This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I don't know about anyone else but I get severe headaches every single time I drink a pumpkin spice latte from Starbucks. I know they supposedly are gluten-free but it never fails with the headaches, and a throbbing, unrelenting headache is for me THE unmistakeable sign of being glutened. I don't know. If S-bucks can guarantee this drink is gluten-free, maybe it's a caffeine sensitivity? But other types of caffeinated drinks from S-bucks seem to be fine. Could there be something in different drink syrups? I can't seem to have other flavoured drinks from there either like the cinnamon dolce latte but the regular latte is fine.... argh!
I ran into this same thing not too long ago when I was looking for a good gluten-free multivitamin.
Apparently Maltodextrin is okay, and the "gluconate" that you mention is probably "ferrous gluconate" which is a source of iron in most multivitamins. Coincidentally, iron also causes "indigestion" and constipation! Hopefully that's all that you're dealing with.... hopefully not CC of some sort.
I went gluten-free about a month ago and I have to say that gluten-free PASTA has got to be one of the most "convincingly real" gluten-free foods out there. Both Glutino and Tinkyada are amazing. You will not have to say goodbye to pasta, I promise!
I went off of Celexa cold-turkey last summer because I didn't have enough money to refill my prescription.... it was the worst summer of my life! I got SOOO sick. I was nauseous and dizzy for at least a month... no appetite, because of the nausea... I got carsick after driving only a couple blocks... my dreams were bizarre. I lived on gravol. After a long time things settled down again but it was a ROUGH experience! ughhhhh
It sounds like what your family needs is blunt, up-front honesty about everything. I can understand being annoyed if most of your communication is passive-aggressive (I am the ultimate passive-aggressive person in the world so I have dealt with this with almost all of my friends and family! Yikes...). Instead of doing the "argh"/nagging thing from time to time and letting your own resentment grow, leading to a huge freak-out session, I would take the advice someone else posted on here about sitting down with your family and suggesting clear, basic ground rules. Communicate your fear about getting sick, not just your frustration with your family's ignorance. Explain that all of your nagging is based on very real fear that you will get very sick. Hopefully your family will realize how important this is to you.
In terms of your anaphylaxis, I can't believe that people in your family are still cooking with/using those allergens! It is unbelievable! When I was much younger and in elementary school, we had ONE peanut-allergic kid in the whole place and NO ONE was allowed to bring in any peanut butter or peanut containing products. I really don't think it is unreasonable for your allergens to be banned from the house. In this case it IS a life and death situation! No wonder you are so stressed out!
I don't entirely know what to say because my chronic headaches are going away now that I am gluten-free. Anyway, when I do get headaches I take Excedrin "Tension Headache", which works really well, or any other acetaminophen pain killer. There are lists online of gluten-free meds and most pain killers are on that list. For me I find that anti-inflammatories don't work for me, maybe it's just the type of headache I get, I'm not exactly sure.
I would say that mood problems/irritability were my biggest problem. I was dianosed with Generalized Anxiety Disorder and Social Anxiety before coming off gluten. I would be extremely irritable especially with family and friends, and with perfect strangers I would automatically feel defensive. I felt like I had a dark cloud over me all the time. Now that I am off of gluten I feel like a different person. I almost always feel happy and carefree, and outgoing. I don't feel paranoid anymore. Basically, all of the symptoms of GAD and Social Anxiety are gone. It's awesome.
Hey Donna, that's funny that you mention having trouble with tomatoes... come to think of it I have heard a lot about celiacs and even people with simple wheat intolerance having a lot of issues with tomatoes. Sounds like you should stop eating them! Sucks, eh? Stupid food intolerances.
I know of an AMAZING recipe for gluten-free brownies. Trust me... my step-sister likes them even more than regular brownies and she is basically a chocolate coinnoisseur. I don't have the recipe with me (I'm at work) but I can message it to you if you are interested! Seriously.... you'll never go back to glutenous brownies.
I find that rice crackers hit the spot once in awhile when I want something cracker-y. Not rice cakes... I hate those things... rice crackers. And there are a bunch of good flavors.
One thing that is really good is corn bread. It's way better than fake "white breads" because it doesn't need strange replacement flour... just corn flour and corn meal. More flavour, too. Really good with butter
I tend to eat rice bread in the morning because I need something that really fills me up quickly and gives me energy... but sometimes I think that it isn't worth it, because frankly, the bread is sticky and has a strange flavour, and I don't feel so great after eating it. I think it's a good idea to stay away from unnecessary breads although I don't want to be TOO strict... after all, staying away from gluten and dairy is hard enough in itself for me to have to worry about avoiding gluten-free breads as well
I already posted this question on some Facebook celiac groups and got a bit of guidance, but I would like to ask some of you life-long gluten-free experts as well
I am IN LOVE with Mi-Del brand's gluten-free gingersnap cookies. In my opinion they are better than glutenous regular ginger snaps. After being on a 2-day high of happiness that such a cookie exists, I heard on a different message board that this brand is notorious for cross-contamination. Apparently Mi-Del also processes wheat-based baking in the same factory. However, I also heard that this has changed and that Mi-Del gluten-free products are seriously gluten-free now.
Some celiacs in the Facebook groups mentioned getting sick from the Mi-Del animal cookies which on the package claim to be gluten-free. Apparently, though, this is just in the States... in Canada they are processed at a different plant or something.
Does anyone know anything about this? Have any of you been glutened by this product? By the way, Mi-Del makes chocolate chip, animal cookies and pecan cookies labeled as being gluten-free too. But my favourites are the ginger snaps.
This is just my humble opinion, but I do think that people who eat relatively normally on the gluten-free diet after being diagnosed probably lose or gain weight for awhile and then come back to a balanced weight. The body is good at balancing itself out and if you don't tend to overeat or to eat nothing but junky gluten-free food, I think the body will normalize itself. This is what I've experienced, anyway, and also what I've observed in other celiacs. Unless there are other hidden sensitivies or if your body is REALLY wrecked from years of gluten, anyway... those people seem to be sickly and underweight even after going gluten-free!