This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I don't know how well you know the kids in your daughter's grade level, but I have a suggestion:
Ask the teacher to pair your daughter up with another girl who will help her to deal with the issues surrounding parties and other events. In every classroom there are always a couple of kids, usually girls, who are like little moms. They take it upon themselves to watch out for the other kids, especially those with any special needs. I've seen it with students who had food allergies, Asperger's Syndrome, a hearing impairment, selective mutism, etc. Kids like this LOVE to help out, so once you or the teacher explains the situation, this child will take her job very seriously.
At party time, have the teacher show the two girls which foods are off limits. Then when the treats are being passed out, either both girls or just the helper can assist by making sure that no forbidden foods are put on your daughter's desk. It's so hard for kids to assert themselves when they have to do it alone and with grown-ups, but when another kid enters the mix, it is so much easier.
I was diagnosed in April. I'm 49 and have had symptoms since the age of six or seven. I had an upper GI in first grade, and the diagnosis was "nervous stomach." Of course, once I got older, they had a new term- "irritable bowel syndrome." Those were just catch-all diagnoses for hypochondriac, which is exactly what they thought I was, lazy people that they were.
I started to feel better within the first week after eliminating gluten. It was very, very strange because I didn't just feel better physically, but my senses were much more heightened. Driving to work was almost overwhelming at first because the light was brighter somehow and I had better access to my peripheral vision. I have always been smart but very spacey- the kind of person who asks dumb questions and then thinks, "Oh no, why did I ask that? I already knew the answer."
I worry about getting cancer, too, although not as much as I did at first. As for adjusting to the diet, it does get better. The hardest thing now is having to be constantly vigilant. There are still times when I will go to reach for something and then realize that it's off limits. Hopefully, in October when I reintroduce dairy, I will have more food choices. I've also been a lacto-ovo vegetarian for thirty years so right now I am just eating veggies, fruit, grains (rice mainly), peanut butter, an occasional egg, beans, tofu, and things like that.
I'm sure you will do fine. You're only 27, so your body should heal nicely. I'm sure you're aware that each day you're gluten free decreases your chances of serious health problems, and once you reach that 5-year mark your chances of getting cancer are similar to the "normal" population.
The children I read about on here are perfect candidates for a 504 Plan. For your child's safety and your own peace of mind, you should insist upon it. There are so many parents out there who demand 504's for the most trivial things (child should be excused from timed math tests because he can't handle the pressure?), I would think that your school would be happy to write plans for both of your children. I certainly would be.
Toward the end of the school year there was some type of celebration at work in the lounge. I like to go to the lounge and relax and grade papers during my plan time, so on that particular day I sat and stared at the cakes and baked goods and just felt really badly. I also was mopey on International Day, because I remembered all the years past when I had been able to sample a lot of the foods. We're going to New York City soon, and it will be my first time there since having to go gluten free. We will hit the restaurants with gluten free menu items, but I also want my son and husband to be able to visit some restaurants that we used to go to as a family. I don't know if I'll eat before I go there or just go to the park and read and skip those restaurants altogether.
It's weird, though, because sometimes when I'm at the store or in a restaurant I just look at all of the things I used to be able to eat, and I think, "Jeez. It's just food. It looks so harmless. How bizarre that my body has such a reaction to it."
I've been on Lexapro, Wellbutrin, Celexa, Paxil, Elavil, Trazadone, and Cymbalta. If your body isn't adjusting to the Paxil, maybe you should ask to try something else. Sometimes it takes awhile to find just the right one (hence the aforementioned list). Right now I am taking Cymbalta, which my psychiatrist prescribed to deal with my fibromyalgia symptoms and depression before I realized that the gluten was causing the fibromyalgia. Cymbalta not only hits the depression, but it has norepinephrin to fight the pain of fibromyalgia (your symptoms sound like fibromyalgia to me). Elavil was the first one I took seventeen years ago. It worked well, and I eventually went off of it, but got depressed again further down the road. That's when the doc tried Wellbutrin (didn't do a thing) and Paxil (completely destroyed my sex life). He then settled on Lexapro, which was fine, but he eventually wanted me to try Celexa (maybe for the ADD?). I came down with full-blown fibromyalgia symptoms, so he switched to Cymbalta for the depression and pain and added Trazadone for sleep, because I wasn't getting much sleep. I can take up to three Trazadones a night, but I usually only take one. This combination works well for me. The fibromyalgia symptoms are nearly gone with the gluten free diet. It's all very strange how gluten causes so many symptoms.
