This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I am Catholic and just recieve wine at communion. Recently due to H1N1 flu worries my parish stopped providing wine at communion. As a Catholic this was very disturbing to me as I would be unable to recieve the eucharist which a vital part of our belief system.
My church does provide a gluten free host but you have to arrive at church early enough to ask either the priest or the Sancrosanct(sp?) to make sure they have it in the dish that the priest delivers communion from. Then of course you have to make sure you receive it from the priest and remind him when you are up there. I have kids and all this is a bit of a hassle so I don't do it. However now I have to.
Anyways there are gluten free hosts that are approved for use by the Catholic church.
I agree completely. I feel that I have probably healed to the point of no longer reacting. However I feel that it would be only a matter of time until the damaged resumed. Therefore I will remain on the diet. However on the day my daughter gets married I will eat cake at her wedding. I think in my situation it will do me no long term harm to eat what I really want to on a very rare occasion.
I have not found any pizza dough recipe, product or prepared that is even close to Star Pizza - Deep Dish Chicago sorry its the truth. The Redbridge beer tastes like well not like beer. The Belgium gluten free ales are pretty good but at $6.00 or more a bottle they are a little pricey.
I have been able to replace many things from my previous diet. Many things I think taste better in gluten free form this is very true of fried foods as they are often crispier.
Ok was diagnosed in Feb 2007. I had a positive antibody test and positive biopsy and I also have a family history with celiac. Have been on diet for over a year and a half. Prior to diagnosis I had bloating, constipation regularly and occasional loose stools with sever cramps, maybe twice a year. I have never been as sick as many on this board. After the start of the diet I had the expected hightened sensitivity to Gluten. My last accidental gluten was in September 2007 which resulted in loose stools, bloating and incredible bone aches. I have been 100% symptom free since then and had a antibody test done in the late spring that was near normal.
My son's first b'day was earlier this month and I told my wife that I would have cake and plan on going out to eat real pizza after the party. So that is what we did. I ate cake, not very good and in hindsight, pizza and a pitcher of beer. What happened after that and since is absolutely nothing. I have not continued to eat gluten and I am still on the diet. I don't plan on going off either, but I may occasionaly go eat something I really miss once or twice a year.
My father had been gluten free for over 10 years and then went completely off the diet and had been off over 4 years when he passed away from lung cancer after years of a 4 pack-a-day habbit. He too was symptom free over this time.
I have read about silent celiacs which I suppose I was one. I have also read about studies on celiac patients going off the diet and remaining symptom free.
The answer to your question is yes. I am not very symptomatic and was not before I was diagnosed. The only reason I got the diagnosis is my family history. Anyways I had a few episodes a year maybe 2-3 for the past few years. These episodes included severe cramps, stabbing abdominal pain, fatty stool and feeling crappy. They would last a few days at most. I had similiar episodes earlier in my teens and again in my twenties with several years in between. Some call this condition Silent Celiac.
I knew pretty much what it was but ignored it as it was not impacting my quality of life. After finding out we are expecting our second child my wife asked that I get a physical. It is part of her nesting response apparently. I asked my doctor to do the blood tests which came back positive. I had the endo the next month and it showed Celiac w/ mild to moderate irritation and flattening of the Villi. I decided for longterm health reasons to go on the gluten-free diet.
The bonuses have been loosing 20 lbs, and I have gone the longest period of time without a migraine ever since I started getting them in my late teens. I would get them once a month. I have not had one now in 8 months.
The cons have been missing my normal diet. Since I was never very symptomatic the urge to cheat is much stronger. I have not strayed since the evening before my endo I ate an entire deep dish pizza and 2 pitchers of beer. Had my endo the next morning no problem. Got sick that evening.
I was not very symptomatic before I was diagnosed. I have been gluten-free since 02/2007 and have noticed that now if I consume something unknowingly containing Gluten my reaction are more severe compared to my condition before going gluten-free. It is simply that my body became somewhat tollerant of the constant gluten in my diet. Now that its gone is reacts more to its occassional presence. Even then it is relative as my symptoms from a gluten ingestion are minor compared to others here on this forum.
