Thanks Cinnamon. That's interesting that tyrosine helped him (even if it was for short periods).
I am certainly hopeful that this helps my guy. He's on the 2nd day of treatment...and treatment includes several types of amino acids in varying doses throughout the day.
We'll see. He says that he can feel that something is happening. He had some GI upset from it yesterday & the doctor lowered the dosage. He seems to be doing a little better today.
Perhaps something more comprehensive in an amino acid approach could help your son. So many things in our bodies rely on synergy...so many vitamins and minerals need to be balanced, so it figures that you should have to balance amino acids too.
It's been a long time since I've posted. For those of you who don't know me, I'm often here inquiring about things for my husband.
Anywho, he's been on a strict gluten free diet for over a year now for several reasons, but the main one being psoriatic arthritis.
He has gone off of his methotrexate (about 4 mos ago) and has been feeling relatively ok, except for some aches & pains here & there. His psoriasis is very mild & not having to take the pills has greatly improved his quality of life.
But, a new problem has arisen pretty severely over the last few months regarding anxiety, some depression & bad anxiety attacks.
An internist prescribed him ativan which has helped quite a bit, but we know isn't an answer to his problems.
A psychiatrist rx'd an antidepressant & a stronger anti-anxiety pill which my hubby hasn't filled the prescription for because he's nervous that taking those could cause another ride down a slippery slope.
Just yesterday we saw a D.O. & for the first time ever felt like we found a doctor who would actually listen...who actually cared about all of the issues that we feel are pertinent to my husband's medical history & who gave some hope to us that he could help my hubby get himself onto a track of health rather than simply masking all his various symptoms with pharmaceuticals. He sat with us for over 2 hours & really got specific about things that other doctors just wrote off. We are hopeful.
The first thing that he wants to do with my husband is start him on a Targeted Amino Acid Therapy to help to stabilize his neurotransmitters.
I've done some research & it seems to make sense (especially concerning my hubby's medical history)....but, I figured I would post here to see if any of you fine folks have had personal experiences with it or have known anyone who has tried the therapy.
As always, I thank you in advance for any info you all may be able to provide for us in our trek toward health for hubby (& our relationship!!)
Just wanted to chime in that we have gone to Sanibel many times. My husband's family has for 25+ years...my husband's brother is a nature photographer & loves to take shots of birds. There are great sanctuaries - Ding Darling comes to mind. You have egrets, ospreys & I even saw an eagle once there. Lots of birds & wildlife in general.
sorry to jump the thread, just wanted to let you know what i know codetalker!!
thanks for the reply. And, yes, I agree...everyone should do their own research. I constantly do! But, I am so appreciative of all you who do as well & share your findings...whether they be articles or personal experiences.
Now I get it. My husband did "front load" at the very beginning. He took injections daily for a long period of time. Then went to the every 2 weeks. His doctor had told him that he should then go to once a month. But, when he did, his symptoms returned & he made the decision on his own to do the injections every 2 weeks.
This is all very interesting. When he was tested for B12, they almost missed it as his levels of B12 were in the low of normal range. But, his methylmelonic acid levels were sky high. That's what tipped his doctor off. Thank goodness!! Unfortunately, we were so elated that a solution to this was presented that we didn't even question WHY his levels were so off. Perhaps that would've led to a gluten discovery sooner....however, I guess that was 10 years ago & all the info I'm privy to now wouldn't have been available.
Does anyone have knowledge of injectable B12? I'm just wondering if perhaps cyanocobalamin is not the best injectable.
I am very interested in B12 as my husband was diagnosed with a B12 deficiency about 10 years ago & has been doing injections of cyanocobolamin every 2 weeks or so ever since. He can tell when he needs it...it took about a year of his horrible headaches & dizziness to recede. About 4 years ago he developed psoriatic arthritis & we believe he is has either a serious gluten sensitivity or celiac (my husband's blood tests were negative, but he has so many symptoms & his nephew has severe celiac ). Have been on a gluten free diet for 10 months now.
ANYhow, what I really wanted to ask you was...
What does this excerpt from what you wrote mean?
Are PA folks psoriatic arthritis folks?
What do you mean by "the edge"? Of health? And where did the tie to PA come in (if, in fact, you meant psoriatic arthritis)?
And thanks to all of you for creating this thread because my husband's brother (the father of the nephew with celiac) has been both diagnosed with MS & also, undiagnosed with MS because of spots on his brain which ended up disappearing once his severe neuropathy slowly dissolved. We are trying to convince him to both go gluten free & start taking B12.