Most doctors don't know jack about celiac disease. I have to give my doctor information on it. She's clueless. She didn't even know that it affects the small intestine, not the colon. Eventually, I want to see if my insurance would cover a visit to Columbia in NYC, but I'm too busy right now. I just feel like most doctors don't have a clue. By the way, TUMS have gluten in them, even the ones that aren't supposed to. They actually make the gas worse! Avoid gluten at all costs. If it looks like a duck, walks like a duck, and quacks like a duck, it's a duck!
You've been here longer than I, so I'm guessing you know that some corn tortillas have gluten in them. Maybe the product itself has changed, and the restaurant isn't aware of it. Is there any way you can check the ingredients on their corn tortillas?
That would be very discouraging to suddenly have a problem at a "safe" restaurant. I'm always so thankful to find someplace like that.
I wish you the best. Let us know what you find out.
My vet told me about a technique for giving a pill to a cat that's worked well for me. First, make sure there's a bath towel in the laundry room near the washer or dryer and that the pill is closeby also. Take the cat in and wrap him in the bath towel like a papoose from the neck down so he can't struggle. Pry open his mouth and pop the pill in as far back as possible and then blow into his face, which will cause him to swallow. This has worked every time for me, and my cat is a complete psycho (God, I love her) and prone to some rather vicious attacks.
I haven't been in college for nearly a hundred years, but I'll give this a shot-
-Impact of diagnosis on low income vs. middle income patients.
-Tax breaks for gluten free food items and number of people who use them
-How the 504 plan can be utilized for a child with celiac disease
-Strategies that might be used to identify a greater number of persons who have celiac disease/gluten intolerance
-Percentage of various symptoms that lead to diagnosis
-Challenges of parenting a child with celiac disease/gluten intolerance
-Problem of physicians who are unfamiliar with celiac disease/gluten intolerance
-Number of patients who comply with the diet vs. those who do not
-Comparing the rate of diagnosis among different countries
-Comparing/contrasting the recognition of the impact of celiac disease/gluten intolerance on the population in different countries (for example, these diseases are highly recognized in the country of Ireland, where it is common to see the words 'gluten free' on restaurant signs, etc.
You should also send in special nonperishable treats for your child for those times when unexpected "goodies" arrive in the classroom. Elementary schools are big on special events, some of which you may not know about in advance. For example, during "Right to Read" week, all the kids go to the gym for 20-30 minutes to quietly read. Each kid gets a package of animal crackers. During the week of standardized testing, the PTA provides a treat each morning before the testing begins (that's one you will know about in advance).
Among the teachers on my second grade team, we have a teacher who has a diabetic husband, so she takes any of the diabetic kids. Ask other parents about the teachers their kids have had. You might learn that some are more accomodating than others and you will also get a good idea of the teachers who might not be best for your child. Most schools won't let you choose your child's teacher. However, my son's school allowed us to write a letter stating what kind of teacher would best meet our child's needs. We did write a letter one time, because we had heard that one of the teachers had a passion for gifted kids and geared her instruction toward the higher end of the spectrum. Our son had had academic problems the year before, so we wrote a letter stating that our son needed a teacher who would take things slowly, etc.
I wasn't awake through the whole thing, but I did watch the monitor at one point, and I also remember severe pain. It felt as if someone had put a knife inside me. Except for myself and some of you guys, I've never talked to anyone who remembered anything at all from it.
I'm from Ohio, but am curious: Do you have cool summers there or do the temperatures get into the 90's sometimes? I'd like to find somewhere to retire where the summer are cool. I'm about ready to move to Siberia.