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MiamiMom

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  1. Hi. I thought I'd add the information I received from Pollo Tropical in response to my inquiry. This is current as of May 2008, so please check for changes in the future. . . . Please find attached a list of the Pollo Tropical products and their ingredients. The rice, chicken and beans do not contain gluten. The kid
  2. You know, I think you might be onto something there. For his Crohn's disease, my husband takes loads of Slippery Elm, which is basically a natural bark that turns gelatinous upon contact with water. It has been used for centuries by Native Americans for its healing properties, and it coats and soothes his insides. It has made a tremendous difference--even healing some of his lesions. I mention this because even though he carries both the D2 and D3 genes, his tests indicate he is having no immunologic response. (I was about willing to bet my right arm that it was celiac disease that brought about the Crohn's, and then we got the results. Go figure.) He could just be one of the lucky ones and gluten truly doesn't affect him (yet), or maybe all that slippery elm is coating his insides just enough to protect him, just as the mucous does in your theory. Interesting...
  3. You know, I actually had not considered that, but it is so true! We have been eating a lot more dairy to compensate for the calories lost elsewhere. It makes so much sense now... <light bulb goes off over my slightly dense head>
  4. Thanks to everyone for the replies. I guess I just need to bite the bullet and do it. Somehow, it just seems so much more daunting than removing gluten alone. I guess I worry that our food choices will just be too limited. Also, my son hates to feel different than the other boys and I feel I've pushed him as far as he is willing to go right now, even with the stomach pains.... He really is having a hard time adjusting to gluten-free life in a school setting, and his teacher is SO not supportive. He's just so much more fragile about the whole thing than my daughter, who honestly didn't bat a eye. <Deep sigh> Well, there are worse things, eh? I should just count my blessings that I even know what's going on! We are still a world better off than we were last year at this time. Thanks again. I truly appreciate it.
  5. Hi. Ever since my 7 yr old son went gluten free about a month ago, he cannot seem to tolerate dairy without getting terrible gas/cramps. His Enterolab results indicated a problem with casein, but honestly, with three celiacs and a Crohns sufferer with his own dietary needs in my house, it was just too much for me to deal with, so I didn't remove dairy from his diet. Interestingly, just as soon as I went off gluten (at about the same time) I also started having a huge problem with dairy. I had never had a problem with dairy before. Ever. Thankfully, Lactaid helps a great deal. I have a bunch of questions: 1) Why is this all starting now? Does something about eliminating gluten make lactose intolerance worse? 2) Can it actually cause LI? 3) Is this actually a casein reaction? If so, why does lactaid seem to help? 4) Is Lactaid safe for kids? My son's results: Fecal anti-casein (cow
  6. My dd goes to a pediatric gastro at Miami Children's Hospital, Dr. Jesse Reeves-Garcia. Very smart and up on celiac disease. Unfortunately, the hospital practice is extremely busy (patients from all over the world), and it can take months to get an appointment. Literally. We have also had a nice experience w/ Dr. Oscar Loret de Mola, who used to be a member of the same practice but broke out on his own. Easier to get an appointment. The only reason I take my daughter to see Dr. Garcia rather than Dr. Loret de Mola is that I went to Dr. Garcia for a second opinion and ended up staying. Naturally, both doctors reached the same conclusion, and here we are! Incidentally, I am also looking for a dr. who knows celiac disease in adults, and I haven't found one yet.
  7. Thanks, Rhonda. When people speak of neurological problems, what do they mean? My son gets headaches, but what concerns me most are difficulties regulating his emotions and symptoms of OCD. He's only 7, so there's some leeway there, but it seems that the OCD overwhelms him at times. Have you ever heard of that in relation to a gluten reaction? Or when people speak of neurological issues are they meaning vision problems, coordination, etc. I've started him on the gluten-free diet and I think I see improvement, but it is too soon to be sure. After reading your post, I ordered the Enterolab test for him, too. So maybe the answer will be there. Thanks.
  8. Thanks for the reply- that did help. Yes, I suppose I have symptoms. My gastro symptoms seem to come and go thoughout the year (a rough month, then smooth sailing, then another bad patch with much time spent in the bathroom). But it has never been consistent, and I accepted it as normal for a long time. Plus, my gastro checked me from stem to stern and declared me celiac-free, and my antigen bloodwork always came back negative. So I had written it off as a possibility. It was actually joint pain, memory loss, an enlarged thyroid and unexplained episodes of chronic fatigue that lead me to Enterolab. I'm only 40, and I felt like I was falling apart. My primary care doctor sent me for a lupus workup, but there was nothing there. So I thought that maybe we had missed something, and ended up here. So... I guess I do have some definite symptoms. I'm just starting to relate them to celiac disease. I knew that logically, if my dd has both DQ2 and DQ8, one of those celiac genes had to come from me-- but I just didn't think the problem had "kicked in" yet. Denial is amazing, isn't it?
  9. I know this thread is ages old, but I just came across it. In Ft. Lauderdale there is a pizza place not too far from the highway that makes actual, delicious gluten-free pizzas. Just call a little ahead to let them know you are coming. Here's the link: http://www.Lame Advertisement/ Next time you make the trip, keep it in mind.
  10. I got these results from Enterolab, and I am still confused. (I think this may be because I do not really want to accept the diagnosis.) Fecal Antigliadin IgA 32 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 18 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units) Fecal anti-casein (cow's milk) IgA antibody 10 Units (Normal Range <10 Units) HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0501 Serologic equivalent: HLA-DQ 2,1 (Subtype 2,5) So I have DQ2, right? And the DQB1 data is telling me that I also have a gene for gluten sensitivity, right? So what does the DQB1 allele information mean? And does my DQ2 subtype tell me anything useful? I have had an endoscopy, which was normal. So based on these results and the endoscopy, although I am not currently a celiac, I am reacting to gluten and am at high risk of becoming one in the future. Is that right? Thanks for any input. Oh, I also have a quick question about my family. My daughter has celiac, with DQ2 and DQ8. My son has neither gene (per Prometheus labs), but seems to have mild gastro problems. Given my results, would you bother having him tested by Enterolab as well? Wow, it is so nice to be able to ask these things....
  11. Me too! Anyone out there?
  12. Thanks-- I'm still learning, and I'm embarrassed to say that I didn't even look at the dates... Ugh! Gotta be more careful!
  13. But I came across this link, which says that Mahatma yellow rice is NOT gluten free. http://www.carolinarice.com/carolinarice/i...llergychart.cfm