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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About justkaty

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  • Birthday 01/09/1973

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  1. Thanks for the reply. If it was just her weight I probably wouldn't be so concerned. My concern is that she was at a normal spot on the weight graph and then dropped below 10% and then below 5% and now we are barely on the chart. That, in combination with the anemia and the chronic diarrhea causes me concern. She also sleeps more now than she used to and seems to get tired, she gets uncoordinated when walking and playing much quicker than she used to. This should be getting better, not worse. I just don't want to let a condition go because my child is still hitting her milestones and is a pleasant little person. I will see her previous doc tomorrow at work and the Ped on Friday and go from there, but it seems to me that the only way to see if I can help her on my own is to start the diet and hope it helps. I work in the medical field and adore the doc I work for, but have enough experience to know that doctors aren't always right and especially to not even properly examine my child and dismiss her and say come back in a year and we'll see how she is doing.
  2. So where do I start with the gluten free. I'm feeling very overwhelmed right now. I have read about all the things that have gluten and don't even know where to begin. I'm also a single mom of 3 kids and I'm not getting any support. The expense of a lot of these products is scaring me to death. I work full time and don't have a lot of free time, but any ideas about making foods for her at home would be appreciated as well. Also, do you just never eat out again? I just want to do the right thing for my baby.
  3. Hope you can help me. My daughter was a normal birth weight, nearly 7lbs, normal baby until around 9 months of age. She got a couple of "viral illnesses" and ever since has had chronic diarrhea. She has been small since I stopped breastfeeding around 3-4 months of age, but just continues to go down on the growth chart. She is growing, but it is a very slow progression and she has gone from just above the 5th percentile to around the 2nd percentile weight for age and has been there for many months. I work for her doctor who diagnosed her with Failure to Thrive and referred her to a pediatric GI. In the meantime he had asked that I take her to a pediatrician since he was General Family Practice and a Pediatrician would have more knowledge about kids. She had a new pt exam with the Ped and he was concerned, but since I already had an appt with GI said he would let them do the tests. Then a few weeks later she started vomiting again in addition to the chronic diarrhea and she lost weight so he put her in the hospital. The celiac blood test is still pending. She spent 2 days in the hospital and most of the tests came back normal. She is anemic, but other than that everything seems fine. We saw Ped GI yest and I was so disappointed. He said that she seems normal and that he has neurotic moms come in all the time and he has to talk them out of diagnosis. He said he thinks she has "toddler diarrhea" and that it would pass around the age of 3-5 and not to worry about it. When I questioned why she is so tiny, at 15 1/2 months old she is still less than 19lbs, he said that since I'm 5'4 and dad is 6'1 that is just average and she would probably just be a small person. When I asked about the anemia he said it was borderline and to "give her a vitamin supplement with iron and that would bind her all up and solve all the problems". He acted like her family doc and pediatrician just didn't understand GI in kids and seemed to dismiss us. When I look up Toddler Diarrhea it seems that this is only an accurate diagnosis if the child is growing normally and she isn't. Most of the information I found also indicated that in Toddler Diarrhea fruit juice, especially apple is frequently the culprit. My child doesn't even like fruit juice. The only one we have found that she likes at all is white grape and she drinks less than 4oz per day. Oh, he also told me that her disposition was too good for celiac, because children with celiac are cranky and irritable and she was too pleasant. I am so confused. I don't want to self-diagnose my child, but I also don't want to ignore a problem and I seem to be getting conflicting information. I have also found many stories about celiacs whose blood tests came back negative at least once and so I don't want to just hold out for the test results and simply go with that. I'm concerned that if it is celiac and it goes untreated she is going to continue to have stunted growth and perhaps more serious problems down the road. Any help or advice would be appreciated.