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ravenwoodglass

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About ravenwoodglass

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  • Birthday July 31

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    Gardening, photograpy, painting and drawing, textile arts, glass art, reading
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    Upstate NY

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  1. If you want to be tested for celiac you do need to be eating gluten. You don't have to have it at every meal. You can simply have the equivelent of a couple slices of bread a day. It would be a good idea to start back on gluten ASAP as if you have been strictly gluten free iit can take time for the antibodies to build up enough to show on blood work. You could also have your GP do the blood work a week or two before the GI appointment so the GI has the results when you go.
  2. Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
  3. The best thing you can do is get to your regular doctor and have a celiac panel run. You might also ask to see an allergist. Be sure to keep eating gluten until all celiac related testing is done.
  4. Sounds like you may be alleric to something in both products. Next time you are at the store compare the ingredients of each to see if they have one in common that you don't think you eat in other products.. It might be a good idea to schedule an appointment with your doctor for a referral to an alergist to be on the safe side.
  5. I don't know if this will help while you are waiting on the endoscopy but figured it might so here goes... If your life permits you could try going to bed so you can get up a couple hours earlier. Then eat something shortly after you are up like Cream of Buckwheat or Cream of Rice, an egg or something else gluten-free. You don't have to have gluten at each meal while waiting for your testing to be finished and something gluten-free for breakfast may sit better. You can get your gluten at lunch or dinner. By getting up a couple hours earlier that may allow you system to 'clear' the D and relieve a bit of the anxiety. Ask your doctor if you can take something like Immodium with the antidepressant. That may help your day be easier and lessen the D the next morning.
  6. If you haven't had her tested yet please do not go gluten free. Get the celiac testing first as if she does feel better gluten free when she has to go back on gluten for testing she may have much worse symptoms. There will also be a higher risk of false negatives.
  7. If your done with all celiac related testing now you should give the diet a good strict try for at least a couple months.
  8. There is still much to be learned about genetics when it comes to celiac. If you can do bring a peer-reviewed article or two with you when you go back to the doctor for follow-up. Not all doctors are up on the newest research and it may help with your son and others in the diagnosis process. I hope your son heals quickly.
  9. You have a lot of small intestine and damaged places can be missed when biopsies are taken. Also some doctors don't consider biopsies to be positive until the villi is completely destroyed. You have a brother with celiac and you had positive antibody tests. IMHO you should consider yourself celiac and get strictly gluten free. Repeat antibody tests in 6 months or so along with resolution of your symptoms should confirm things for you and your doctor.
  10. Welcome to the board. You can take probiotics whenever you want to whether you are gluten free or not. Have you had testing for celiac done by an MD? If so what were your results? If not it would be a good idea to stay on gluten and get that testing done. As Karen said the gluten item leaves your body in a short time but if you are celiac the antibody reaction can last for up to 3 or 4 weeks in some.
  11. Ulcers were the only GI symptoms one of my children had. Also a weak positive on the test doesn't always mean you don't have celiac. It is IMHO more likely you do. I hope your doctor took more than one biopsy and took them from different spots as damage can be patchy. I also had ulcers at diagnosis and was given PPIs but I chose to wait and see if the diet healed them before taking the pills. It did. Do be sure to give the diet a good strict try after all Celiac related testing is finished.
  12. Welcome to the board. Your celiac testing was pretty much useless since you had been gluten free for 4 months. If you want testing for celliac you need to go back on gluten for a couple months first.
  13. Welcome to the board. It can be important for young ones to have a firm doctor derived diagnosis so they can get the accomodations they will need in school. Since his symptoms are not to severe it would IMHO be best to keep him on gluten until the endo is done. You could cut down his intake if that makes you feel better. You could also talk to his ped and see if the doctor will give a formal diagnosis based on resolution of any symptoms and negative future celiac panels.
  14. DH is usually bi-lateral and it also itches horribly and leaves purplish scars that take a very long time to fade. While your rashes don't sound like DH that doesn't mean they may not be gluten related. I hope you get some answers soon and that you heal quickly.
  15. Welcome to the board. If you had positive blood tests for celiac you have celiac. I don't think they have developed tests for 'gluten sensitivity'. You may find it helpful to read the Newbie thread at the top of the coping page. Lots of good info there.