This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I joined this site because I have several friends that have to eat gluten free and I wanted to know more about it, find recipes and answers.
Since your diet has changed, you may have lost some weight. If you are a small framed woman or man, even 5 lbs could be dramatic weight loss for you, causing you to lose the fat pad between the duodenum and large intestine, causing SMAS. If you are a small framed and had lost a lot of weight after going to a gluten free diet, dramatic weight loss of any kind can cause the SMAS. I forgot to post that in my last message.
My name is Katie. I wanted to share what I know about SMAS. Here is a website that might be able to help. It have me a lot of info that was easy to understand, hard find in medical terms. www.everything2.com
My story about SMAS. When I was younger, in junior high to highschool, age 12-18, I saw my family doctor and I told him my symptoms. When I ate and sometimes randomly, severe abdominal pain, nausea, vomiting on the occasion, loss of appetite. Some people also experience burping and small bowel obstruction. Doc told me I had irritable bowl syndrome. I took it for what it was and went on with my life. I struggled through the pain and tried to eat small meals more frequently. I would find myself trying to eat potato chips and rice crispy treats, anything small with a lot of calories. The less I ate the less it hurt. I have been the same size since the 6th grade, 5'1" and 95-105lbs. I wasn't anorexic by any means, it had been my build all my life. I love food, just wish it didn't hurt so bad to eat it. On 8/29/07 I was throwing up from 1am to 10am and decided it was time to go to the hospital. They didn't know what was wrong for 8 days. For those 8 days I was only on saline, IV fluids and lost 25lbs, down to 80lbs. The hospital called in doctors from outside the hospital to help consult on my case. They did ultra sounds, x-rays, MRI's, CT scans, when finally they found my duodenum fully blocked. On 9/10/07 I went through a surgery, an attempt for a temporary fix. They placed two tubes into my abdomin. One in my stomach to drain all the bile and digestive juices, so my stomach doesn't eat itself away, and to help me stop vomiting. The second tube was placed into my large intestine, bypassing the blocked duodenum, to provide me with some nutrients. I have a pump that 24/7 pumps baby-like Ensure food into my large intestine. I've had to change the type of canned baby-like food twice. The first can food my body wouldn't take, I was still throwing up with diahria. The second tube feeding food was more successful. If I gain enough weight back the doctor is hoping the pinch between the duodenum, SMA and the aorta is relieved and I can eat orally again. If it doesn't open back up, then I will have a surgery Duodenojejunostomy. Cut the stomach and intestine, sew them together and bypass the artery obstructing it. Honestly this has been the most difficult time in my life. Anyone that has to deal with this, my sympathies go out to you. <3