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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

JessieFree

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  1. Thanks for the replies. I don't really have pain after eating just fullness but I can't pinpoint any one thing. I haven't tried cutting out corn yet but I did have a allergy test for all those things and it was a normal. In fact my family doctor told me I wasn't celiac because the allergy test was negative I'm not really happy with that diagnosis I think it's wrong. The only thing I can't think is my I bloat badly because I am still underweight (5'7 and 93LBS).
  2. I had a positive biopsy and negative blood tests. My GI told me to try the diet for 3 months and if I wasn't improving that it was IBS. I've been gluten-free for 5 months my legs cramp have stopped and I have more energy. I'm following the diet very strictly but I still get bloated and constipated no matter what i eat. I've tried probiotics and every otc med there is. I've even tried eating smaller meals gone off dairy. I thought this would have improved by now. I'm starting to think it isn't celiac at all. Is there something else that could cause this? What can I do I've tried eveything!
  3. I had a positive biopsy but all my blood tests were normal. My GI said to try the diet FOR 3 MONTHS and if I didn't get better than it was IBS (he says its one of the two but can't be sure which one). He didn't even ask me to come in for a follow up. I went to my family doctor for a second opinion who gave me a food allergy test. It was normal so should told me to go off the diet. As soon as I went off the diet I started getting leg cramps at night again, but other than that didn't feel any worse (I don't get sick after eating gluten). I went back on it after a few weeks of lots of gluten. I've been gluten-free for about a month now. I have had no leg cramps but still have the gas/bloating. I don't get diarrhea just constipaton. Does this sound like celiac or are the cramps just a coincidence. I had the leg cramps when I was young but never had any GI symptoms. They stopped for years and just recently came back shortly after my GI problems started. My doctor never told me what could have caused the biopsy to be positive if it wasn't celiac. Edit Post
  4. I had a positive biopsy and but all my blood tests were normal. My GI said to try the diet FOR 3 MONTHS and if I didn't get better than it was IBS (he says its one of the two but can't be sure which one). He didn't even ask me to come in for a follow up. I went to my family doctor for a second opinion who gave me a food allergy test. It was normal so should told me to go off the diet. As soon as I went off the diet I started getting leg cramps at night again, but other than that didn't feel any worse. I went back on it after a few weeks of lots of gluten. I've been gluten-free for about a month now. I have had no leg cramps but still have the gas/bloating. I don't get diarrhea just constipaton. Does this sound like celiac or are the cramps just a coincidence. I had the leg cramps when I was young but never had any GI symptoms. They stopped for years and just recently came back shortly after my GI problems started. My doctor never told me what could have caused the biopsy to be positive if it wasn't celiac.
  5. Reactions

    I had a positive biopsy and negative allergy/blood tests. I'm supposed to be trying the gluten-free diet for 3 months to see if it's true. I don't think it is because I know there were times when ate gluten and never had a reaction and there are times i have reactions when I know I've had no gluten. I've been on and off the diet (because my doctors have different opinions) and couldn't tell much of a difference either way. Why would I still have symptoms with gluten free foods?
  6. You can be gluten/wheat/locatose intolerant without being celiac. But blood tests aren't always accurate a biopsy should be. P.S. Forte made me very sick too but I highly recommend probiotics. Ginger and peppermint teas are also good for the stomach
  7. My biopsy was positive but all the blood tests and food allergy test were negative. I've been on and off the diet and saw no difference either way. I don't get sick every time I eat gluten. My family doctor says I don't have it because the food allergy was negative my GI says it's either celiac or IBS Could the biopsy be wrong?
  8. Hi am a 23 year old female. My biopsy was positive for celiac even though all my blood work was negative. I tried the diet but didn't get better. When I started eating gluten again, I didn't feel an worse, there are no certain foods that set off my symptoms. My GI says it is either celiac or IBS. My regular physician says it is not celiac because the food allergy test she gave me was also negative. I am now seeing a psychiatrist and he said the lab work clearly says I have celiac. But that is obviously not his department and he doesn't want me to see any more specialists because he is more concerned with treating me for a eating disorder (which he says is not causing my gastro problems). If I had celiac wouldn't I have felt much worse when I got off the diet? I'm so confused. I need to gain weight but don't know whether to follow a IBS diet or a gluten-free diet
  9. Fed Up With My Doctor

    I had a positive biopsy so my GI told me to go gluten-free. I did for 2 weeks (without improvement) I called him today to check on my blood work and he said it was negative so now he wants me stay of dairy and try another medication. He says he'll have to look for something else and not to worry about going gluten-free any more. He didn't even call to give me the results I had to call him and leave him like 3 different messages before he would get back to me. The last time I went in he told me he would want me to stay gluten-free even if the blood test was negative now he isn't saying that. What is going on I feel like a lab rat and nothing is working! I just want to know whats wrong with me so I can fix it.
  10. Thanks for your input I just talked to my GI now he says to go off the gluten-free diet because the bloodwork was negative even though the biopsy was positive. This isn't what he said before but I guess he changed his mind since I'm not improving now he wants me to stay off the dairy and try another medication. I'm fed up and ready to look for another doctor
  11. My blood test was negative the biopsy was positive I've been gluten-free for 2 weeks I thought i was feeling better but then out of no where the bloating and cramps started all over again (the gas never went way, but leg cramps have stopped). I can't think of anything I could have had with gluten I'm starting to think it must be something else my GI wants me to go gluten-free for 3 months before he will rule this out and do more tests. I don't have D just C sometimes no certain food seems to trigger my symptoms it just comes and goes. Does this sound like celiac, what about IBS? I'm so confused!
  12. I had a positive biopsy and am still waiting on the blood test My GI wants me to go gluten-free for 3 months to see if I get better before he diagnoses me even if the test is negative. I've been gluten-free for 2 wks. I thought I was feeling better but I still look pregnant and the gas hasn't let up at all. My stomach went down for a day or 2 (like it has before) but that didn't last. I've been eating the same gluten-free stuff the last 2 weeks. Am I doing this for nothing? I would think these things would have improved by now. Do I have to wait three months to find out if it's something else?
  13. I had a biopsy that came back positive then my GI gave me the blood test to confirm. I'm still waiting for the results I would think he would do the blood work first. I have a lot of the symptoms: gas, bloating, irritability, leg cramps, tingling. What's more reliable? I would hate to think I'm going gluten-free for nothing.
  14. 5 Days To Gluten Free

    biscuits and pie!]