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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

MaryanneQ

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  1. Doctors In Nj

    Sorry - a bt late on this. Dr. Richard MOnes is my son's gastroenterologist and he is WONDERFUL!!! He's fantastic with children and very knowledgable about Celiac Disease. My son is a puzzle because he had high blood tests on two occasions, but a negative biopsy. He took more blood and sent it to a lab in Buffalo that is more "sensitive" which came back negative. We're right now on the tail end of a year long trial diet. He has been so helpful trying to help figure out what is going on here and will not release us until he is 100% sure that we do not need him. I woudl recomend him to anyone Maryanne
  2. I am so discouraged at this point. My son has had many difficulties all of his life (Nick is 6.5 right now). He has always been painfully small for his age weighing in at 29.5 lbs and 40" tall right now. We were seeing an endocrinologist for some time who ran some tests for Celiac and they came back positive. (ttg, iga, igg) Actually the TTG was positive and one of the other two as well, the other one was negative. We were referred to a Pediatric Gastroenterologist in the same hospital(Children's Hospital) - He looked over everything and scheduled an intestional biposy for the following month, fully expecting it would be positive. He is VERY familiar with Celiac stating, in fact the same day as my son's biopsy they did 4 other children, all who were positve. My son was negative. The Dr was puzzled. He's convinved he didn't miss abnything because he was very thorough with his biopsy. In any case - he ran a few more tests , one of them being a repeat Celiac panel(TTg, Iga, IGG again) and this time he routed it through some lab in Buffalo (Names escaped me - starts with an I) that runs these tests regularly and the results would be more sensitive etc. Anyway - these tests came back perfectly normal ?!?!?!? So we decided to do the trial run of the diet anyway to see if we saw any chamges in growth. December starts month 7 on the diet and NOTHING. No growth spurts, nothing is different. He never had the distended belly that you sometimes see, never had the bowel problems, had no concrete symptoms except for the lack of growth. I'm just not sure what is going on. We go for our follow up after x-mas and I know we will do a gluten challenge and repeat all tests. I am so disappointed. I thought this was it. I et myself up for such a hard fall, putting so much HOPE into this diet. Everything seemed to fit. My son has horrible teeth, attention and learning issues, speech issues. Everything I read seemed liek this wodul be THE THING that wodul unlock everything and make life easier for him and now it looks like this just isn't it. Has anybody else has flip flopping test results like this?
