This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Well I'm still doing okay on gluten. However, I'm also still having reactions to something, and dairy is my top suspect. On Friday I ate a few small pieces of milk chocolate, and had the same gas reactions a few hours later (it feels like extra gas is getting produced in my intestines, which causes mucus to be produced as well, probably as a protective measure). But on Sunday night I had three slices of cheese pizza and only had a small reaction, which could have been from all the fat. So maybe it is lactose after all. I think I'm going to skip the lactose/whey/casein for a week or so, and then try some cheese again. If that goes well, I'll move on from there.
Oh, and I did find a soy cheese at Whole Foods which doesn't have casein. I think it's called Vegan Gourmet? I haven't tried it yet since I'm still wary of soy.
The results from my celiac panel blood test came back negative, but I decided to try the gluten free diet anyway. I went completely gluten free for 2 months, and I did feel better. However, at the end of those two months (a week ago), I started eating gluten again to test whether or not it was the lack of gluten that was helping me. I have been eating cream of wheat, wheat crackers, whole wheat english muffins, and french bread... at least 2 items per day.
For the first two days I felt fine, no changes. Then I ate a small sub sandwich with only turkey, lettuce, tomato, onion, and a little vinegar, followed by a slice of boysenberry pie a little later. A short while after eating the pie, the gas symptoms began (gurgling in my intestines, and later gas and mucus instead of stool coming out). I don't think it was the gluten that started this... is there usually dairy in fresh bread or in pie crusts? I have been dairy free for many months, but I wonder if maybe I was being more diligent about it when I was avoiding gluten as well (since I had to read all the labels anyway). I am also mostly off of soy and haven't had any in the past week. I had some symptoms that day and the next, and then for the past few days I've been fine again (still eating wheat). So it seems that gluten is not giving me problems.
I know before I started the gluten free diet, I would react after eating foods that did not have dairy in them. Maybe my intestines were just irritated in general? Also, just before starting the gluten free diet I also started taking some probiotics. I suspect that they may have something to do with feeling better.
One thing I would like to do is test whether it is the lactose or casein that may be causing me problems. I have been avoiding both. From what I understand, hard cheeses like cheddar have little or no lactose in them? Also, yogurt is generally easier to digest than some other dairy sources like milk? Can anyone suggest a plan for testing lactose/casein intolerance?
I think this is my first real success at baking gluten free. I used a mix, so it was very easy to do. It was the Gluten Free Pantry muffin mix. I followed the directions on the box except for the following substitutions:
-Replaced butter with 2 mashed bananas
-Used egg beaters instead of eggs
-Used unsweetened almond milk instead of milk
-Added 1/4 cup Enjoy Life chocolate chips just before pouring into muffin tins
I came out with 16 muffins. Could have been a little less if I had made them bigger, but the size is fine.
These are really yummy! The banana/chocolate chip combo is delicious, and without the butter they are much healthier. The banana keeps them moist, and the chocolate chips are nice and gooey when the muffins are warm (fresh out of the oven or heated a little in the microwave).
I used to eat tofu and other stuff made from soy all the time before my intestinal issues started (I was a vegetarian). Once my problems started getting worse, I began to look at food intolerances. I noticed that stuff with soy protein in it (like veggie burgers and soy protein powder) quickly gave me migraines and made me lethargic. I think that soy may have been giving me gas too, but it seemed like everything did that. So I don't know if I'm actually intolerant to soy or if it just gives me migraines in large amounts. At some point I'd like to try forms of soy that may be more tolerable than others.
Thanks! From searching it looks like the small sizes of altoids are not gluten-free, but show wheat clearly in the ingredient list. As far as I can tell, the larger sizes are gluten-free (unless of course wheat shows up in the ingredient list).
For those of you who are sensitive to soy, are there any forms of soy which are more tolerable than others? Tofu, soy milk, soy sauce, etc? I know I react to concentrated soy protein, but seem to do okay with items with soy lecithin in them. I'm wondering if maybe I can tolerate any other forms of soy as well.
The ear thing sounds very familiar to me. I have been getting it for years... my hearing can get muffled in one or both ears. I always thought it was due to ear wax or changes in weather pressure. I never thought to consider that it might be a reaction to food! I will have to check what I have eaten recently the next time it happens.
If you have a Jamba Juice near you, around October/November/December, they have a pumpkin smoothie. It tastes like pumpkin pie in a glass. Unfortunately, I think it is made with dairy, so it's out for me this year. But it's so easy to make yourself! The easy way would be to mix up pumpkin pie mix, ice, and your milk of choice in a blender. I tend to use straight pumpkin and add my own pumpkin pie spices and stevia for sweetener.
It's been about a month and a half for me, and next weekend I'm going to start eating gluten. My bloodwork came back negative, so this is the true test for me. I have been feeling better, but I need to test it to make sure it is the lack of gluten and not something else in my diet or life that is making me feel better. The first couple of weeks were very up and down for me... feeling better was gradual. And I'm still not great yet, but better than I was.
I love pumpkin, so I make a lot of stuff with it - pumpkin pie, pumpkin muffins, pumpkin pancakes, pumpkin smoothies, and recently I tried some pumpkin fluff thingies made with pudding mix and cool whip (which were wonderful until I realized the casein in the cool whip probably wasn't the best for me). Back when I ate ice cream, I would use the canned pumpkin pie mix as an ice cream topper... yum! I'm always on the lookout for new ways to use pumpkin.