One of my best friends is a G.I. Unfortunately not local to me anymore. I told him I had a positive blood test and he refered me to the head of his old practice. That Dr. has been mostly great. His stepdaughter is Celiac and apparently very sensitive so his advice is some what slanted by that experience. He feels that nothing should be chanced but that it is also impossible to keep gluten completely out of your diet here in the U.S. unless you prepare all of your own food. He and I don't see eye-to-eye sometimes as I eat oats and he says I shouldn't etc.... but overall a good experience.
I was fairly knowledgable about Celiac before I was diagnosed and it was that knowledge that led me to diagnose myself and ask my family practitioner for the tests.
My wife found Gluten Free Gnocchi at Central Market here in Houston. I don't remember the maker but it was damn good.
By they way you can find wheat free soy sauce. HEB, Whole Foods, Randalls, Central Market and others around here carry Jsan Wheat Free Soy Sauce. It has a slightly stronger taste than the other stuff but works just great. My wife and I ate Sushi yesterday for lunch. I just brought the bottle with me.
The night before my Endoscope I ate an entire Large Pepperoni, Sausage, Mushroom and X-cheese deep dish pizza from Star Pizza and two pitchers of Shiner Bock Beer. I felt fine the next morning for my procedure and was fine that afternoon. Got sick as a dog that night. Absolutely worth it!!!!!
I have tried them and also regular oats. I have had no reactions. However I will not vouch that you will not. There is a continous debate about oats on this board and in the research community. The trend has been that oats do not contain the gluten protien chain that causes the reaction in Celiacs. The problem lies more with the issues that oats are grown in fields that have been rotated with wheat and are often processed in the same facilities as wheat. This creates a significant possibility of cross contamination. So if you are a very sensitive celiac I would think long and hard before trying it. I would contact the company on the box and talk with them about what their opinion on what constitutes gluten-free. Be an educated consumer and take charge of what you eat. I have been reading every label and have now written hundreds of e-mails and letters to companies either complaining about their labels or praising them for being very clear.
We have to give up so much with this diet. I researched this issue and decided to keep oats in my diet. Prior to being confirmed Celiac I ate oatmeal almost every morning. I enjoy eating it and really didn't want to give it up.
I am not highly sensitive. I can use the same toaster and other kitchen pieces without fear of getting sick. I don't react quickly to being glutened and the reactions are mild compared to what many on this board report having.
I would get into a GI immediately. You could have developed refractive sprue which can be very serious and require more dramatic treatment than just going gluten-free.
The very next thing I would do is get a very good personal injury attorney and sue the son of a jerk that didn't relay the results and provide guidance to effective treatments. This is the definition of Malpractice.
I had a positive blood test in late March during a physical. I stupidly asked for the test to be done since I had a family history. However I did have some symptoms but very mildly. I was scheduled for a Biopsy/Endoscope for early May and had been as gluten free as I could until then. The night before I went and ate at my favourite Pizza place here in Houston "Star Pizza." I ate a whole medium deep dish pizza and drank 2 pitchers of beer. My wife couldn't drink she is pregnant so I had her share too. I was fine the next day for my procedure. Went home and was fine. Got sick as a dog that night.
Now having said that and been gluten free for 3-4 months I seem to have more issues now from accidental glutenings than I did when I was not on a gluten free diet. Apparently I am what is described as a silent celiac. My biopsy only showed mild irritation and atrophy. Like I said I only had loose stools a few times a year and no other major issues. Since I have been gluten free I have become more sensitive. Mostly I think I should have just left things well enough alone. I was not having major issues, and I was aware if I started to in the future then I would know the most likely cause. One bonus has been that I suffer from severe migraines, especially after being in the heat, I have not had one since being gluten free. Trying to decide if that is worth it or not.
I plan on experimenting with a few things after my next Endoscope if my gut has healed up mostly. My next door neighbor is celiac. He drinks beer -- normal beer -- and doesn't react to it. He cannot drink wheat beer though. So I will give it a try. I will re-introduce oats in my diet completely. I do cheat on this one and have oatmeal for breakfast once in a blue moon. No reactions at all.