  3. I just received the list in the mail from Perdue I asked for a few weeks ago. Here's what they have listed as Gluten Free PERDUE CARVING CHICKEN BREAST, OVEN ROASTED PERDUE CARVING TURKEY BREAST, HONEY SMOKED PERDUE CARVING TURKEY BREAST, HICKORY SMOKED PERDUE CARVING TURKEY BREAST, MESQUITE SMOKED PERDUE CARVING TURKEY BREAST, OVEN ROASTED PERDUE CARVING TURKEY HAM, HONEY SMOKED PERDUE CARVING CLASSICS TURKEY BREAST, PAN ROASTED PERDUE CARVING CLASSICS TURKEY BREAST, PAN ROASTED, HONEY SMOKED PERDUE CARVING CLASSICS TURKEY BREAST, PAN ROASTED, CRACKED PEPPER DELI TURKEY BOLOGNA PERDUE SLICING TURKEY HAM DELI TURKEY HAM, HICKORY SMOKED DELI DARK TURKEY PASTRAMI, HICKORY SMOKED PERDUE SLICED CHICKEN BREAST, OIL FRIED DELI TURKEY SALAMI DELI TURKEY BREAST, OIL BROWNED PERDUE HEALTHSENSE TURKEY BREAST, OVEN ROASTED-FAT FREE, REDUCED SODIUM DELI PICK UPS SLICED TURKEY BREAST, GOLDEN BROWN DELI PICK UPS SLICED TURKEY BREAST, HONEY SMOKED DELI PICK UPS SLICED TURKEY BREAST, MEDQUITE SMOKED DELI PICK UPS SLICED TURKEY BREAST, OVEN ROASTED DELI PICK UPS SLICED TURKEY BREAST, SMOKED DELI PICK UPS TURKEY HAM, HONEY SMOKED BUFFALO CHICKEN WINGS HOT N SPICY SEASONED GROUND CHICKEN GROUND BREAST OF CHICKEN GROUND CHICKEN BURGERS FRESH GROUND BREAST OF TURKEY GROUND TURKEY BURGERS FRESH LEAN GROUND TURKEY PERDUE INDIVIDUALLY FROZEN CHICKEN BREASTS PERDUE INDIVIDUALLY FROZEN CHICKEN TENDERLOINS PERDUE INDIVIDUALLY FROZEN CHICKEN WINGS ROTISSERIE CHICKEN, BARBEQUE ROTISSERIE CHICKEN, TOASTED GARLIC ROTISSERIE CHICKEN, ITALIAN ROTISSERIE CHICKEN, LEMON PEPPER ROTISSERIE CHICKEN, OVEN ROASTED ROTISSERIE CHICKEN, TUSCANY HERB ROAST ROTISSERIE OVER STUFFER ROASTER ROTISSERIE TURKEY BREAST SEASONED CHICKEN BURGERS, BROCCOLI AND MUSHROOM SEASONED CHICKEN BURGERS, SAVORY CHICKEN SEASONED CHICKEN BURGERS, SPICY VEGETABLE PERDUE SHORT CUTS CARVED CHICKEN BREAST, HONEY ROASTED PERDUE SHORT CUTS CARVED CHICKEN BREAST,, GRILLED ITALIAN STYLE PERDUE SHORT CUTS CARVED CHICKEN BREAST, GRILLED LEMMON PEPPER PERDUE SHORT CUTS CARVED CHICKEN BREAST,, ORIGINAL ROASTED PERDUE SHORT CUTS CARVED CHICKEN BREAST, GRILLED SOUTHWESTERN STYLE PERDUE SHORT CUTS CARVED TURKEY BREAST, OVEN ROASTED PERDUE TENDER AND TASTY PRODUCTS PERDUE CARVINGS WHOEL TURKEY WHOEL TURKEYS (SEASONED WITH BROTH) SEASONED FRESH LEAN TURKEY SAUSAGE, HOT ITALIAN SEASONED FRESH LEAN TURKEY SAUSAGE, SWEET ITALIAN ALL FRESH, MINIMALLY PROCESSED CHICKEN AND TURKEY ITEMS SUCH AS WHOLE BIRDS AND PARTS, INCLUDING BUT NOT LIMITED TO LEGS, BREASTS, WINGS AND GIBLETS ARE GLUTEN FREE. Maryanne
  4. Responding to my own post. I found the information. I was spelling the company as Purdue and it's Perdue so I found their website. Perdue has a gluten free food list that thay mail out (It's NOT on their web page) and they said the ground chicken in patty form and in bulk ARE gluten free When I get the list from Perdue listing all of their gluten-free products I will post the info
  5. Does anybody know if PUrdue ground chicken in bulk, in patties and ground turkey is gluten-free or not? The ingredients list natural flavors so I;m not sure. My son has severe dental issues so I need to use ground chicken to make chicken nuggets. I trie dgetting it from a butcher twice and it was just so dry - the Purdue ground chicken is so much moister.
  6. Bread Crumbs

