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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About DebNC84

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  1. i failed to mention that they are processed while still alive for 45 minutes in some sort of solution to "clean out" their digestive system - before their demise.  I'm pretty positive that this is gluten - the owner of the company is going to investigate into it more deeply.     THE LATEST - today i broke out with a rash on my back / I have DH... sooooo....  all signs point to.
  2. I recently purchased some fresh water prawns - i have NO allergies to seafood or fish, btw. I was SO excited about trying them since they were farm raised with no chemicals or antibiotics.  "all natural"  - they were delicious as promised.  I cooked them in garlic butter after peeling them.  split them with my husband  - he ate, I ate, three hours later I got sick (vomited until my stomach was empty), he didn't.  I have Celiac - he doesn't.  I was nauseated, no fever, no cramping and woke perfectly fine the next day and didn't miss a beat.  I called the grower and talked with her for a bit today.  The prawns are fed a feed that consists of wheat and other ingredients - which isn't actually eaten by the prawn - they actually feed on the algae that is formed in the water because of the feed.     question #1 - has anyone here had any trouble with prawns like I described? question #2 - do you think it is far fetched to think this could be a gluten related issue?
  3. Chicken Houses - Farming

    well.. I know that I know this is DH - AND i've gotten my first mouth ulcer in three years.. i'm thinking there might be a chance there is a small amount of gluten in the "gluten free" bread i'm buying ... sigh.
  4. My husband and I just bought some chicken houses that hold 20,000 birds each - I have been having skin issues - face and body since i started working in the houses 3 weeks ago. I've been using a face mask for the last week I am in the process of finding out what exactly is IN the chicken feed that might be causing me issues. Oh.. did I mention i have celiac disease with DH - fun stuff. wondering if there is anyone out there with similar farming experiences that could help me know what I need to do - as far as what type of mask to use and such. Thank you!
  5. Hair Loss

    i have issues with a itchy scalp and hair loss! I also have DH - do you? my itchy scalp seems to be aggravated by sweating.. like wearing a cap in the summer while outside makes me sweat and then comes the itch... washing my hair helps relieve the itch. I have read that increasing water intake during this time may help - My hair loss occurs each time i get glutened significantly - it seems.. handfuls come out while washing my hair - it's depressing to me.. I have long hair and know that it will be "forever" for that hair to grow back and be long again. Yes it does grow back .. at my forehead.. i see the new hair growth.. looks like thin bangs... sigh. Just have to quit taking chances with food. I do great at the house but then I will try to eat out and something always happens. I have recently gone soy free - as well. Come to find out - soy has enzymes that block the absorption of many vitamins and minerals.. like anyone with celiac disease really needs that!
  6. I CAN'T BELIEVE IT! *shakes head* I don't think i would have allowed them to use that stuff. But obviously it was necessary or your doc wouldn't have used it. That rash should calm down - the longer you are gluten free the less effects you should have from accidental "glutenings" Hopefully none.. but if you are like the rest of us.. it'll happen. The proteins from the gluten stay in your system for up to 2 years.. that's what creates the DH that and Iodine - Iodine reacts with the gluten in your system and causes the rash. I KNOW what you are going through.. I wouldn't wish it on my worst enemy!! It's pure torture! Cutting back on Iodine at least for a little while will help - NO SEA SALT! I know that iodine is necessary for thyroid function but... you just look it up, ask your doc and decide what to do. I am using non-iodized salt - and my Thyroid levels are better than they were before i was gluten-free - Hope this helps.. at least knowing someone else shares your pain. I hope all is well with the x-ray results - stay calm - all will be fine.. probably anything they find will fix itself with your new gluten-free lifestyle - our bodies have amazing healing capabilities - God made us that way!
  7. Your battle sounds so similar to my story!! You will be fine! Those things that you miss are insignificant because your health and well being are at stake! We all know how it is. The longer you are gluten free the more that you will realize what that toxic crap was doing to your body. My rash stopped itching within three days.... and slowly the rashy bumps went away and healed up - the scars even fade over time. Look up the effects of iodine in your system and DH (dermatitus herpetiformis) I don't want to give any bad advice but i Know what worked for me... Hang in there.. You can do this!
  8. i've searched and can't find any info on this.. and honestly would just like to know if someone else experiences this symtom I'm gluten free but of course - occasionally i get "glutened" - when this happens i go through a list of symptoms that string out for about two weeks.. one of the more annoying of the symptoms is a vaginal odor that only happens after intercourse (unprotected) - it's a vinegar like smell and lasts for a day or two after sex. This is one of those "private" things that just doesn't come up in normal conversation.. ya know? This has become one of those things , that when it happens.. I KNOW i've been glutened.. does anyone have any answers for me? If it helps i also have DH - Thanks!
  9. In Tears Over Dh