It's been a long time since I've posted here. My husband & I have been gluten free for about 11 months now. He began because of psoriatic arthritis, psoriasis & a smattering of other health issues. He is still on methotrexate (which he hates!)...but the beneficial effects of that med plateaued right before we went gluten-free. Plus, he cannot handle taking the full dose that his dr wanted him to take. He's too nervous to go off of it for fear of a big relapse. Being on the diet has seemed to help tremendously. He has gardened all summer, he's begun skateboarding a little bit. And he seems to feel better in general....not sick to his stomach all the time.
The thing is, he is still having some issues....like I've noticed some twitching. He's been getting some migraines again lately. We know that he is B12 deficient, I give him a shot every 2 weeks....he missed a few weeks when I was out of town & ended up having a major panic attack. We know that he is vitamin D deficient. These are the only 2 vitamin/minerals that he's ever been tested for & they both turned out deficient!!! I have a sneaky suspicion that there are others that may be affecting his well-being.
Soooo, my question is this....does anyone have a good suggestion of a naturopath (or a doctor open to celiac/vitamin/mineral deficiencies) in the Chicago area? I think we'd prefer a naturopath who could help look at his health on a wholistic level....I know there are answers for him....we just need the right guidance.
Any info would help.
Just wanted to chime in here that if you search for keratosis pilaris in this forum you will find some people talking about how theirs has cleared up quite a bit, if not totally, by being gluten-free. I remember reading those entries because my niece has keratosis pilaris & i tried to convince her that her love of bread & bagels (esp. wheat bagels!) could be the culprit, but she really didn't take to the idea. Perhaps, though, those entries could be a good incentive for your daughter to really give the gluten-free diet a fair chance...once she feels better & her skin clears up, she may not want to go back to eating the things that caused her afflictions in the first place.
Just my 2 cents!
I was wondering if anybody could suggest a good naturopath in Chicago. My husband has numerous health issues (migraines to psoriatic arthritis) and has been on the gluten free diet for 6 months now. He has seen some progress & has begun to feel better, but still has issues. After much research, I am really beginning to think that his problems are due to something else (leaky gut? bacterial overgrowth?) and we would like to find a doctor who can help him to get his system in balance.
Any suggestions would be appreciated.
thanks for sharing your experience. i think that my husband is feeling more & more encouraged that he can control what's going on with him. we've been on the gluten free diet for 4 & 1/2 months now. i am doing it for gut related reasons & he for all of his life long health ailments. it's been up & down for him. he's discovered that soy & corn give him reactions during that time...soy especially really exacerbates his psoriasis. his arthritis has gotten better, but not completely.
he had a very swollen knee at the beginning of 2007 & promptly started taking methotrexate again...he'd taken it the year before for the same reason & it completely healed his knee, but he didn't want to continue taking it bcz it made him ill. about 8 months after stopping it, he flared up again. he ended up having to take even more mtx to get his knee under control this time, but it was still painful to him after months of being on it. he's just dealing with the mtx making him sick because he's petrified of having another flare up.
the gluten-free diet has slowly but surely helped his knee. it's not warm to the touch anymore & he actually shovelled a ton of snow yesterday which is something of a small miracle in & of itself. he's a little sore today, but not in excrutiating pain. so, i do believe that the gluten-free diet has helped....especially as far as his attitude goes. he has actually been happy lately. smiling for no reason, laughing with me & actually dancing. he was a different person 6 months ago...dark, depressed & negative all the time. i know he's on the path of healing & last night he said he might be open to trying the candida diet or at least implementing some of the tactics into our current diet. i feel like the yeast issue could be the precipitating cause of his issues. i have a gut feeling (pun kind of intended) that he could resolve the rest of his joint pain issues if he could restore balance in his gut flora.
i am so happy for you that going gluten free has helped you so tremendously. i am always elated & pleasantly surprised to hear from people who have been able to lead themselves to health. i hope that your psoriasis on your scalp heals soon. perhaps you should think about soy....i know that if my husband eats any his elbow patches start getting red & grow double in their size. as soon as it's removed, his body is able to heal up. ev'rbody's different.
if you begin on the candida diet, please keep us posted. i think we'll start by trying to eliminate all the soda we drink (we love gingerale here) & add in some coconut oil & pau d'arco tea. we've already begun drinking water with lemon juice every day. trying to stay away from sugar will be the biggest challenge.
best of luck to you!
