This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thank you for sharing your story. It's tough when kids are older and just don't believe that food can really have such a big effect on you. My nephew is nineteen, has ADD and psoriasis and numerous other issues and I really think his problems are dietary in nature -- or at least that they could be much relieved by a change in diet. But he scoffs at his mother (my sister) who went gluten-free after I suggested her rash looked like dermatitis herpetiformis. Her rash AND migraines have subsided and she's convinced -- but her kids laugh at her.
Hopefully your daughters will figure it out sooner rather than later.
I did mention to my friends that a gluten intolerance could cause issues like their son has, but I can't do much more than that. The mother is a family practitioner, which I suppose could be good or bad. She's fairly open to new ideas, though.
Some friends whose son turned two a few months ago isn't really talking much. They took him in to be evaluated and they think he has Childhood Apraxia of Speech.
I'm wondering if there isn't a connection to gluten (of course, I think EVERY disorder has a connection to gluten, lol). He is very small for his age, had weird rashy stuff on his face/scalp for a long time after he was born (longer than the normal cradle cap/baby acne -- my son is a few months older so I was aware of that), and when he had a dirty diaper it absolutely STUNK. It smelled like the big D, but I never changed him so I don't know if he's had that issue. Oh, and despite being small for his age he's always been a big eater, pulling food off his parents' plates as a baby.
I love these people, but I have already suggested once that their son might have a food intolerance (because he is sweet and loving for a period of time and then BAM! he's pulling hair and pinching and hitting like a maniac) and I hate to harp on it. So if I make the comment I would like to have something to back it up, KWIM?
The two times I've cut out carbs I felt exactly this same way the following morning. My husband had to bring me food before I could even get out of bed. The whole next day I felt weak and my stomach hurt a bit.
I'd say it's cutting out the carbs and not just the gluten. HTH!
Just today a friend whose family was over last weekend called to tell us that they think their younger daughter (who had not yet received the MMR) has the measles. We don't vax, as I mentioned, and I'm not super worried about it because I'd rather my son get it now than when he's a teen or an adult. If he starts getting sick I'll make sure he gets lots of supplements and rest. But anyway the friend also left a snarky message on my DH's voicemail at work saying, "I know [New Mama] has chosen not to give Henry the MMR because she believes the fallacy that it causes autism." (I only mentioned vaccines once two years ago because the wife is a doctor and I wanted to hear her opinion. We have never discussed it since, and I don't necessarily believe there is a direct link -- there may be other factors involved.)
I just hope someday the truth about vaccines becomes mainstream knowledge.
I have not had my son (almost two) immunized at all and I don't plan to. There are lots of other parents out there like me, too. I've heard too many horror stories and am not convinced that the pharmaceutical companies are acting in our children's best interests. In fact, I'm pretty sure they're not.
I recently had some bloodwork done to check for anemia and my thyroid, among other things. It wasn't a "fasting" test, though. Is that more accurate?
I'm actually currently working on the hypothesis that it's yeast overgrowth and am doing Bee's Candida Diet. If that doesn't seem to be working I'll go back to my doctor (actually, I'll see a new one, since I was not happy with my old one).
We used EnteroLabs for my son, who is almost two. He had bumps on his cheeks and upper arms as well as red scaly patches all over his body. EL said he was gluten- and casein intolerant. We took him off dairy first and the red patches mostly cleared up. Then we took him off gluten and the bumps on his cheeks went away; the bumps on his arms are less than they were.
I think he may have other issues, since he's still getting some red marks on his skin, so I'm going to have EL do the soy/egg/yeast test next.
I have complete confidence in EL. Mainstream medical doctors, not so much.
I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.
After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).
I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?
My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.
FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.
Any thoughts? Anyone been through this? Help -- and thank you for reading!
My son was recently diagnosed as gluten intolerant through EnteroLab -- he's now 22 months. I wish I had figured it out sooner. He was exclusively breastfed until nine months and his first few months were pretty rough. I tried eliminating foods (and since I was eating a vegan diet at the time, this was NOT FUN -- I was so hungry and skinny) but although I think I did try to eliminate wheat, I don't think I was careful enough or gave it long enough. I guess I'll never know if it was gluten that caused his tummy distress, but I know now that he is GI. (It was a rash on his cheeks and upper arms that led me to investigate.)
Anyway, I was very happy with EnteroLab and am waiting until we have the money to test me and my husband. Since my son is still nursing I went gluten-free already, though, and I believe I may also be GI.
Good luck! I give you a lot of credit for figuring this out so early and being proactive about your baby's health.
Well, we did the package test for my son through EnteroLab because I wanted to be thorough, and he came back as sensitive to casein. We already knew this, though, both because an IgG test had told us and because he'd had red ezcema-like patches all over his body that went away when we went dairy-free.
I don't know about the soy, but I'm considering having him tested for that through EnteroLab, since he still gets spots on his skin (that are different than the ones caused by dairy) and I'm not sure what's causing it. I suppose I could just cut out soy and see if they go away...
Fecal Antigliadin IgA 249 (Normal Range
Fecal Antitissue Transglutaminase IgA 175 Units (Normal Range
Quantitative Microscopic Fecal Fat Score
Fecal anti-casein (cow's milk) IgA antibody 199 Units (Normal Range
HLA-DQB1 Molecular analysis, Allele 1 0301
HLA-DQB1 Molecular analysis, Allele 2 0602
Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6)
The above was my son's test results. He's only 22 months, so I can't really tell you how he was feeling. His only symptoms were bumps on his cheeks and upper arms, spitting up as a baby and horrible colic in his first few months (he was/is breastfed).
However, I believe I am gluten intolerant, too, and I gave him one of those genes. I went gluten-free along with him, and my symptoms have been:
I haven't been tested, but I believe I am gluten intolerant. My 22-month old son was tested though, and it came out positive.
I had trouble getting pregnant (I didn't ovulate on my own) and we did in vitro -- I found out later that not getting a period was a major symptom of celiac disease/gluten intolerance. I went gluten free and took major supplements and I now get my period.
My son was healthy BUT he has a small "hole" at the base of his tailbone. It was scary for a while until his doctor was able to see the bottom of the hole and assure us that it wasn't a problem. An unclosed hole can indicate a problem with the spine, and even a closed hole can become infected with a cyst and require drainage. It's related to spina bifida -- and we know that spina bifida is often caused by a folic acid deficiency in the mother.
I'm sick about this, but so, so grateful it wasn't worse. PLEASE go gluten-free, for the sake of your future child. And being gluten-free may also make it easier to get pregnant in the first place.
Okay...what else has gluten in it, that I'd never expect? Sheesh.
I have not been diagnosed with celiac/GI, but my son was recently, and since he's still nursing I went gluten-free/CF too. And I do think I'm GI, since I've had all kinds of weird symptoms throughout the years (ramping up since my son was born almost two years ago).
So...tonight DH cooked chicken breasts on the charcoal grill, making sure the marinade was gluten-free because he's being very supportive of all of this. And then about an hour or two later he told me that I was mixing up my pronouns and not articulating clearly (something I've noticed on and off in the past few years).
Could that possibly be because of gluten contamination? Does it work that fast or in that manner?
We also gave our son a bath after dinner and although he's never been crazy about bathtime, he's recently been happy to get in. Not tonight. We had to practically force him to get in (actually I bribed him with something he's not usually allowed to have). He is teething, but this was noticeably unusual.