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Judee

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About Judee

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  1. What ever came of your child's high Gliadin IgA test , high total IgA serum, with negative IgG and negative TtG. My son has similar blood work (high Gliadin IgA, but no idea on the total IgA serum number, negative on the other tests) and I can not make sense of it. Judee
  2. April , Thanks for your input. I need to find out more about these enterolab tests. I went to their website, but did not see tests defined. Why are their tests different? Do regular GI doctors order similar tests to theirs as well as the endomysial and TTG tests that they seem to rely on. How did you order the tests from Enterolabs...privately or through your doctor? I think we will proceed with these tests as I am too impatient to wait until late July when we can see the celiac specialist. Also, if you don't mind sharing your opinion on my older son. at 14 yr. old, he was about 45-50% for height and 70% for weight. (shorter for our family, but very muscular) He does have the DQ8 gene and did test positive for Gliadin IgG anitbodies. However, a very reliable celiac specialist reviewed these results and said that they only rely on the TgG and endomysial tests (which turned out negative). So they recommended he eat gluten and get screenred every 2 years. What do you think? Judee
  3. Teenagers have so many needs. Seems like your son has some "unique needs" that has led him to steal and hide things. Has he had a chance to morn the loss of gluten containing foods? He needs to be sad about it. He needs to be angry and let emotions out. He needs a stash of money at his disposal to get special food when he feels the need. He needs to have more control over his gluten free food options. (Even if you think you are giving him enough control, he probably needs more.) You are still within the first year of diagnosis. Some people cry off and on for a year. Your son might just act out more for the first year. This shall pass once he accepts the diagnosis.
  4. Hi, I wondered if you could give me your best guess on my son here. I am guessing as parents of celiac kids you would be up-to-date on blood test results??? 13.5 years old - grew 3.5 inches this past year and gained 10 lb. (He is 5ft. 7.5 inches and weight 122, thin but he always has been. So he is a tall growing boy....BUT) Gliadin IgA positive 66 (<20 being negative ) Glidadin IgG negative <20 Tissue Transglutaminase negative 20 Endomysial Antibody negative Seems like the tissue test and the Endomysial test is what they want as positive in order to proceed with a biopsy. Therefore, I am guessing he has no active celiac trouble. I plan to get him HLA tested, but until then...what is your best guess? Also, why would they check the Giadin IgA and Gliadin IgG if the results don't matter? Thanks for your input. Judee, DQ8 biopsy proven, 13.5 years since diagnosis
  5. I need someon's best guess on my son as I wait several weeks for the GI appt. 13.5 years old - grew 3.5 inches this past year and gained 10 lb. (He is 5ft. 7.5 inches and weighs 122, thin but he always has been.) Gliadin IgA positive 66 (<20 being negative ) Gliadin IgG negative <20 Tissue Transglutaminase negative <20 Endomysial Antibody negative Seems like (from my quick internet research) the tissue test and the Endomysial test is what they want as positive in order to proceed with a biopsy. Therefore, I am guessing he has no active celiac trouble. I plan to get him HLA tested, but until then...what is your best guess? Also, why would they check the IgA and IgG if the results don't matter? Thanks much. Judee DQ8