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Virgie

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About Virgie

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  1. Thank you so much for posting this. I had tried to ask a similiar question on a different board but didn't word it right because I didn't quite get the response I was looking for. But at the present time my 13 year old celiac daughter is tired of alot of the gluten free foods and so wishes that she could just once have a regular pizza or McDonalds chicken strips, etc. She wouldn't cheat and she knows that she has to be gluten free and has done really well with the gluten free diet but like you said I think we are just in a rut. And it is true that now that the kids are home from school there is more cooking involved and I am at times at a loss as to what to make. Thanks again for asking this question. I think we all sometimes have this problem. Even before gluten free I would have trouble of what to make tonight that everyone likes and is easy and fast, etc. etc. Virgie son 18 UC,EE, IBS, Asthma daughter 13 Celiac Disease dx 9/07 & UC dx 1/08
  2. Hi! Not trying to scare anyone here but my 13 year old daughter was dx in 9/07 with Celiac and did not seem to be responding to the diet. We were very strict & watched cross contamination & even changed the cat's food but she still had symptoms. Last month we visited a dietian at Mayo and had blood draws & stool testing done & was recommended to go dairy free for awhile to see if that helped. It still did not help as she still had lots of diarreha. So back to Mayo on Monday the 28th for endoscopy & colonoscopy. Well good news bad news. Endo showed real improvement so the diet is working, bad news is that she has Ulcerative Colitis. Her older brother has this too so maybe no big suprise there. So I guess moral of this story is that sometimes it could be something else and not it is because of Celiac & that they have been accidentally glutened. Even her GI thought that maybe she had refractory celiac and wasn't thinking about UC. So it did kind of surprise him too. I guess you never know sometimes but if you as a parent feel that something still is not right keep searching!!! Take care all!! Virgie son 18 UC, EE, IBS, Asthma daughter 13 Celiac & UC
  3. Thanks for posting this. It is true that everyone can look differently but after looking at this drawing I now realize that my daughter did have that type of belly before dx. And I just thought it was baby fat and that she would stretch out during puberty and lose the belly then. Never gave it a thought that was how someone with Celiac could look. Thanks again. Virgie son 18 UC,EE, IBS daughter 13 dx Celiac 9/07
  4. Hi! I am still trying to figure out why daugher is feeling bad. She has been totally gluten free since September 07 and now dairy free since mid December. I changed everything in the kitchen so got all new utensils, toasters, strainers, etc. We've looked at lotion, shampoos, etc. So now comes my truly paranoid question - If the rest of the family is eating gluten and we forget and touch her - like hold her hand after eating a sandwich or kiss her on the cheek. Or if my husband drinks beer and hugs her is there any chance at all that she could get glutened from something like this. Or am I going wacky with paranoia here !! Oh & yes I took everyones advice & I have also changed the cats food to gluten free too. So any thoughts for this wacked out Mom?? Virgie son 18 UCD,EE, IBS daugher 13 dx Celiac 9/07 Ttg 53.1 still
  5. Thanks everyone for all the advise. I am now looking into the various brands. The nearest vet has some called Feline ZD which costs $18.33 for a 4lb bag. Have also looked into California Natural & the Innova Evo brands. I will definitely look into the Friskies too as I do have coupons for that brand. Thanks again everyone. She is still get glutened from something so it could possibly be from the cat. Appreciate all the advice. Virgie
  6. Hi! Finally heard back about daughters blood & stool tests. Stool tests were negative. Ttg was still elevated at 53.1. So she must still be getting gluten. We are very strict with her diet, she doesn't eat any food outside the houses without asking first, she reads labels like crazy, have checked shampoos, chapstick, lotions, etc. So now what?? I did post a question about our cat the other day so I will switch to a gluten free cat food. Although she never feeds the cat but still could be getting CC from it maybe?? She still is bleeding when going to the bathroom. Any ideas. Thanks. Virgie daughter 13 dx Celiac 9/2007 son 18 UC,EE, IBS
  7. What do you feed your cat then? Thanks for any info. Virgie
  8. My husband thinks daughter could be getting glutened from the cat because the cat's food has wheat in it and then she pets the cat. Do you think this is so? He wants to get rid of the cat but the kids love the cat and it would be very hard on them. He doesn't want to buy gluten free cat food either. If the cat is making my daughter sick then yes I would want to get rid of it but not unless I know for sure. Cause we all love the cat so much. Virgie daughter 13 dx Celiac 9/07 son 18 UC,EE, IBS
  9. Hi! We have a appt. at Mayo with a dietian on the 19th and will also be doing bloodwork. Just wondering what kind of questions that we should be asking the dietian. At the moment my daughter is not doing so good. 8-10 bloody stools a day. She has been gluten free since 9/07. She felt ok for about 3 weeks and then bam just started feeling bad. She hasn't been cheating and is a wonderful label reader. Also I replaced toasters, pans, spatulas, etc. so the kitchen should be good too. She packs a lunch for school so she doesn't get any gluten there either. So I am hoping the dietian can shed some light. We also have to submit some stool samples locally because they want to check for infections. Any help on what I should ask at the appt. would be appreciated. Thanks. Virgie daughter 13 Celiac dx 9/07 Gluten free since then. son 18 UC, EE, IBS, Asthma
  10. Hi! We have a appt. at Mayo with a dietian on the 19th and will also be doing bloodwork. Just wondering what kind of questions that we should be asking the dietian. At the moment my daughter is not doing so good. 8-10 bloody stools a day. She has been gluten free since 9/07. She felt ok for about 3 weeks and then bam just started feeling bad. She hasn't been cheating and is a wonderful label reader. Also I replaced toasters, pans, spatulas, etc. so the kitchen should be good too. She packs a lunch for school so she doesn't get any gluten there either. So I am hoping the dietian can shed some light. We also have to submit some stool samples locally because they want to check for infections. Any help on what I should ask at the appt. would be appreciated. Thanks. Virgie daughter 13 Celiac dx 9/07 Gluten free since then. son 18 UC, EE, IBS, Asthma
