This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I have been eating all of the Pebble products for years and have never, ever been glutened. In the beginning of my diet about 4.5 years ago I would question everything I ate with the slightest sign of intestinal distress. I trusted nothing new. I even cut out certain gluten free foods because I THOUGHT they had made me sick - really missing out over the years. It might be the high sugar content or the dyes in it, but not gluten. I cannot have a DROP gluten, and I know they are safe in that area. Please don't get me wrong, I'm not trying to question your reaction, I just hate to see you blame the wrong source. I also don't want others to read this and be afraid of Pebbles. Not all foods work for all people, but it is not always gluten that is the cause. - Holly
Rice Krispy Treats are absolutely NOT gluten-free, so be careful. Sometimes you may not react, but damage is still being done to your guts. There are so many yummy cakes - that taste just like real cake. Cherrybrook kitchen (http://www.cherrybrookkitchen.com/products/gluten-free.php) is a good example. It bakes, looks, tastes just like real cake. How about Betty Crocker: http://www.bettycrocker.com/products/gluten-free-baking-mixes - you can probably buy those right in the regular stor. Don't ake away your mom's good time - just find an alternative:) Happy birthday!!!
You are not crazy! It's totally true. I tried the same thing last summer with sugar (obviously including chocolate). OMG!!! Same thing - first day was not so bad, but by the third day my head was pounding so hard I had to eat some. It was a violent experience. I think about my need to quit almost daily, but feel helpless. I guess it is like any detox. We would need to fight through the hardest days and come out the other side.
How about raisins, fruit roll-ups, popcorn, rice chex/trail mix, peanut butter/jelly on gluten-free rice cakes, popcicles, apples/carmel sauce, all fresh fruit...that's all I can think of right now. Don't forget marshmallows, chocolate chips, sunflower seeds, gluten-free icecream, and all kinds of gluten-free cookies you can bake at home: http://www.cookies-in-motion.com/Gluten-Fr....html#chocolate.
I know they probably want to just go to the store and by easy snacks, but you might have to pitch in with the prep. This type of stuff is healthier!
My advice is this: take the advice of people who have been there (as long as it is not harmful) because doctors just don't have a clue. I was on Prozac for 10 years. We all have many different issues that play into our overall health. For me it was an allergy to mold, thyroid, and last but NOT least, gluten. Once each of these issues were uncovered, I bagan to regain my helath and to answer your question, yes, I have regained my life. I work from home, and don't feel comfortable going out into the world yet. I am 40 and been on the road to recovery for 8 years. First, I discovered an undiagnosed thyroid issue, then I moved out of a moldy house, and 3 years ago discovered the icing on the gluten-free cake - no more gluten for me means a new life! Now my 18-year-old is also on the road to good health after he also went on the diet. Life is a journey and not GOOD answers come quickly and healing doesn't happen overnight. It took me a long time, but it was worth it. No, I never eat out, but I love to cook and my hubby doesn't care as long as I a cook a yummy meal. Someday maybe I will, but for right now, I'm not ready. Cross contamination (CC) is very easy to let happen. Sponges, tephlon, counter tops, and kissing (my husband had to switch to gluten-free beer). I am so sensitive that I have to be careful of soaps, shampoo, etc... You can google anything you use and find an answer somewhere out there in cybersapce - especially on this board. But be careful, as old info can be out-dated. My most debilitating problem with gluten: fear and anxiety. I had severe panic attack everyday. Every time I ate my whole stomach area felt like a bundle of nerves that just reached up thorugh my chest and into my brain. Now, I am medication free and anxiety free! You can do it too, if you just have faith that you deserve to be healthy and happy and that there are answers. However, you will have to find them - doctors do not have them. I like Rice Guy's vitamin advice - it is very important to build your body's defenses back up. Learn how to manage your diet. Read everything you can find on the subject and connect you situation with other's stories and figure out how they are managing their situation. Find a support group - that will help also. Hang in there.
I pretty much only eat whole foods - I do eat Nutty Rice for breakfast and certified gluten free cookies (Enjoy Life), but other than that it is straight fruits, veggies, meats, and dairy (it doesn't bother me anymore). I got my vit levels tested and they were great, but I think it is because I have been on the diet for a long time and the positive affects have started coming through. My neurological symptoms are directly related to gluten exposure - not vitamins; however, all celiacs should take a supplement. Because I am so clear of it, the slightest amount is very notivalbe, so I am sure when this happens to me (like yesterday - and still trying to figure out the CC issue). It also is an issue with my eyes - they get blured and sometimes I have double vision (happens rarely now - yay). Stay on the list and keep asking questions - people will have good answers. I don't have all of the answers - I only know what works for me - no gluten - ever.
The anwser to all of your questions are YES! They also thought my symptoms were MS-like. it takes a long time to get all of the gluten out of your system, so be very careful and read, read, read. I also didn't come up positive, but there is no doubt that I have it. I got "glutened" yesterday and had a night terror last night - waking up screaming - gluten is the only thing that does that. When I have gluten, I have trouble balancing and walking. After two years on the diet, I can say that I am so much better, with almost zero symptoms - but when I get even the smallest amount, the symptoms all come right back. Kepp the faith and maybe even a diary of what you eat so that you can see patterns of what is bothering you. Vinegar also makes me feel sick - but not gluten symptoms. Good luck - and don't cross contaminate (CC)! I did that for a year and it held up healing like crazy. I can't even breathe it.
What off-the-shelf shampoo/condition do people use? I currently use Neutrigena Clean, which is gluten-free, but it just doesn't do a good job and is hard to find. Any ideas? Pantene makes me sick for some reason.
Please don't give up on having a peaceful, healthier life. I too, came back negative for Celiac, but obviously have a severe gluten intolerance, as I cannot even breathe it without getting this weird panic/sick feeling. Since I have been healing for the past two years, that has gotten less severe, but I won't ever eat in a pizza place! I feel some regret that I "lost" over two decades of my life to gluten issues - I was up to several panic attacks per day, had terrible asthma, and other issues, all related to my diet. It took over six months to really be "free," but it did happen eventually. My biggest issue at first was identifying the ways I was exposing myself - I CC'd everything for months! I cooked gluten meals for my family and was constently breathing the flour dust/fumes. Now, thank God, I am a different person. Depending on how long you have had your issues, that can affect how long it takes for the anxiety and constipation to clear up. One exposure for me and it still takes 3 days to recover (and over a week to go to the bathroom). My husband had to switch to gluten free beer because just kissing him or being exposed to it messed me up inside. Take the time you need to figure out your triggers and be patient. One thing that used to happen to me that I forgot about was I had terrible nightmares and couldn't sleep - for years. I had an exposure the other day and had the weirdest nightmare ever! Your diet can mess up every single system in your body, so be patient. You didn't get sick over night and you won't get better that way. I also know something else: you might feel worse before you feel better. When our bodies clear out toxins, we feel sick. Meditate, pray, sleep, and be as focused on good health and positive thoughts as possible. Don't give up!
Does anyone know of a US-based testing lab similar to York, is that the best one to choose? Has anyone else used it, and if so, were you happy with the results? Do the results have to go straight to a doctor? Here is the URL: http://www.yorktest.com/