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steven

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About steven

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  1. Who doesn't have problems with thr doctors not knowing what they are doing! As many of you probably experienced, you go through quite a few doctors before they can figure anything out. One doctor I have been going to for 15 years had never even heard of celiac disease before and asked if I could fax him all the information I had at home to him!!! I did it right away so no other patient of his would have to go through the ignorance of another doctor. I was actually diagnosed about a year and a half ago, recently took another test, to find out if my gluten level has decreased and the office actually misplaced the test for a whole week. I consider this normal, kinda sad don't ya think. Anyway, my level went down, but not as much as I had hoped. I am even more diligent about my diet and have learned greater things on this site than anywhere else. You have to remain positive and think about you while sorting out the diet, the change in lifestyle, i.e. going out, to tell or not to tell, getting over the depression, etc. In the end, the payoff is how much greater you will feel after you make the changes and get on with your life. It is also fun to know how much more you know than the doctors and they wasted thousands of dollars and years of their lives and didn't learn about something so common in Europe that all newborns are tested for celiac disease. Good Luck!!!
  2. Thanks for the responses from everyone regarding the 1 year anniversary. In regards to the depression thing, I was X-tremely depressed before being diagnosed with Celiac. Losing all that weight and not being able to sleep for more than an hour per day took its toll on me. I still get a little bummed out once in a while, but I enjoy working long hours and think that is just my brain telling me to take a break. I also notice after I eat something I shouldn't I get a furocious itch on my leg. No rash, no redness. It is under my skin and won't stop itching until I put lotion on it. Any info on that? It usually stops itching within 24 hours. Interesting to read posts from all over - I am from the Chicago area. No support groups around here, any that I have called or left messages with have not returned my calls (including hospitals).
  3. Hello everyone! I just found this new site for the gluten-free crowd and am excited to read everyone's information. It is great to know others are surviving and living life to the fullest after they are finally CORRECTLY diagnosed. I was diagnosed one year ago and was told to change my diet, Hey , why not just starve me, then kill me! Of course, after the five years I went through to finally find out what was wrong with me, the change of diet turned out to be be a piece of cake, (gluten-free, of course). I had my gluten level tested after one year and went from 70 to 49. Not exactly the drop I had hoped for, but I think we are all still learning what/what not to eat. How is everyone doing after the first year and what could have made it better. Stevieb