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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

F.deSales

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  1. Hi. Does anyone know of a margarine type product that is soy-free, dairy-free, gluten-free, preservative-free, hydrogenated oils-free and sea salt-free? Maybe something made with canola oil. I saw something called Pure sunflower sold in UK. Thanks. F.deSales
  2. Help! Pep Talk Needed!

    Thank you for your pep talk and sending me some blessings! I need to take to heart my quote from my favorite saint (see below) and like you said remember He who suffered so much for us all that we might be saved! I will keep you in my prayers. And when I am feeling "the prep work" I will send extra prayers your way! It looks like you will be having yours one day before me. Do let me know how things went and how you are doing. I read some of your other posts and it seems like you have some medical crosses to carry like me. God Bless, Angie "Do not fear what may happen tomorrow. The same loving Father who cares for you today will care for you tomorrow and everyday. Either he will shield you from suffering or He will give you unfailing strength to bear it. Be at peace then and put aside all anxious thoughts and imaginings" St. F. de Sales
  3. Hi Elcamion! I have complete IgA deficiency and allergic to lactose/casein. I am currently being tested for ceilac sprue. My doctor told me that there was a NEW blood test that was for people with IgA deficency its called: Tissue Transglutaminase. Do a google search to learn more about the test. If your doctor has not ordered if ask him too. I will be going to the lab today to have that test done. My doctor also wants to do a EGD and a colonoscopy which I will have in two weeks. I have nerological problems also and my nerologist told him to do a biopsy. I have been gluten-free for 7 weeks and have been feeling better but now I have to go back on gluten to make sure the test is accurate. I would love to hear if you had the Tissue Trans. test and what the results were. I hope you don't end up like me, I started with low IgA and became total. I am in the 3-5% of IgA-ers who are severely immune compromised, multiple related illnesses plus allergic to blood other than my own. Let me know what you results were if you don't mind. Best wishes to you. Angie
  4. I have been gluten free for 7 weeks. Had my first normal bm in months today. Went to the doc today said I need to have another EGD/colon done . This time I have to eat gluten for two weeks staring tomorrow to make sure the test is accurate. I am trying to get the courage to do so. I can't do the regular blood test because I have complete Iga deficiency. When I think of the pain and hours I will spend in the "powder room" I get really scared. I am getting very depressed too. I am just starting to feel a bit better and now it is back to a living nightmare. My hubby is going to make sure I do as I am told because last time didn't and the procedure was canceled. So, I guess I am just asking for pep talks and prayers. I know that you all have probably have gone though this also and I would appreciate some "I lived to tell about it" Should I eat low gluten stuff or a little or what? Thanks. This group is a blessing. A~
  5. I have been gluten free for 7 weeks. Had my first normal bm in months today. Went to the doc today said I need to have another EGD/colon done . This time I have to eat gluten for two weeks staring tomorrow to make sure the test in accurate. I am trying to get the courage to do so. I can't do the regular blood test because I have complete Iga deficiency. When I think of the pain and hours I will spend in the "powder room" I get really scared. I am getting very depressed too. I am just starting to feel a bit better and now it is back to a living nightmare. My hubby is going to make sure I do as I am told because last time didn't and the procedure was canceled. So, I guess I am just asking for pep talks and prayers. I know that you all have probably have gone though this also and I would appreciate some "I lived to tell about it" Thanks. This group is a blessing. A~
  6. Hi I am also new to all of this but I am not new to arthritis. I have rheumatoid (with a false negative), reactive, and osteoporosis for many years! There is a connection to RA and celiac. Just because your blood work came back neg does not mean you don't have it or some form of it. You need to go on a Gluten-free Casein-free diet for the rest of your life. I would recommend staying away from MSG, preservatives ... have you had an allergy test lately? Food Allergies do cause joint and muscular pain! If you have a form of arthritis, the pain could mean joint damage. I don't mean to scare you but I don't want you to suffer as much as I am. I can not take any medications that have sulfa/sulfates which is just about all meds ... so I have to eat as pure as possible and now with having Ceilac I have to be EXTRA careful. I have been trying to be gluten-free for a month now. But am still in pain. I have to go back to get more tests and they say I will have to eat gluten again before the do the biopsy again. I have complete Iga deficiency which makes all this a challenge. If you live in the Northern Virginia area I know of a GREAT Dr. that will help you out. She saved my life. It will help. When I started eating pure (before the Celiac) I was doing better. I was able to cut down on my pain medication. Do you have any neurological symptoms? Hang in there. There is a lot of help here that docs might not give.
  7. Msg

