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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About frec

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    • Location Oregon

    frec's Activity

    1. frec added a post in a topic Favorite Gluten Free Treats?   

      I have trouble with corn too, but only corn as a main ingredient. I can do corn starch or corn syrup. I like Snapeas, guacamole, refried beans, hummus, nuts, and anything with peanut butter on it.
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    2. frec added a post in a topic Lumbar Facet Arthritis   

      I've had back problems for six years, starting with a herniated lumbar disk that didn't improve and then turning into facet joint problems with SI joint instability. The only thing that really improved things was prolotherapy. You might want to read up on it--just google prolotherapy. There isn't enough research on it--drug companies don't fund research on treatments that don't involve nice expensive drugs. Prolotherapy uses sugar solutions or sometimes adds your own platelets. It deliberately irritates the injured joint to stimulate a focused immune response and develop scar tissue to strengthen the area. After several facet joint and SI joint shots I now can sit again for the first time since 2002.
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    3. frec added a post in a topic New Food Issues   

      Could he be allergic to some environmental allergen? Since you are in a cold climate now with the furnace going dust or dust mites seem the most likely. Or is there a food you didn't eat much of in the Philippines and now are eating more in Canada?

      Hope he feels better soon.
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    4. frec added a post in a topic Celiac And Learning Disability Symptoms   

      I'm an elementary teacher. I've never read anything connecting learning disabilities and celiac disease. But a lot of people on this forum mention feeling fuzzy headed when they eat gluten. It can also cause fatigue, depression, anxiety, sleep problems, etc. I don't know what your son's symptoms were before he went on the diet, but I would think that spending kindergarten and first grade feeling lousy--even just frequent stomach aches or diarrhea--might have slowed his learning down a bit. Of course, now that he is on the diet and feeling better perhaps he'll be able to retain information better and catch up?

      Good luck. It sounds as if you at least have a nice concerned teacher.
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    5. frec added a topic in Celiac Disease - Related Disorders & Research   

      Treating Osteoporosis
      I have osteoporosis--lots of celiacs do--and I have been trying to find information on options for treatment. I don't like the sounds of the bisphosphonates but that is often all the doctors offer. Here is some really excellent information, including a calculator you can use to estimate your risk if you know your T score. The site is written by a medical doctor who teaches at University of Washington.
      • 4 replies
    6. frec added a post in a topic Questions For All Those Who Have Ever Had Fibromyalgia   

      I also developed fibromyalgia six years after being diagnosed with celiac disease. During those years I had a back injury, I was the sole caregiver for my chronically ill mother, and three members of my family died. Stress can trigger a lot of diseases, and I think it set off my fibromyalgia. I am very fortunate--I work full time and I am fairly active--but I think that is because of the gluten-free diet. It saved me from being worse.

      The book sounds interesting--thanks.
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    7. frec added a post in a topic Good Dietician In Portland, Oregon Area   

      Sorry--I didn't know anyone was writing on this thread until today. I saw Nicole in October and I remember I did have quite a time communicating with her office. Once she and I got on email we did fine. I was diagnosed 6 years ago and went to her to consult on why my antibody levels were still positive, so the focus of my visit was a bit different. She was really well informed on the really little known sources of gluten. She had information on websites, support groups, local stores, and mail/online gluten-free companies. She had product samples, and some recent info on labelling laws. I don't know what she would tell you about restaurants--I avoid them and did not ask for help in that area.

      There is a gluten free pizza place over near Candyland--I don't know anything about it but drove by it the other day. There is also another gluten-free bakery on SE 17th just south of Tacoma called A Piece of Cake.

      Hope your appointment goes well. By the way, Trader Joe's has a lot of good alternative food products, especially non-dairy stuff. I also like New Seasons and Whole Foods.
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    8. frec added a post in a topic Need Help Please.   

      Are you still eating dairy? A lot of people with celiac disease lose the ability to digest dairy because the enzymes are produced in the (healing ) villi in the small intestine. Some people, especially older people, never get the enzymes for dairy back. I was diagnosed at 46 and never could eat dairy again.