When I do have a reaction is not as severe as the ones described above. I get pretty bad cramps and may or may not have D, no nausea at all. The cramps will leave my abb's sore the next day like I had a very heavy workout.
I would look at like this. Its a Pavlov's dog scenario -- Cheat get sick and think your going die and that will pretty much kill that urge in the future.
I have been gluten free since March 2007. I had my Endscope/biopsy done May 2, 2007. After consultation with my doctor he told me to stay off oats until my next endoscope. His argument goes along with what has been said above. It's a significant cross contamination problem. That being said before I was diagnosed I ate oatmeal almost everyday in my company cafeteria. I now eat pretty much only eggs and bacon. However I have slipped and eaten oatmeal a few times and had no reaction. I have now found some Barbara cerials brown rice crispies, and corn flakes that are gluten free (No Malt!!!!). I have found them to be very good. So I will stay off oats until I get a clean bill on my intestines. At that point I will add them back into my diet and see what happens.
I was not speaking of necessarily this posting. I have seen many on here that would be very intimidating to someone completely new to this. I have experience with this with my father and the struggles he went through. As mother goose said there are several people on this board that have other issues that slant what they say and how they say it.
I didn't intend for this to become a debate on the good, the bad and the ugly on MSG. I remember my father being told to avoid it because of his sprue/celiac. I was suprised when other posts here mentioned snacks and soups that I knew had MSG in them as being OK.
I will listen to experiences, if they seem logical and non-dangerous I will try them for my own experience then make a decision. I have decided that for the time being I will cut oats and limit dairy in my diet until my gut has healed. I have not decided yet how to determine when that has occured. I am meeting with my Gastro in a little over a week to go over the results of my Endo. I pretty much know already but I should get the details on how bad things look. I don't feel malnourished and weigh a healthy 220lbs at 6'2". I expect to loose some weight on the Gluten-Free diet. I expect they will recommend having another Endo in 6 to 8 months. I will probably agree to that as I had no ill affects from the one I had earlier this week.
I am not willing to make decisions just because people have an agenda of their own. As most forums I have belonged to, the active members are the most activist minded which is good and bad. It seems to me that a lot of members on this board have other auto-imune issues, allergies, and food intolerances. They have very strong opinions about what others should do based on their experiences and have no problem promoting them. I don't mind that but it can be intimidating to someone first coming on here to be told if they don't go gluten-free, No Dairy, No Nuts etc.... They won't know what is really wrong with them and all these other things can kill them.
I am a firm believer in moderation when it comes to doing many things. I also believe that each person's illness with Celiac is unique. Yes it may be masking other issues but its no reason to just jump off the cliff and eat nothing but organic vegetables and drink green tea. One step at a time people is a good way to go. Oats to me sound like an iffy area and I understand the issue of damaged intestines having a harder time with Lactose. I am not Casien (sp?) intolerant. I have been drinking gallons of milk my whole life if I was allergic to the protien in milk it would have showed itself by now. So while my digestive tract is healing I will wait to try out oats and probably use lactaid pills for the times when I really need a big bowl of ice-cream.
In the end it comes down to a quality of life issue. Food is very important me. I love fine dining and will continue to do so. I will be deligent about it but if I get glutened then its my fault and I will take responsibility for it. It's not going to kill me either. Getting glutened a few times a year is not the end of the world. It happens because that is life and not everyone can be perfect all the time. Hell I will probably do it deliberately a times. Take a couple of Imodiums and go with it. I even smoke on occasion. My father died of lung cancer and had celiac. He smoked 4 packs a day for 40 years and it killed him. I am not suprised by that. However I enjoy a good cigar and an old scotch sitting with my friends playing poker and don't give a damn about getting lung cancer. If there are consequences from my actions I am an adult and can live with that. Will there be regrets - yeah probably but those are part of life too. Either way I will have lived my life as I saw fit and will always do so.