szelisk posted a topic in Celiac Disease - Coping WithI seem to be having the big "D" everyday for the past 6 weeks. (At least 4x a day) I know one of my problems is my attitude about this disease. I work with the medical profession and I keep hearing there is nothing to worry about, no furter follow up is needed. So I guess I stopped thinking about this as a disease, instead just a minor problem which I should be able to overcome. Guess what, I haven't been too successful. I'm sitting her feeling sorry for myself (I know get off the pitty potty), wondering what I did to deserve this. You see I'm the only one out of my siblings who has this. My parents divorced when my Mom was pregant with me (he was abusive and my mom didn't tell him). I know I should be grateful to have the celiac instead of the heart disease my siblings have. But I feel so alone. I cannot talk with my husband, or family without getting lectured about becoming a vegitarian to stay away from the gluten and lose some weight. I find myself crying most night's when my family is asleep and blaming it on a movie if someone finds me. If I had one wish it would to become my old self, happy, self confident and healthy.
At least someone takes you seriously. I was diagnosed then dropped by the dr's in chicago. I couldn't even get an appt with a dietician. Blue Cross Blue Shield wouldn't cover it, if I was a diabetic they would, but not for celiac. Whenever I see a doctor and tell them I have celiac, they reply like its nothing. I have even had some tell me its nothing more than an allergy. This has made it very hard for me. I hate to say it, but I haven't been as good to with my diet. I am so tired of hearing "what is it", "where did you come up with that one", or "its just an allergy take some benadryl (sorry about the spelling).