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rafunk added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Celiac And Stomach VirusesHi everyone.
I was so releived to find this site.!
Has anyone out there discovered that acquiring a stomach and intestinal virus can be devastating?
I am recently diagnosed (mostly self-diagnosed), and have had 2 blood tests returned positive from 2 different labs. But the symptoms and complications are what convinced me. When I saw an article about celiac in a magazine, and noticed that a distended stomach was the main clue, I couldn't believe it.!!! Why hadn't any of the several doctors I had been seeing for several years, even MENTIONED this disease?? I had no idea it even existed!!! I was ANGRY. I had to pursue this myself. Do all the research, request the testing, etc. etc.. Everything that we pay the doctors to do!!! I had been complaining for at least 2 years about the stomach and pain and thousands of symptoms, only to be shuffled around to different specialists and undergoing lots of useless testing. I almost feel like they were just buying time, waiting for me to die!!! My stomach is so big I look like I am 12 months pregnant with tripletts!!!! and the rest of my body is normal size. Would that not be a clue to any doctor-in-training who had a brain????
Sorry I got a little carried away there. Anyway, I got a stomach and intestinal virus last week and thought I was going to DIE. Of course, I have LOTS of other physical conditions, too. And I am not gluten free yet, either. I had the colonoscopy and endoscopy both at the same time, but that was before I suggested celiac to the doctor, so she didn't take a biopsy of the SI. Now they want me to do it again. But I think I will just pass and try the diet, because of the pure H E DOUBLE TOOTHPICKS I went thru to have it the first time, (and for days thereafter).
I think I have it so bad though, that lots of damage has been done to my body, from what I read. Does anyone out there have it that bad? Is there even hope?
Sorry again, to carry on so.
Prayers to all
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