This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Haha, so I'm a dietitian, and I work with other dietitians. Once had a dietitian (an old boss, who has a MASTERS DEGREE in nutrition mind you) give me a bag of chocolate covered pretzels as a gift. "I'm not sure if they're gluten free or not...."
They most certainly were not. Let's just hope she's not counseling any celiacs any time soon.
Oh my.....it's been a long time since I've posted on this site but I HAD to after reading this thread.
1) Once asked a waitress what salads were gluten free. She pointed them out, then told me a couple I couldn't have because they contained Romaine. Apparently Romaine contains gluten.....? I actually wanted to order one of the salads that had Romaine in it and she refused to serve it to me because she didn't want me to get sick. I finally ordered the spinach salad, and then she brings me a basket full of breadsticks
2) Was in NYC a couple of weeks ago. Hostess says they've got a ton of gluten free options and to just ask the waiter once we're seated. So I do. His response? "Look at the menu, you know what you can eat better than I do". That guy got a cruddy tip.
Thank you all for your replies. I guess I should clarify: I didn't expect this host to go out of her way to cook me a gluten free meal, and I brought several gluten free goodies to the party to share. I have a hard time saying no to people who insist what they've made is gluten free without feeling like I'm being rude (not just at parties but at work, etc)
So I went to a party Friday night, the hostess made me some "gluten free" soup and breadsticks....after some polite inquiries into the soup's ingredients, we realized it was not gluten free. She felt bad, and 10 minutes later walked over with a couple of the breadsticks she got especially for me. Well, I ate them, and went up to thank her when I realized she had baked them on the same cookie sheet with the regular gluteny breadsticks (crumbs everywhere). You can guess what happened from there....now I feel awful, both physically and emotionally because she feels very bad for "poisoning" me.
I've been diagnosed for close to ten years and don't mind the diet, but so many times I've had to explain my diet to clueless waiters and well-meaning in-laws and friends with the same frustration and fear getting sick if they don't understand.
My question is this: how do you politely inquire to people who cook for you on whether or not the food is truly gluten free (without sounding like a total psycho)? And how on earth do you say "no thanks" when you're getting the impression that said food item is probably not safe for you to eat? Is there a website I can send people to explain gluten free cooking? I tried Googling "how to cook for someone with Celiac" and couldn't come up with much. I'm a dietitian and my husband is swearing that I should create a website if one doesn't exist already.
I had a former boyfriend dump me when I told him I couldn't eat the (contaminated) dinner his mom had prepared for me, I'm getting desparate!!!
I had the same thing happen after I went gluten free, but I think it was a combination of a few things. Your body is absorbing more iron, but you're also able to use all the nutrients and energy from the foods you're eating. Iron deficiancy will definetely make you tired though! The first 6 months I was gluten free I CRAVED iron-rich foods all the time-I used to eat a couple Hershey bars during my bike rides
I haven't eaten out in 3 years. I've taken my own food into restaurants and enjoyed eating with friends and family, but I won't risk it. I've worked in a restaurant that had a "gluten free" menu (before I was diagnosed) and I know none of the people who prepared the food took it seriously. I'm too sensitive, and will be sick for days if I get any kind of contamination
You may want to try white rice-like Lundberg, which says gluten free right on the bag-if brown rice is giving you problems. I've been diagnosed for 3 years and (knock on wood) haven't had a reaction in months, but brown rice still gives me issues
Definetly try cutting out dairy and the almond milk for a while. I didn't start feeling better until everything I ate was completely unprocessed.
I've always used the excuse "I've been sick" to keep people out of my water, but sometimes I wonder if they're catching on
I've never gotten sick from kissing my bf, even a couple minutes after he's had a beer. I thought I was the only one who did the "are you safe?" check before kissing him-to which he usually responds with an eye roll.
I agree with avoiding energy bars and the like. I race mountain bikes comptetively and train between 25-30 hours per week. I don't eat anything processed as well. I rely on lots of fruits, veggies, eggs, fish, nuts, grass fed meat, and whole grains for my energy, and I've never felt better-no need to struggle with weight or energy levels). I second (or third) everything posted above.
I went to SIU (go Salukis!) and lived in the dorms. I went to the school dietician and told her I was a celiac. They gave me a huge catalog I could order food from-Ener-g, Amy's, all the good stuff.....I ate like a queen when I was in school! I didn't eat out a whole lot-usually just at steak places (plain meat and potatoes and veggies), but when I went out, I always ordered rum and coke. I didn't have a hard time at all.
I've been dx'ed for over 3 years now. I guess I should think of the things that didn't get better after switching to a gluten free diet because so many things did! No more seasonal allergies, no more depression, hypoglycemia, breathing problems, stomach issues, skin problems, frequent illnesses, anemia, feeling faint, anxious, oh jeez, so many..........my hair never used to grow past my chin, now its down to the middle of my back, no more dark circles under my eyes.....much more confident, i don't "snap" on people anymore.........
I guess every part of my life has gotten better!
The only food besides gluten I can't do is soy. No stomach issues at all unless I stumble into some gluten. I do all my cooking from scratch-no premade anything. I race mountain bikes competitively and coach kids on the weekend-training about 25 hours per week, plus school and a full time job. My (very active as well) boyfriend claims I have the energy of a 13 year old boy.
Oh and I got a cat! I used to be deathly allergic to cats!
It does get better. I never thought it would, coz it's been a long journey, but I'm so thankful for being healthy now.
A couple of years ago the company got in trouble with the governement (Canadian, I believe) because their gluten free cookies were contaminated. I got terribly ill from them a couple years back and haven't tried them since they put the warning on the back. Good luck and hope you're feeling better-if you think they're making you sick, then by all means, don't eat them!
Already said, but Vitamin Cottage has an awesome selection! Better than Whole Foods and Wild Oats combined! I don't eat out, so I can't help you on that end. I used to live in the Chicagoland area and actually have an easier time out here now finding food. Good luck!
I race mountain bikes and rely on things like buckwheat and quinoa more than brown rice. I also eat a lot of coconut oil for MCT's (a great source of energy). And eat a lot of Omega 3's to help speed recovery!