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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Arpita

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  1. Advice About 12 Year Old

    No perfect answer. I have been in this situation for the last two years. It is much better than 2 years ago, but is far from perfect. It was crazy. She was loosing herself completely. She yelled at me and everyone all the time. Now, we talk, and she goes off her diet less often. She admits to going off her diet (not every time, but before she lied continually even after being caught). We talk more. She still has problems, but she's learning to manage them slowly and with some failure. Mainly, our relationship is good. First, she doesn't take any medication. My daughter has partial seizures which manifest as hallucinations, alternate realities/personality stuff, extremes in moods, and so forth, all in reaction to gluten and casein, with seizures being confirmed neurological diagnosis, and that they are created by gluten - "celiac induced" seizures (we figured out the casein, it was actually more often - milk = hallucination immediately). Anyway, we have never done medication due to the horrible side effects such as suicidal tendencies, and the poisoning effect of upping dosing and mixing meds until tolerated and doing it again. We are very thankful, since we have a friend with a child who reacted to seizure medication in an extreme way, and was hospitalized and in pain for 2 years from internal burning from the medication and finally died (they never even looked for gluten/casein; though when visiting, he immediately seized after eating cake and was known to have that problem). Anyway, a lot of the bipolar meds these days are actually seizure meds these days - trileptal, ect. - so I'd look into that carefully. Second, we homeschool, but I don't monitor everything like I know some parents do. She has opportunity to cheat, but the pressure is less. The pace of life and all the other social and emotional upheaval of school is less. She can handle her reactions at a slower pace and can handle life's problems at a slower pace. She doesn't have to face the food issue EVERY DAY, all day, and in a mean way. Now she can handle it weekly, or less if we decide its needed. And, yes, she cheats, and she feels it, and I think still hides symptoms, but tells me a lot more often now. Mainly, we get along so much better. The emotional upheavals are there, but not against me. I'm really proud of her in a lot of ways. She wants to go back to school. That's hard, but she still needs this slower pace to have the opportunity to stay on the diet and become the best of who she is. Third, I stopped talking about food and food reactions as often. I stopped trying to figure out whether each emotion of hers was a reaction or not. Basically, I couldn't and the stress of it was overwhelming us both. I stopped feeling angry at her for going off the diet, when I was working so hard and thought it was a problem with a new food brand or something. Now I accept that her emotions could be a number of things, and that we need to deal with them. We need to deal with the person not just the cause. No matter what happens, we still have to deal with "who we are" when we react to food because of cheating or accidental exposure. Also, I keep in mind, that I really can't control her choices, but I can control her environment. And, I choose how much to do that. At this time, she home schools, goes to classes and activities without me there, and does things with friends without me there -- but all at a slower pace than she did when at public school. New friends come to our house; freedom depends on her track record with a certain friend. I have friends who monitor their every kid's action and are with them every moment -- this is also an option. But don't think that if you do this, you are eliminating cheating, they can have someone sneak them something while your head is away -- so I don't think you can ever really perfectly answer the question "is this food?" This is such a hard place to be in. Your daughter's mental health, and knowing that once she cheats, she is less able to avoid it again, because her mind is affected. But this is the nature of it, we have to learn to say "no" and learn to say "I'm sick," and we have to learn to do this when we have already been glutened! Hang in there. I hope this helped.
  2. Just an open opportunity to hear your experience of your teen's struggles with celiac, and what works (and doesn't work) for you in supporting them and encouraging responsibility for their health.
  3. Oh, also, I bet in a year, your child will no longer be difficult. It was amazing for us, she changed like night and day, it was really amazing...
  4. My 13-year-old daughter has had celiac for almost 4 years, and myself for three. Its a hard road, this food causes behavior health thing, a road that can be hard others to understand as well. First of all, it will become more obvious over time. I could tell the best after about a year after diagnosis. As she has become a teenager, it is harder to tell since the hormones and because she keeps things to herself. Usually, I just sense it, when behavior interferes with everyday functioning, when I can see it in her face -- bags, pupils, and a certain type of hyper-ness/depression that has a different look to it. But I find it hard to tell the reaction in myself, because my reactions are so delayed, and I have problems with many foods. There were years, where I was concerned about this a lot -- knowing the difference -- but it can drive you crazy. Really, in many ways, you need to respond similar to her no matter what the cause, because the world will. Also, because she'll never be free of having accidental gluten reactions, and she will have to learn how to manage, accept, talk about, and deal with the behaviors and emotions no matter what the cause. It's nice to think it is always obvious, and that we can just "wait" until the reaction is over. But we also have to deal with who we are and how it affects others, no matter what. Focus on helping her get the tools to manage the behavior and emotions as much as possible. At the same time, keep doing the best to take care of the health issue (no gluten), and trust that most of the time you will know. Even if the blame is food, there's one person having a reaction, who is angry and talking, and going for a walk, and another who lets that anger take control and become aggressive physically or verbally. Keep it up!
  5. Going to India - can anyone suggest a anti-diarrhea medicine that is GLUTEN and DAIRY free? We usually go without medicine..., but when out of the country, I want to make sure my daughter has something.
  6. India & Singapore

    Anyone with experience eating out in India & Singapore? Gluten, dairy, problems - very sensitive.
  7. I'd like to get more postings on the LAYS - original classic or wavy. Do you have a gluten reaction to either of these types? (just the plain, potato, oil, salt)
  8. I prefer to substitute sorghum for everything. I can't tell any difference in the taste or texture, like I do with rice flours. You can get it from Bob's Red Mill, or cheaper online from Twin Valley. It is best to add 1 TB or more of corn starch for each cup of sorghum flour. The same mix above (with the tapioca & corn starch) can be used; just use sorghum rather than rice flour.
  9. You can get jawar flour (which is same as U.S. sorghum) and make puri with it (that is the same as a chapati in oil). It taste best if it is mixed with mashed potato when prepared. It is a common food among the poor of India. You can eat rice and lentil soup. You can eat a fried food called pakora that is made with bean flour. You can eat dolsas and other rice based fried foods from South India. Watch out for the yogurt in everything if you are in North India. Hope that helps.
  10. Anybody ever called about Allegra (only the antihistamine) having soy? I got info last year on its gluten and dairy free status. It took a long time for a response.
  11. Besan is a yellow lentil flour and chickpea flour is from chickpeas/garbanzo. Either can be used to make pakora. Both make a good coating to fry chicken.
  12. Thanks - I don't know why I didn't notice the list on this cite as well. Anybody with info on particular brand names that they have already called? I'm a bit concerned b/c my last assumption that Brandy would be gluten free - turned out wrong. Just don't want to start contacting them all, if someone has already done it! Thanks.