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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Blackwolf

    • Rank
      New Community Member
    • Birthday 07/17/1954

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    • Website URL http://Blackwolf
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    Profile Information

    • Gender Female
    • Interests horseback riding and competition, writing, sewing, painting and drawing, concert cellist. My grandchildren!
    • Location southwest Kansas

    Blackwolf's Activity

    1. Blackwolf added a topic in Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet   

      Refractory Sprue
      Hello Karen,
      Yesterday I logged onto the "board" for the first time althoughI have been receiving the online newsletter for a couple of years. I asked if anyone else had been diagnosed with refractory sprue and Lisa, or Momma Goose, told me I should get in touch with you.

      I was in the Mayo Clinic last spring when, after a week's worth of tests they diagnosed my celiac disease as having morphed into refractory sprue. I'd just like to be in touch with one other person in the world who has to deal with this too.
      Susan Blackwolf
      • 1 reply
    2. Blackwolf added a topic in Celiac Disease - Coping With   

      Collagenous/refractory Sprue
      Hello All, I am a long time celiac who was, just last spring, via the Mayo Clinic, greeted with a change in diagnosis from celiac disease to collagenous or refractory sprue. I am wondering if anyone else out there is coping with this? For anyone who might not know, refractory or collagenous sprue is like celiac disease, except that no matter how strictly I abide the non-gluten rule, the damage caused by the disease will continue. Of course if I were to go off the nn.g. diet, the disease would quickly accelerate - not to be redundant, so I continue to maintain, but I have to admit thatsome days are, well, questionable as far as "worth the trouble."

      In addition, I also have intractable migraines and Systemic Lupus associated with anitphospholipid antibody and necrotizing vasculitis complications. Fun eh?
      • 2 replies

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