This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Starting a new medication tomorrow - and as always, it's frustrating trying to find a list of inactive ingredients online. This one has been especially difficult to come by, because I found the list for the tablets (safe) but not the capsules.
Anyone know if the 20 mg capsules (marked with 4356) from Teva are gluten free?
Also need to find out about soy & dairy.
I too have to vote for Trader Joe's gluten-free brownie mix. The flavor & texture are amazing, & even my picky, gluten-eating husband loves them! Many of the other mixes have soy, so I haven't tried them. One brand I tried (can't remember which) turned out so hard that I practically needed a chisel to get them out of the pan.
On a side note, Namaste foods makes a Blondies mix that is out of this world! Add some Enjoy Life chocolate chips, & you have a panful of yumminess!
My Enterolab results showed intolerance to gluten, casein, soy, & eggs. I only suspected the gluten, so the others were shocking. I eliminated them all, & after a year I tried eggs again - no reaction at all! I have since eaten eggs many, many times with no adverse effects at all, which I'm so thankful about. I've inadvertently had soy (I didn't realize it was an ingredient in certain foods I had at Chipotle) & have gotten sick every time, so I think that one remains out. I want to reintroduce dairy in small portions to see if I can be successful as I was with eggs. However, I'm just recovering from what may turn out to be a corn intolerance, so I want my gut to heal a bit longer before I try yogurt or an aged cheese first.
Good luck! I think everyone's body is totally different in how it responds.
I thought about pancreatitis too, in the midst of the pain. However, after about 5 days the symptoms were gone, & now I feel back to normal again. Since I had similar symptoms back before I knew I couldn't eat soy, as well as when I had to go on the gluten trial for a diagnosis, I think it's either a cross contamination issue, or a new food intolerance. For now, I'm not eating corn, other than the corn starch that's in Udi's bread, because that doesn't seem to bother me.
Have you checked medications you're taking? Toothpaste? Vitamins? Is your kitchen completely cleaned of gluten/dairy/soy? There are many different things that could cause a reaction, & sometimes it's very hard to pinpoint what it is. Perhaps you are also sensitive to corn?
I've already decided chips of any kind are on my "no no list" for awhile (maybe that's what I'm giving up for Lent??) I wanted to eat something last night but it was made with corn flour, so I avoided it, though I don't want to become paranoid either! I will rule out plain, cooked corn soon, once my stomach feels back to normal again. I hope that's not what it is!
I truly hope this isn't a corn intolerance. I still find this very hard sometimes, even almost 3 years into it. I was just about to reintroduce dairy to see if I could tolerate it since I've been taking digestive enzymes (and didn't know dairy was even an issue until I was tested by Enterolab), & then this setback with whatever made me sick. I'm finally feeling almost normal again, & have lost 6+ pounds in 4 days just because my stomach has hurt so much I haven't wanted to eat much. Not the best way to lose weight, let me tell you!
I'm sorry to hear you're not feeling well! Many of us have found, either through trial & error, or testing, that we cannot tolerate soy, dairy, or other foods. Try sticking with a very simple diet, with meats, veggies (cook them if raw aren't tolerated), fruits. Other people will probably have ideas too, but that's what helped me at first. I've had very similar symptoms lately, & some on here think it may be corn, or lectins, so unfortunately this journey sometimes seems never-ending!
Good luck, & keep coming here for support & advice. It helps.
Thanks for the perspective, everyone. I know he's trying, & the Valentine's Day thing was very sweet. I guess I still grieve not being able to feel "normal" & eat whatever I want, whenever I want. There's no way for him to truly understand that, though I wish there was!
I will continue to praise him when he tries, & remind him if things are unsafe for me. I just hope he's able to accept that I'm not criticizing him, I'm just trying to stay healthy!
The brands of chips are Fritos corn chips, Kettle brand yellow tortilla chips, & another brand of tortilla chips that state "Gluten Free" on the front. All 3 have only the ingredients of corn, salt, & corn or canola oil. I read every label every time, to make sure there is no soy, because I cannot tolerate soy in any quantity. Maybe it's something totally different, but it seems suspicious that this has happened on 3 separate days in which I had chips. If it was the corn though, then wouldn't the Udi's bread I've been eating all week (because it's the only calming thing I'm tolerating) be upsetting too? It has corn starch as one if the ingredients in it. Could it have been the fat?
I've been following the restrictive diet lifestyle for nearly 3 years, with good results for the most part. I am the one who cooks the meals in our household, mainly because my husband won't cook, even though we both work full-time (that's a topic for another day!). I would think by now that he's also well-aware of my restrictions, because he sees me struggle with meal planning, shopping, & dining out, but I feel like he still just doesn't "Get It" much of the time. For example, for my birthday, he bought me 2 boxes of flavored tea, neither of which I could drink because they contained barley extract. For Valentine's Day, he planned ahead & went to a gluten free restaurant/bakery & purchased lasagna, cinnamon rolls, & bread, for a special dinner for our family. That was incredibly sweet to me, because he doesn't usually do that. However, he neglected the fact that I can't have soy either, & all of the things he purchased had soy in them, so I could eat none of them. Only 1 week prior I had been to that bakery, & came home frustrated because they use soy in almost everything, which I very clearly told him.
Other times, he will do something like cut up a pineapple for all of us to have, neglecting to wash his hands first after having just eaten toast or bread or something equally "gluten-y", so what he's cut up becomes contaminated for me. I have explained my restrictions many times to him, including the risk of CC at home since he eats gluten. I tried to kindly express my frustration to him again after the Valentine's Day fiasco, explaining that while I LOVED the fact that he planned ahead, & did this all on his own as a kindness to me, I still felt left out because of the soy issue. I also told him that if the tables were turned, I would have felt mortified, apologized all over the place, & gone to the store to buy something to make him from scratch so he could still join in the nice dinner. However, once he realized his mistake, he didn't offer anything of the sort, & I cooked my own dinner. With the pineapple incident, he didn't apologize either, & basically said I'm making too big a deal of it because he made a mistake, & "there's more at the store if you want some".
I know this is a long rant, but as you can see, I'm frustrated by all of this, especially since this week I've been struggling with clearly being contaminated somewhere because I've been ill.
Any suggestions, or people who might have had similar situations in their relationships?
Thanks for the information about lectins - I was suspecting corn since I had corn tortilla chips on all 3 of the occasions when the stomach pain was severe. But, I eat corn & brown rice very often since eliminating gluten & soy, & have never had any problems. Why, all of a sudden would it come out of the blue like this?
I use Trader Joe's Rice Milk (vanilla flavor) & have had no problem with it.
All of Trader Joe's products say they're made on lines shared with wheat, soy, etc; I think they're just being thorough, & have not had any problems with their products.