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katifer

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About katifer

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  1. We found that my four year old has Celiac when he was 2 years old because he was not growing, hardly eating, hardly slept etc. He has been gluten-free for the last 2 years. I only cook gluten-free meals, and there is almost no gluten in our house. We are very careful and his school is careful.But he is very,very little still and he hates being small:( He has just started complaining that his legs hurt all the time.I give him a multi-vit., calcium, vit-D drops, and fish oil...what am i missing?? we live on an island out of the U.S that has very little blood testing options...if we are back in the States in the summer are there tests that you regularly have your child have. Any thoughts? What would you do? thanks for your time!!
  2. For me i must avoid gluten, dairy, and sugar. My joint pain comes back if i have any of those.I have been doing this for 2 years and it has helped me tremendously. Hope you find out all those things that irritate your system so you feel well!
  3. Wow what you describe is pretty much what i did 2 years ago when i found my baby and i were so sick because of gluten. He was described as 'failure' to thrive because he stopped growing and i had weird symptoms like my skin hurt all the time and i had chronic pain in all my joints as a 25 year old. When we went gluten free ---i freaked out:)....cleaned the kitchen for hours, put every pan we had in a box and went and bought new stuff, etc. (please dont do that:) I called every company...etc. What i learned is be really careful on this site because people will say different things:)-but i needed the support. i wouldnt kiss my husband, would make him wash his hands before touching our stuff - ...okay so we decided to make our house gluten free. then eventually he had a cabinet of his gluten stuff:) He doesnt kiss me immediately after eating bread etc but will after brushing his teeth or a while after lunch and he has drank a bunch of water. i have never gotten sick again living in our house. randomly at a restaurant but have decided salads are what i have for now. Seriously i thought i was losing my mind and my Dr. and nutritionist were very helpful and just kept telling me that my fear was worse for my body than actually the gluten:) We are gluten, dairy, egg, and sugar free and try to be soy free. There are tons of celiacs that have blogs with wonderful recipes-yet very few that keep out all the things we avoid. (but i substitute in things for what we cant have) We eat meat/fish , fresh veggies, and fruit, and have learned to bake and find so gluten free stuff that isnt sweetened with sugar. Do you use energyfoods egg replacer...it gives you soo many more options to be able to use a binder. Anyway you can write me if you want some lists of websites/or food lists we are currently using. Tonight i will be praying for you, your marriage, and peace about these things...it does get easier. God Bless.
  4. your symptoms sound Exactly how i used to feel before i knew about gluten intolerance---- i felt like that all the time and have only felt it again when having gluten.
  5. Yes! It happened to me for years! It was horrible. Then i went gluten, dairy free...i try to stay sugar free too. It never happens unless i have gluten or dairy. It did take a bit for my body to heal...4-6 months. 2 years later i cant believe i lived like that from age 11-27. Hope you heal quickly. Make sure you check medications, and things like dressing for salads etc. I never worried about shampoo etc.
  6. I have wanted to write some of the Dr.s that diagnosed me w/ random wrong things and just tell them it was GLUTEN! please dont continue to miss this with other patients! you did the right thing for sure. it is hard when you have suffered for such a long time to not want justice though.
  7. P.s. He said it was Reactive Hypoglycemia...every doctor acted like it wasnt a big deal but it helped me so much to keep sugar out.
  8. hmm not sure why it didnt post what i wrote--but i had the same thing dizziness often/daily tingling down my arms and legs, numbness--in short my nutrtionist said that my blood sugar was a mess and i needed to stay off all sugar cane/evaporated cane syrup whatever they like to call it:)----it helped tremendously. He had me take chromium( it isnt expensive at all) and that has leveled my blood sugar --i also do not have gluten/ or dairy---hope you feel better soon you are not alone:)
  9. I am just going to add that the reason i went to be tested was because my child was having chronic lose stool and was struggling to gain weight/and grow. Both of our tests came back negative.(unfortunately i was put on an elimination diet while breastfeeding and gluten had been out of my system for a while) He was diagnosed failure to thrive(born a 9lb)...under the 2nd %...took gluten out of his diet and has been great since...he and i both have the gene and his endoscopy was fine but he had already been off gluten for too long they shouldn't have even done it. I will be honest it was a VERY hard decision to make without every test coming back positive but the doctors at Emory in Atlanta just said if he cannot tolerate it then it is not good for him. He is 3 now and my 5 year old and i all are gluten free. They are both doing so well--they are not catching ever sickness anymore(they rarely ever get sick), they do not know the difference when it comes to gluten free food and they know what they are allowed to have. We eat well and they are so much more healthy than before. My 3 year old is growing and doing well. The doctors believe that i have celiac because of all my symptoms,gene test and i am very,very small compared to the rest of my family...i stopped growing in 6th grade. Celiac and food intolerances..anything that makes your food rush through your body means you are not getting the proper nutrition and your body suffers. i hope you can find a support group to help if you decide to go fully gluten free-it has saved our family from sooo much pain. God Bless
  10. I just want to say the same thing happened to me..very dizzy ,tired..etc. I have been gluten free for over two years and i felt some relief from my chronic pain but the dizzy-ness etc. was hard. My nutritionist encouraged me to look into reactive hypoglycemia(he had me start taking chromium and stay away from ALL sugar cane)--he said that the gluten intolerance can really make a mess of your blood sugar and just try to eat low-glycemic food until my body became more healthy...it has taken a while because i love sugar and i struggle to stay away...but when i do there is NO exhaustion and no dizziness. I do not eat dairy which has also helped. Hope you feel relief soon.
  11. Did you go to the Cayman Islands? My husband has a job offer there but me and my two kids have celiac....just wondering if there is even a chance we can find gluten-free bread:). thank you for your time
  12. Thank you so much:)- We do not drink Rice Dream because it made him sick (barley!), we use Rice Milk from Trader Joes that has no barley in it. We do use coconut oil, etc. He cant really have Rice CHex, i thought it was the sugar that made him sick with those but i guess it is trace amounts of gluten? anyways i will keep at it- ---borrowing more gluten-free/CF cookbooks from the library tomorrow:)-thanks again!
  13. My 3 year old son has been gluten-free for almost 2 years, he was born weighing almost 9 lbs, from birth gagged, choked, reflux type reactions(also horrible diarrhea)...then got pneumonia at 10 weeks old and just continued to be sick the rest of the year his weight continued to decline...doctor gave DNA tests for celiac and had DQ2---soooo.. he has been gluten-free, DF for almost 2 years and he only weighs 25lbs, still can wear 18month clothes...and is in the 2% in both weight and height...once off gluten and dairy he rarely ever gets sick..does act hypoglysemic. Any thoughts?(was checked for 102 food allergies and nothing showed up)
  14. i have been gluten-free for about a year now too---found out a couple months ago that sugar cane makes me feel just as horrible as gluten does---i struglge to not have it but honestly i feel great when i dont have it.just another idea. O and our house is Gluten free....