    you HAVE to stop eating processed stuff with added salt!! no bacon , no ham, no chips after awhile from my experience a little won't hurt you but I think you have to deplete the iodine built up in your system. I'm sorry this isn't good news... but I'm pretty sure it will help you... eat only foods that you prepare yourself.
  10. Thank you for your reply! in the beginning of my quest to find out what was causing my rash, which took 8 mos of doctors, blood tests, doctors, more tests, doctors, biopsies -you get the picture. The endocrinologist that I saw because of my high thyroid levels actually told me that I was in the beginning stages of Hashimotos - he sent me home with synthroid - i was to take 12.5 micrograms a day - it shot my blood pressure through the roof - may I add that I have never had a blood pressure problem.. I stopped taking the drug - and called the doc - he said I'm not ready for the medicine obviously and to get retested in 6 mos. - a few months later, I went gluten free and stopped ingesting as much iodine as I could. - a few months after that - I got another blood test and among a lot of other things that went back to normal, my thyroid was in the "normal" range. May I add that it seems that my hair only falls out when my DH flares - but I think i've got a handle on that now... I shouldn't have any more flare ups - since I've figured out how sensitive my system is to iodine. I AM CONCERNED ABOUT CELIAC PERSONS that don't have DH - are they just as sensitive to iodine as I am? But since they don't have "the rash" they are keeping the iodine in their systems and possibly hurting their thyroid? There is a definite link between thyroid disease and celiac disease from what I'm reading - is their any studies to find out why? Is it the iodine? I was wondering if anyone knew of any studies that were taking place - or that have been done.
  11. I'm just wondering - I have DH which is brought on by ingesting iodine My thyroid levels were high before I went gluten-free and lowered my intake of iodine When I add iodine into my diet - along with the DH I experience hair loss which is associated with thyroid problems. A lot of people with celiac disease also have thyroid disfunction - I'm wondering, what if people with celiac disease without HD are still sensitive to iodine and that is what may be causing their thyroid disfunction? Has their been any studies?
  12. In Tears Over Dh

    i hope my reply helps you - I've not read through everyone's replies... maybe this is repetitive. I have DH and I understand the insanity.. believe me! I have been mostly gluten-free for almost two years with the occasional accidental glutening at first. I found out that it takes up to two years for the DH to clear while on a strict gluten-free diet. SO ABSTAINING FROM FOODS WITH SALT ADDED IS SMART. and definately no sea salt - my last episode with DH lasted for several months and it was brought on by my Celtic Sea Salt - I just didn't think it would be a problem to add it into my diet after been gluten-free for 1 1/2 years.. but it was a bad idea at that time. WHAT REALLY GRIPES ME IS, COMPANIES ARE NOT REQUIRED TO LIST IODIZED SALT AND NON-IODIZED SALT! how crazy is that! oh well, maybe someday. I use a cream called Clobex on my DH and it helps it clear faster with not so much scarring. ask your doctor for it - it's not cheap but it works on the itch and the bumps. Also this might not be very well excepted by some here.. but I will turn my shower on as hot as I can stand it and let the hot water pummel the areas that itch - it will drive you crazy at first - because the itching intensifies for a couple seconds, but it actually calms down the itch after a few seconds - without scratching, which we all know makes things worse. I hope you find relief AND a solution. I'll never forget when the last Dermatologist told me (before I found out that I had DH) that I had excema andI was going to have to learn to live with it. OMG!!! I wanted to jump off a bridge!! LIVE WITH IT!! needless to say I don't go to him anymore - how many people out there are "living with" DH because some quack told them it was excema? unbelievable!