      Are you taking a probiotic? Acidophilus of some kind? (Make sure it is dairy free though.) It really helps with general digestive heath and healing.

      Even though you have been healing for six months your digestion might still be kind of puny, even for food that are OK for you. I had to eat kind of unambitious foods for the first year and go easy on exciting things like, oh, onions, or beans, or whatever.

      You might want to search this forum for a good doctor in your area, or post a question about it. Good luck, and I hope you feel better.
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    9. frec added a post in a topic Keratosis Pilaris   

      The gluten-free forum scores again! After reading this thread I did a bit more research and by golly, I think you've diagnosed the mystery rash I've had for 8 months. (My dermatologist just said, oh, yeah, a rash...that'll be $200) Here I've been changing soaps and lotions and worrying about a Candida flareup and just below the radar glutenings (though that still may be a factor)... Thank you.

      Honestly, I despair about doctors sometimes.
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    10. frec added a post in a topic Snow ?   

      On Sunday during the worst of the storm an overloaded tree split and came down on my classroom. The roof is leaking like crazy. Fortunately our building engineer was there (because of the power outage--the man is a saint.) and managed to tarp and board everything up. He also moved all my teacher books which were, of course, directly under the leak. I hiked up to check on things today--what a mess--garbage cans catching water everywhere, carpet torn up, and all my files and supplies scattered. I know what I'll be doing to celebrate the New Year.
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    11. frec added a post in a topic Oh My God I Feel So Bad, Stress, Sad, Angry, Etc   

      I want to second what jlinc said--start taking vitamin D3. Most celiacs are short on vitamin D--as a matter of fact they are finding that a lot of people are. It helps depression--really helped mine-- and your immune system. And--especially if you are female--start taking calcium and magnesium. Celiacs run short on those too.

      Hang on. I was kind of relieved to find out I had celiac disease, that there was a reason for the problems I was having, and that I could improve things. It sure would have been nice to skip twenty years of sprinting to public restrooms though...Good luck with your job search.
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    12. frec added a post in a topic What Do You Do When You Receive Cookies And Cakes As Gifts?   

      I'm a teacher and I've had the same problem for years. I always saved treats to "eat after school" and took things home to my neighbors. But this year I have a student with serious nut allergies. We've had to really be careful. I keep an Epipen in the room. She can't even eat next to anyone who has nuts. We have to scrub everyone's desks after lunch, etc. Anyway, I don't usually make a big fuss about my food problems but this year I told the class about it right away in the fall, just to keep the girl from feeling like the only "weird" person. Her mother put a Nut Free Zone on her desk so I put the celiac symbol on mine. Now I have a class that is quite educated about food labeling and--nobody gives me cupcakes anymore! (My allergic girl likes to give me fruit roll ups though.) I think I'll be more forthright about it in the future.

      A parent came in last week and asked me exactly what brand of chocolate I could eat. She said her son knew I liked chocolate and was determined to get me some, but she wanted to check first. I was really touched.
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    13. frec added a post in a topic I Really Wanted To Make A Mini Bio To See If Someone Would Relate   

      Make sure you take some vitamin D3. A lot of people are deficient in vitamin D, especially celiacs, and it helps with depression. It really helped mine. It also helps your immune system. Check out for some information if you'd like.

      It is kind of hard giving up everything all at once. I still eat rice bread toast with fruit spread as my big excitement. And dark chocolate--gotta have a vice. But really, the diet we have to be on is what's recommended to help prevent obesity, diabetes, cancer--it's the diet everyone should be eating.
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    14. frec added a post in a topic Still Having Leg Pains, When Will They Go Away?   

      I don't take a multivitamin because I can never find the combination I want--everything is separate. I take BCDK sometimes A and calcium/magnesium. You have to be awfully careful about reading labels. You might google multivitamin on this forum and see what people have mentioned. There is a gluten free vitamin section on this website, over on the left margin.

      You can also find doctor information by googling on this forum, or post a new thread saying doctor in Birmingham in the title.
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    15. frec added a post in a topic Hair Color   

      I'm a redhead! But the other celiacs I know are 2 blondes and 3 brunettes. It would be interesting to know if there's a correlation.
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