may even possibly get near my mouth. I haven't had any skin issues yet. But I've seen some people on here who said that after they were gluten-free for a while they became sensitive to products that just go on the skin. The reason I'm going to make sure these are gluten free is because I've noticed many ways that things like lotions, makeup, etc can make it into my system. For example, I put my makeup on with my fingers and, while I do wash my hands afterwards, I find that some is left under my fingernails and then I bite my fingernails (I know, a nasty habit).
Also, I use lotion many times throughout the day at work and notice myself a few minutes after applying eating things like grapes or some type of food that goes from hand to mouth.
So, I just want to be cautious and make sure that I won't gluten in anyway at all.
Hi, and welcome!
Oh, honey, it's all so new but you'll find your way. My suggestion to any new diagnosis is read everything and take bits of each and incorporate them into your own lifestyle. The health food stores and advertised gluten-free foods are a great start. Just keep an open mind and remind yourself ahead of time they probably won't taste like the "real" thing, and that different can still be good. I now eat probably 95% mainstream items, after careful scouring of the manufacturers ingredients and the approved list on this and other sites. It's less expensive, and less intrusive to me emotionally. I feel more "normal".
What type of liver problems did you develop? My sister (+symtoms but -biopsies) has been in and out of liver failure, and I have been self diagnosing biliary stones or pancreatitis (as a nurse I should know better than to self diagnosis...especially since my ovarian cyst starts first grade next month!). Let me know about your symptoms.
Again, keep up the good work and health (and congrats on the baby!)
Add me to the list of celiacs who have all the symptoms but have never been tested. I have been unable to wear contacts for over 10 years due to dryness, and can't chew or swallow meat without water in my mouth. The bone pain is a big factor, too. I plan on getting tested (sometime), but honestly, I just don't want another diagnosis right now. I'll get there.
My advise is for BOTH of you to cut you some slack. You've been given the gift of an answer to all of your past ailments, and you need to move forward from here. The diarrhea and abd pain that kept you from participating in your job and home life should taper off tremendously the longer you maintain your gluten-free status. Your energy will only increase as your body heals, and your emotional well being will surprise you as your physical well being improves.
Your healing process is a separate issue from your marital issues. You're going to "get better" whether your husband is supportive or not (as long as you don't sabatage yourself). If he can't stick it out until that time, then you two will have some decisions to make down the road. For now, take care of yourself and learn as much as you can about this disease. Make all of the info available to your husband. Hopefully he'll take the initiative to pick it up and educate himself. Only time will tell.
Good luck to you,
I lost 42# before being diagnosed this past January w/celiac. I feel great on the gluten-free diet, but I've gained 10# and seem to be on a steady increase. I was pretty heavy into rice products up until the last 2 wks when I put together my hypoglycemic events and the high glycemic index of rice (especially instant), but have still managed to inch upward on the scale.
Is this type of weight gain common after becoming gluten-free? I expected a few pounds to return but I do not want to balloon up. My abdomen is quite bloated and distended (poisoned by the restaurant's "baked" fish last week) but that doesn't neccessarily equate to a weight increase.
Yes, I've begun exercising (for the first time in years) and am slowly coming to the realization I need to stop buying tortilla chips, but in general, is this the way it's going to be? Any ideas?
I'm a newbie, too. Been gluten-free since the end of January and I feel so much better. Had a couple accidental ingestions and paid the price; abd pain and bloating, diarrhea, just like the old days.
I had no idea how significantly gluten was literally poisoning my life until recently. I'm more energetic (not going to the gym or anything, just participating more in everyday activities and life in general), my skin looks younger and feels better, even my posture has improved over the "shrunken" appearance I had developed. My advice is to give the gluten-free diet a try. I've always been a "carb head" but once you get over expecting gluten-free food to taste like the real thing, most of it is not too bad.
Congrats on your upcoming graduation! I've been an RN for almost 8 years. It's a noble profession though it does tend to harbor the "eat our young" mentality, especially among the older nurses. Don't let them get to you. (remember this... you'll need it daily !!)
It's the field that makes us all hyperchondriacs, but you know, it probably IS the gluten is responsible for the majority of your complaints. I know all of my fragmented symptoms easily fell under the celiac umbrella, but they've all improved (not disapeared) since going gluten-free.
Good luck to you, and take care of yourself!