This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
It is emotional, it's really mourning the way things used to be! And if you're pregnant, you have double the emotions going on. So give yourself a break. There's a learning curve and you'll make mistakes early on, that's ok. But you really do have to stop eating things like regular toast for your protection and your baby's protection. Stock your pantry/fridge with easy access items so that you can find something when you're hungry. Here are some easy ideas:
Snyder's Gluten free pretzels
Yogurt and cheese sticks
celery/carrots/cucumbers and ranch dressing
corn chips and salsa
Breyer's ice cream (most flavors)
Hormel chili with cut up hot dogs
van's or Trader Joe's gluten free waffles
meat - use your own seasonings
gluten free pasta
boar's head or homel lunch meats
loads of gluten free cookies available these days - I like Trader Joe's chocolate chip the best.
Try and find some things that you like and know that you won't have a lot of variety for awhile.
Hello and welcome. I had quite a few of the symptoms that you listed. Most have resolved on the gluten fee diet I think things would have been different for me too if I had been diagnosed earlier, but there's no point in looking back, so just focus on healing and improving now! I had extreme fatigue, mental fog, trouble concentrating, sores and a rash that itched terrribly, repeated uti-like symptoms, anxiety, sinus issues and lots of canker sores in my mouth.
I felt better very quickly, but it took awhile for all of the symptoms to fade. I was also vitamin D deficient, so I started taking D and B12, those really helped. Good luck to you!
The good news is that you know you can feel better! The bad news is that for most people, it's not worth it to take chances with cross-contamination or eating out at restaurants that don't offer gluten-free choices. It just takes some time to see what works for you, and you might need to adjust your typical meal plans. I eat a lot of rice, eithe with stir-fry (wheat-free tamari intead of soy sauce) or with meat, beans, corn, salsa and black olives. That's my easy meal when I'm out of ideas. I brown some ground turkey or chicken, add some mexican spices and then layer on the other toppings. I make enough to have leftovers for lunch. Kinnekinick (Im sure I spelled that wrong) pizza crusts are good. Just add meat/veggies and tomato sauce and bake. Always travel with things you know are safe for you, envirokids cereal bars, schar crackers and peanut butter, fruit... that way you're not tempted to take chances. I like this site for recipes: http://www.glutenfreegoddess.blogspot.com/ And I like the 1-2-3 gluten free mixes for muffins and biscuits. Those are good to make ahead and count on. Good luck to you!
Hi, my symptoms have definitely chaged over time. I used to have DH (the skin rash associated with celiacs), heart palpatations, anxiety, the big C... I don't get DH at all anymore, but now I can get stomach cramps, gas, bloating, the big D or C, anxiety... Strangely, it's not always the same symptom and I can't figure out a pattern. I have gotten much better about avoiding gluten at all costs though, so the reactions are rare now.
Dee in NC
The tests for celiac disease are different from the tests for a wheat allergy. I don't know anything about duodenitis, but with the symptoms you're describing, you may want to go ahead and request the celiac testing, especially with the elevated antibodies. It's good to have the tests done before you go gluten-free so that you get accurate results. Good luck to you and your son!
I don't know why, but I can't tolerate coke anymore either, and neither can my sister, both diagnosed celiacs. I think maybe it's the high fructose corn syrup that's just too much for intestines that are still healing??? I also can't tolerate diet-coke, maybe the artificial sweetners? Hang in there, the healing isn't quick, but it does happen.
It may be DH. When I had DH, it was incredibly itchy to the point of keeping me awake at night. And I have had it under my arm before, as well as other places. I also get the all over itchy, bugs crawling, anxiety feeling if I accidentally have gluten now. I can't imagine eating it on purpose now (2 1/2 years gluten-free), in fact I've had nightmares about eating it accidentally! I hope you get back to the gluten-free diet soon and that your stress resolves!
Hi, I was never an athlete until going gluten-free, I was always too tired and achy. Now gluten-free for 2 1/2 years I am really enjoying playing tennis and taking dance classes and long walks with the dog. I think as far as losing weight goes, if you replace the gluten in your former diet with lots of gluten-free bread products (muffins, cookies, bread, etc...) you are more likely to gain weight. The gluten-free breads have higher calorie counts that gluten ones. If you take the opportunity to really change and focus your diet on fruit/veggies and lean meats with less bread, you should really see a difference.
I am very careful about what I eat and that makes all the difference in the world. I do not miss at all my former way of eating because I feel so good and so full of energy.
Hang in there and know that you are on the right path to having a much healthier life, even if it takes a bit longer than you'd like. These are life-long changes you are making so the benefits will last forever!
Dee in NC
I used to get DH on my face and once had a terrible outbreak on my lips. I ended up getting a blister on my knee biopsied for confirmation much later. If yours is DH, you can get outbreaks from iodized salt and ibuprofin products (like advil). I gave up both of those, along with most processed corn, like high fructose corn syrup, and my DH has been gone for awhile. My sister and niece both got cold sores on their lips from gluten before being diagnosed with celiac. Now on the gluten free diet, they don't get them anymore. My sister does react to vinegar too. You may want to try a food diary and see if you can connect the outbreaks with anything in particular. Good luck, I know it's not fun!
Dee in NC
I had anxiety and panic attack problems before going gluten-free. Now, two years later, I rarely have those issues and when I do, I can easily trace it back to something I ate. I agree with the other posters about finding other things that your body does not tolerate. I get symptoms from artificial sweetners and processed corn, like HFCS or maltodextrin. Odd, but without these things in my diet, I feel so much better than I ever imagined. I'm exercising for fun, a dance class and tennis lessons, I look forward to walking the dog... After many years of being sick, I"m so glad for the gluten-free diet and a new life at age 40!
Dee in NC
Glad to hear you're feeling better! I'm gluten-free for 2 years now and feel like I have a whole new life. I also have three kids and two jobs, but I still have energy! I have been taking a dance class since October, and just signed up for tennis lessons this past weekend. It is amazing what a change in your diet can accompllish. I bet that as you make these changes, the more your children eat gluten-free, the better they will be too. My kids have tested negative for celiac, but do eat a lot gluten-free, as I'm the cook in the house. They do eat some gluten, some school lunches, though I mostly pack for them, and some at friends' houses. But we can all tell if they eat too much, as they get tummy aches and tired. Anyway, I know it's a difficult transition and it's not quick, but hang in there, it continues to get easier and I really hope you continue to feel better each day!
Dee in NC
"May 14, 2009- My myoclonus is almost gone and I have started to sleep without waking up after switching to all unprocessed food in the past three days. "
Hi Sylvieanne. I am not super sensitive, so I can't answer some of the questions, but I have reacted to Amy's, so I don't eat them any more. I also react to processed corn like High Fructose Corn Syrup and malto dextrin, but am fine with organic corn or organic corn chips. I'm reading a great book you should consider: The Unhealthy Truth" by Robyn O'Brien. It's about processed foods and may answer a lot of your remaining questions. Good luck!