    STAY AWAY FROM MSG!!! It is bad stuff. I am new to being gluten-free but have been avoiding MSG for 10 years now because of my rheumatoid arthritis & reactive arthritis. It destroys your joints and messes with your nerves. Now I am learning that there is a connection to celiac and rheumatoid arthritis. If I ever eat it, I am in GREAT pain for days! My pain medication does not even help. In stuff that I have read it messes with kids who have Autism.
  8. Hi all. I am trying to detox my kitchen from cross contamination. I am replacing a lot of things and I was wondering if I need to get rid of my microwave or my oven. My family has agreed to set up a mini kitchen in the basement but I want to know if that should include a new microwave and/or a stove - toaster oven. I am VERY sensitive. I have been trying to be gluten-free for one month now and I am still sick. THANKS!! A~
  9. OK, plug your ears ... I MISS EATING OUT! I MISS SAYING TO MY FAMILY HEY I DON'T FEEL LIKE COOKING LETS EAT OUT!!!!!!! With all the luck I have had with eating out and my other allergies, I think my eating out days are over. Thanks for posting and letting me feel sorry for myself!
  10. Thanks Sheryll. I did not even think of using paper or plastic plates! I am very sensitive and doing that with gluten laden stuff is a great idea. I have a ton ot other food intolerances. I go soon to be retested since I have gotten so bad. They want to make sure that I have not developed any new ones. Thanks for taking the time to write!
  11. Thanks for your advice! I plan on making the nice guy friendly finished basement the gluten zone for my hubby and son. All meals I cook will be gluten free. I can't see making them live with out Oreos!
  12. I freaked out and bought all new stuff. I even gave away my beloved bread machine. We charged everything too. We will selling more stuff on ebay to pay for this extra pure life style. The family is agreeing to help me out. Hubby works at home, his office is in the basement and that is where we will be moving the gluten poison. Then we are going to get an island for the kitchen to put the toaster on becsue of the toxic mess it makes on my counter-top. I think CC is the reason that I am having troubles healing. I have lost so much weight and the doc is getting worried. A BIG thank you for your support and advice! I would be a mess if I did not have this support!
  13. A million thanks for your pep talk! I have spent many nights crying in my hubby's arms while he ate Oreo's ;o) Your bf sounds like a keeper! This is tough on our loved ones too. I know that it will take time but sometimes when you think I will never be able to eat ... ya get down. I have to remember that if I don't I will not live long. I am being to sent to a medical collage UVA and they will help me with the proper nutritionist. Thanks again.
  14. I had to laugh at your comment about the good brownies ... I need to find something that does not make me gag! I have tried cookies, "chocolate mousse", cereal and raisin buns ... gag! The worst was corn pasta! I will have to check what older kids eat, I have a 15yrld son. He does not eat to many sweets but he loves pizza, pancakes and Ritz crackers ... which make a gluten mess! I have not gone out much since all this. I still feel like a cheese grater is partying in my insides. I doubt I will set foot in a restaurant for a long time! I hope that when we both are feeling better we will have the courage to eat but eat healthy! I hope you are feeling well today and tomorrow! Thank you for taking the time to reply to this scared Glutenite! :huh:
  15. Thank you for sharing what you have gone through. I guess I need to go back to the pure basics. I am already eating some organic I guess I will have to do more. I will try to get my family to work with me on keeping the kitchen gluten-free. Where can I find kid snacks. If I can find some good ones I know that they won't mind. Right now I feel as the whole world does not get what this does to us. How do you handle going out to eat. I am depressed that I might have to give up my nights out with the girls. Last time we had one I go sick. Thought I ordered well, LongHorn plain steak and a plain sweet potato ... Thanks again for taking the time to respond. Angie