Hi GFGuy. First off, hang in there. This whole thing will get easier with time. Search around on this site for information....there's a lot of really good advice. Seems like people have given you advice about food already. Just stay basic for now, stick with simple easy foods. my husband has been eating plain burger patties & baked potatoes & although it's not the best gourmet meal, it is helping him to heal.
One thing I think you should do for yourself to feel better is to start taking vitamin D (D3 only, don't take D2...it doesn't work as effectively) this will help with many things, including lifting your mood. You should also look into taking a sublingual vitamin B12 as well as fish oil for omega 3s...people who have a problem with gluten often have issues with malabsorption & don't receive these essential vitamins. The omega 3 will help with inflammation. We take Carlson brand fish oil liquid....sounds gross, but it seriously does not taste fishy...you can put a teaspoon in some oj & you'd never know you were taking fish oil. & of course, check the labels of the supplements you take to make sure that the things you're sensitive to are not in them.
Keep your chin up.
wow, thanks for thinking of me!! we found the article online & downloaded it. my husband is actually a science-y kind of guy & he read the article. maybe i'm one step closer to convincing him! his dad is a doctor (cardiologist) & has told my husband that if someone has systemic fungal growth they'd be dead. so, he's slow to come around to the thought that candida can be in his system causing him joint pain. but, this article maybe has him thinking.
psipsina - thanks for digging up this thread that i started & posting your experience! i'm always looking for people who have psoriatic arthritis like my husband. that's so interesting that you found that you had a systemic candida problem....i've been suspecting that with my husband for a while. he's been gluten free for 4 1/2 months now & has had some relief from the joint pain, but he's definitely not pain free. i made him spit into a glass of water one morning (this is a home test for candida that i read about) and his spit almost immediately fell in particles to the bottom of the glass...apparently a big indicator that he has a yeast overgrowth. i also just printed out & gave him a questionnaire for candida overgrowth & he scored off the charts.
how did you treat your overgrowth? how long did it take? i think i'm going to try to convince him to give it a try. he always gets encouraged when we find people suffering from the same thing he does & they find something that works for them.
taweavmo3 - i'm sorry that your son has to deal with psoriasis. i wanted to tell you that during the 4 1/2 mos that my husband has been doing the gluten-free diet we have noticed that soy really makes his psoriasis worse. we discovered this when he felt he needed a different source of protein other than hamburger. he got some tofu & ate it for a couple of days for lunch &/or dinner. over that time his psoriasis patches began to turn red & irritated & worsen. when we saw that, we realized the tofu was the only dietary change & immediately removed it. over a couple of days, the redness disappeared & the white flaky area shrunk down. now if he has any tofu, his symptoms get worse.
so, perhaps your son has some other food allergy like soy. i also know that popcorn will give my hubby a headache. i've always felt that his psoriasis is related to diet. check out the book healing psoriasis: the natural alternative by dr. (i think it's dr) pagano. it's an older book, but he had success with relieving the psoriasis of many patients through diet. you might also want to supplement your son with omega 3s. i had a friend who suffered from psoriasis so bad that she never wore shorts or skirts. after starting a fish oil regimen, she said her psoriasis disappeared. we take carlson brand very fine fish oil liquid. it tastes like lemon...seriously no fishy taste at all & we tried several different brands. this is the best & it has high levels of EPA, the part of omega 3s that are most likely to help your son. i hear some people put this oil on salads & that nobody (even kids) is the wiser.
take care all!!
I agree with those saying D3 is the way to go. My husband & I went through this whole vitamin D issue about a year ago & found that no doctors that we dealt with could give us a definitive answer about which type of vitamin d works best....his doctor prescribed him a vitamin d pill of 50,000 iu for a few weeks, but it was D2...not D3. So...after lots of research, now both take 1000 ius of D3. My husband's mother spoke with a doctor friend of hers who has celiac & he said that he'd heard that the CVS pharmacy brand of D3 is one of the most easily absorbed by the body. So, that's what we take. My husband is due to have his levels tested soon...guess we'll see how they're doing.
Did you happen to see the doctor on Oprah the other day? She said that she thinks people should be taking 2000 IUs a day. I just saw Dr. Weil on tv today (Martha Stewart) & he said that you should be taking 1000 IUs to a woman who asked whether she should be taking calcium supplements. So, I bet if you have a deficiency of vitamin D, then you'd want to at the very minimum be taking 1000 IUs.
I've also heard that Bio-D-Mulsion is a good one to take...not sure if it's gluten-free.