    Yes you can make your own bread crumbs. I have tried toasting cubed bread then "whizzing" them in the Cuisinart and tried just "whizzing" them untoasted and I like untoasted better. I just made a delish combo the other day - I added salt and pepper, dried parsley and a dash of cayenne - yummy. Throw it in a ziplock and take whatever you need out Maryanne
  7. Kellogg's Pops

    Can you believe that my regular old supermarket(Shop Rite) carries 4 different gluten-free Cereals!!(EnviroKids) They also have most of the Tinkyada pastsa, Glutano Pretzels, a few varieties of Pamela's Cookies, About 6 or more different Bob's Red Mill gluten-free products(Hot Cereals, baking mix, bread mixes etc), gluten-free crackers, 2 different gluten-free "bread" crumbs, gluten-free Van's Blueberry Waffles...... I could go on and on I still have to get my bread from health food stores or right from Kinnikinnick because Shop Rite stocks the yucky kind in the freezer section. But still - I think that's an impressive selection for a grocery store
  8. Has anybody found a substitute for Goldfish crackers or Cheese Nips/Cheeze-Its? (Peppridge Farms I believe make them) My son just loves these and obviously cannot have them any longer. Please let me know if there are any gluten-free alternitives out there THANKS! Maryanne
  9. I use the Kinnikinnkck breads for my son. It's only been a week so I'm no expert - but they toast great, hold together for a sandwich and keep well with PB&J in an airtight container for lunch
  10. My 6 yo son, Nicholas, last summer was referred to a Gastroenterologist by our Endocrinologist because she ran the celiac blood panel (TTg, IGA and IGG) and 2 of the three came back with very high positives(I cannot remember which one was negative maybe the Iga? TTG was definitely positive) So he went to have a biopsy done and it was negative? The biposy was done by a Ped GI who works out of a children's hospital and is VERY familiar with celiac disease, in fact the same day as my son he had 3 other children who were positive so it's not liek he didn't know what he was looking for. ANYWAY -The Dr consulted with some other DR's and they decided to rerun the blood tests sending them to some lab in BUffalo instead of to Quest etc and we just did that. Before the test results came back we were given instructions to start a one year gluten-free diet. We'd track his growth and then do a gluten challenge and possibly a repeat biopsy. We started just the diet Monday but today got the results back from all of his tests. Everything was normal. He ran absolutely every test - it was 10 vials of blood and and 72 hour fecal fat collection and EVERYTHING came back normal (aside from his standard anemia issues). He did say though that they did some genetic test and Nick DOES have the genetic disposition to have Celiac?!?!? But everything else was normal. We were told to keep going on the gluten-free diet just to see what happens and they'll check growth and do a challenge in 6 months. To be honest I am VERY upset :*( I thought this was IT, thought this was the answer to so many of his problems. Alot of stuff didn't fit with Celiac Disease but ALOT of stuff did :*( He's VERY small - At 6 years old he is 29 lbs and 39" tall - the size of a 2 year old. He has chronic anemia, HORRIBLE teeth , attention issues(Not ADD or ADHD but very short attention span) speech issues. WHat he doesn't have is the intestinal problems - he has regular bowel movements, he will have diahrrhea(sp?) maybe once a month, but definitely not regularly. He doesn't complain about his belly hurting etc. Any ideas please? Is this it or not? I just thought we hand an answer, after dragging him to so many specialists I got excited because I though we had found the key to unlock everything - kwim? I know it's nuts to wish this was it but it just seems like such an "easy" answer to so many difficulties he has had his whole life :*( Opinions please????? :*( Maryanne
  11. I have tried two gluten-free coatings - Cornmeal and Cornflake crumbs - both are "yucky" according to my 6yo. Has anybody found a coating mixture that tastes close to regular bread crumbs? Thanks! Maryanne
  12. Who makes them? I was just at whole foods on Tuesday and couldn't find any chicken nuggets at all
  13. Mariann, First off I need to thank you for being such a great help to everybody here. You are always quick to respond to my posts no matter which folder I have posted in and I have gotten so much information from you. Everytime I start reading something new I don't even have to scroll to the bottom to see it's from you. Thank you from the bottom of my heart for helping me as much as you have so far and taking away 90% of my concerns As for your question - yes I am going to send in a sack lunch. Nicholas is a picky eater, but the school has several items to choose form daily so if he were able to eat them he would find something he liked but I thought without a celiac disease diagnosis I had no leg to stand on. I just bought him an insulated lunchbag with a matching backpack from LL Bean and I found a 10 ounce insulated non-breakable bowl so I can send in gluten-free mac and cheese and gluten-free spaghetti so he's not reduced to PB&J on gluten-free bread every day That made my day. I wanted to ask them if they could accomidate him every friday though for Pizza day - with a gluten free pizza - would the school have to do that if I ask - or are they only required to provide a gluten-free meal of their choosing - weather it's something my son would like or not? I would love to ask for gluten-free lunches, but I have visions of them trying to feed my 6 yo a grilled chicken breast on lettuce or something else totally inappropriate for my child's taste. I am just not looking forward to this with them. I think it's going to be a battle which I don't want to have to do. I had to battle them last year just to get them to provide a car seat for him during the summer session when he had to ride on the big bus (He's a 28 lbs 6 yo - the size of most 2 yo's During the school year he was riding on a small bus with all of the other Pre-School Disabled kids in car seats and they wanted to put him on the big bus without a car seat!!!) There's already a bad taste in my mouth from that battel so I just am trying to brace myself fo rthis one too. What has everybody else done for theirt kids for lunches? What kind of lunches are the kids who get gluten-free meals served at school? Maryanne
  14. Does anybody have a sample letter or tips on how I notify the school about Nicholas' gluten-free Diet? We're finishing up the tests and he will start the diet next week. He is Special Needs with an IEP so he goes to school 11 out of 12 months of the year(No school in August for him) We have an IEP meeting next week and I need to know if his gluten-free diet should be included in his IEP somehow. He does not have the celiac disease diagnosis because his biopsy was negative, he will get it after a 1 year FG diet with improvement of his symptoms though. I am asking the Dr for a letter stating that his gluten-free diet is medically necessary because I know otherwise I'll probably have a tough time with the school. What else do I need to do to orepare for this. THANKS! Maryanne