  11. "I feel like I was the drill sargent in the kitchen - "No, you can't use that. Get a clean one"; "You have to use an unopened stick of butter"; "You can't have that one, it's for the kids" Then, when the buffet line was ready, I announced to the crowd of 20 that my kids were going first in case the rest of them screwed everything up! " That is exactly how I felt - like a drill sargent or something. I hope I don't feel like this at every holiday!! My husbands side was really pretty good. Now my Mother (I love her honestly) still thinks it can't be that bad if she eats a little bit or if she uses the same cutting board, etc. She also thinks that my daughter won't have to do this for life just for a couple of years. And I can't let the doctors talk me into everything. Sigh!! Time for more education Iguess. We'll see how Christmas goes next. virgie
  12. Hi again! Well we did make it through the holiday. I made my daugher a gluten free pumpkin pie that tasted fairly good. She ate it anyway. And my hubbys brother, sister-in-law & family were excellent always asking my daughter about what she could eat and asked if she wanted to cut up the celery, and prepare other foods if she was worried about cross contamination & such. So that day went pretty good. Sunday was another story. Went out to eat and she just didn't trust eating anything so she just drank some milk. And something still probably didn't sit right with her because she didn't feel good and had the worst smelling gas ever. We really hate eating out. It just seems so hard. She has an appt. at Mayo next month & I would also like to see if she could get in to see a dietian as I am not sure she is geting all the vitamins she needs and such. Always something. Next Monday I will have surgery on my hand. I have had carpal tunnel for 18 years and did have my right hand done 9 years ago but have been putting off the left hand. And I hope everything goes ok that morning because my son hates Monday mornings. Well mornings in general are awful for him. He usually has nausea, fatigue, & dizziness. So I hope next week he won't have that. He has been under alot of stress with school as he is taking both college & High School courses. And he missed about 20 days of school last quarter which didn't make it any easier. So I have been feeling a little stressed too and haven't been on as much lately. I have been thinking about you & your family and hoping that the diet change has helped your kiddo. Hopefully she doesn't find it as hard as my daughter does. Mine does really good with reading labels & that sort of thing. For her it is more emotional. She hates fast food commercials and yells at the TV. But she is campaigning to make people more aware of Celiac so I am proud of her for handling that so well. And she doesn't cheat which I am glad that she has no desire to cheat at all. Well, I have to see if my kids are feeling better and ready to go to school. Hate mornings. And it is the same on the weekends too so its not that the kids hate school or anything like that. In fact daughter got on the A Honor Roll. She is a smartie (doesn't get it from me). Take care & write when you can. I am anxious to know how everything is going with you. Virgie
  13. Hi! I am so anxious about my daughter and eating during the Thanksgiving holiday. This is her first holiday as gluten free. We have potluck one day & eat at a restaurant the next day (I hate eating out now). She is 13 and has been doing very well with shopping, reading labels, does not cheat, etc. So I am not worried that she will sneak off and have pie or anything like that. What I worry more about is cross contamination and what other people bring to the potluck. I also don't want her to feel like she can't eat anything. And she does feel that way when we eat out. Eating out is tough!! Hopefully it isn't where you live but where we live it is hard to even find a place that has even heard of gluten. We really feel the need to educate people around here. So am I the only crazy, over protective Mom here??!!! Happy Thanksgiving all!!! Virgie son 18 UC, EE, IBS, asthma & daughter 13 Celiac
  14. ARGH!! Sometimes I just hate going to the doctor. My 15 year old sons doctor one time gave him a 15 minute lecture about how he should have some drive and go to school. At the time my son was suffering from sleep problems due to Prednisone and he was taking a medication for his Ulcerative Colitis that was making him worse (he was having 15-20 episodes of diarreha a day). Oh yeah, doctor really easy to go to school when you are feeling like that. And that medication that was making him worse I had printed off information that said my son could be allergic to it and the doctor was like "no not possible". Yes it was possible because the minute he came off of it he got better. So I totally understand your frustration with your doctor. You could find some information and print it off to give to her so that she doesn't offer some other patient this wrong information. As for your pots and pans if they have scratches in them yes do replace them. Otherwise you do risk cross contamination with gluten being in those scratches. And especially your pasta strainer. Get a new one of those. And your wooden spoons too. Also don't forget about your toaster. I even bought another griddle so I could have one for my daughter and one for the rest of the family. And when it comes to the shampoo and soaps I would look into gluten free types. After all how many times do you touch your mouth after washing your hands. Better safe than sorry. Sorry that your co-workers taunted you with donuts. How mean ! What people don't get about gluten free is that it isn't just some fad diet to lose weight. You are gluten free because your health depends on it. Would these people taunt a diabetic with food that they shouldn't have?? By the way to help your donut issue I bought some Ener-G brand donut holes and they were pretty good. Also I bought this pan called a Pancake Puff. http://www.pancakepuff.com/?cid=390224 and they almost taste like a donut. My daughter loves them. I just use a gluten free pancake mix and then dust them with cinnamon sugar. Yum ! I wish you success with the gluten free lifestyle. Virgie son 18 UC/EE, IBS, Asthma , daughter 13 Celiac Disease dx 9/07
  15. Can I Vent?

    Hi!! My daughter is 13 with Celiac and lives in Minnesota. But yeah she feels like she is the only one around here that has it too. Virgie