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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Centa

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  1. Changes

    Yes, the kelly green was startling to me too. What bothers me more... are that there are now ads running down two sides of the screens. The multicolored pressure to buy bugs me. I don't take to having products forced. This may take me off the site. I didn't mind at all seeing ads on the homepage, but I go to the forum to read what people say, not to feel like I'm in a grocery store being pestered. I know it's an editorial decision already taken to increase the ads. I'll make my own about leaving the site or not. It's an excellent site, otherwise.
  2. Dear Deputy, Glad you're here! I'm glad you have a straightforward doctor. I'm glad he fast-forwarded to the real bottom line, which is that celiac disease treatment is entirely the responsibility of the person who has it. No doctor, or spouse, or coworker, or roommate can make anyone eat or not eat anything, unless the patient is very sick and in the hospital with IVs. The people who live with someone with celiac disease can help, but in a secondary way, only. The celiac IS the healer. This site has been such a support to me, and I think, to others...believe me, people come with their problems, including when they're having difficulty sticking to the far as celiac disease goes, now you don't live alone... So glad! Do let us know, Deputy. And you can ask for help, if you want to do that
  3. Hello, LilyCeliac I do, but that target of feeling 100% keeps shifting. I've been off gluten for 2 1/2 years, and I still think there's possibility of feeling better. I can still remember sitting waiting for my appointment in the nutritionist's office that led to her telling me she thought I had some kind of wheat and milk intolerance, stoned with fatigue, a body throbbing with aches, localized pains, in such a fog that I couldn't think; I wondered if I could make it waiting...I was nearly in an out of body experience, like I was down a long tunnel. The walls of the waiting room looked like they were wavering. Everyone's recuperation has different features to it because we all begin with different bodies each with different challenges in addition to celiac disease. AnneM may be right about the effect of chronological age, but I've read about the lives of some pretty sick folks who are in their twenties on this site. The problem caught up with me as I was going through the menopausal change in my mid fifties...Anne may be right: my body coming through the change seems to be different in so many ways: different metabolism, different sleep needs, etc. I wonder if the question were asked, what has been your sequence of improvement: what improved and stayed improved first, what came second, what came third, whether there would be any similarities among people posting their sequence. Since you ask about feeling 100% or not, that's a mind-body thing, a perceptual thing; involves emotions and attitudes, as well as things like bloating. Here's my sequence...I did most of this following the list that is posted on the home page of this site as scrupulously as I could, and cooking in a non-gluten kitchen...I think I dodged a lot of bullets, from what I have read on this site...I've been a member and reading for a couple months...I did some things right, but not out of any wisdom about it. I went into a non-CC situation pretty immediately, and because I didn't eat out much anyway and (a little black humor here, I got dumped by someone for someone else in my sick years) I wasn't kissing anybody who had just eaten toast for breakfast. So below I think is the payoff of a strict glutenfree diet over time. Everybody's body is different: First my brain fog began to lift, in the first weeks off. It took awhile to clear This immediately lifted my spirits, but didn't "fix" them, of course, but I had some hope Then sleep producing rest began to improve in about a month or two...that was a long recuperation process. Sleep patterns change anyway beginning about your forties, and stress affects it, so there's more than celiac to deal with, regarding sleep... In time the mouth sores cleared up Then gradually body aches and localized pains and foot cramps began to disappear; I still get occasional foot cramping at night. It took a long time, maybe a couple years before my daily energy returned to its ordinarily high level...I'm 59 now; this is an issue for me; I will have to work till I'm 70, and currently am doing all my yardwork and as much repair of the house as I can muster, to save money. Plus I want a social life. I had none, zip, zero, in the bad years. It's a money but also a time and energy thing: I'm about to take the first vacation I've had in 6 years. Work had taken so much much more time to get done when I was sick.. I consider being able to take a vacation because my work is not in a tailspin part of recuperation! I've been scrupulous about avoiding gluten; still have the irritation of the bloating and gas from a minor milk intolerance but have found a few cultured dairy products that don't send me running...goat cheese is the present experiment; never have "ordinary" stools, but I don't care about that, what I care about is whether they show I've been glutened or not or whether they look like I'm not absorbing food other words, some physical symptoms I now am using as indicators that tell me to watch out. My gut will never not be susceptible to gluten, so I will always be liable to ingesting something that makes me sick. I'll never get over that, so in that way I'll never be 100% always will be on the threshhold of getting sick if I eat the wrong things. A body isn't an unfixed/fixed thing as I see it, but susceptible to all kinds of things....I don't for example have any way of guessing how much a "set point" for having gluten intolerance symptoms varies according to age, but also to the general condition of the immune system (such as, for example, after having caught the flu), or to things like mood, or other diseases. I'm convinced that seeking wellness really never ends. One thing that happened to me in the bad years which coincided with going through menopause was that my weight ballooned up and I became extremely sedentary. I lost a lot of self confidence. My muscle also began to atrophy...this will happen to anyone sedentary, male or female, if you sit still long enough. This led to back pain. I got a frozen shoulder. I began to damage ligaments. My slumping, because my muscles weren't holding my body the same way, began to produce the early conditions of dowager's hump, which is in its first stages loss of musculature. Well, cross my fingers but I'm losing some of that weight now, and every week that I succeed in getting some real exercise, not piddling around with it, gives me something in flexibility. It took 8 weeks in PT to work out most of that frozen shoulder, and I'm still working on it. My back doesn't hurt any more...except when I go other words, I'm not out of the woods yet, but I'm feeling much better. I can now walk downstairs in a pair of high heels without holding on to the handrail. Seems like a small thing, but that means I have rebuilt the muscles in my knees and upper thighs to a point that I can do that. That means that I can squat down to pick something up, and then get back up without staggering, which does a bit for my sense of wellbeing, because wellbeing to me includes being able to do things, and my state of mind. I am DEFINITELY into the move it or lose it, post 50s stage of my life, mentally and very definitely physically....that may sound depressing, but that's just the way it is for me. I'm still adjusting to that, but I had better figure out how to be happy with it. It doesn't make sense to want to be 20 again (the one thing that really pi$$@$ me off is my sagging bustline, but that's not a celiac problem ). I'm not trying to get back to B.C. (before celiac), I'm looking for how well I can be now. All of this except the bust...and the lines on my face...and the cellulite, dang it, but maybe that's partially a product of being sedentary too, I believe is part of recuperation from having an intestinal tract in bad shape in my fifties...I get glutened now and then, like anyone else who has celiac disease. I don't have any idea what it's going to be like to be a 70 year old celiac, with that body...will my susceptibilities change? Dunno. That's a long answer. It took me a couple years of finding out what did me in and how to avoid it plus recuperate from the really "sick" sickness parts of it. I feel pretty good, am delighted to get that energy back... there's quite a ways to go. I say expect that it's a long journey with ups and downs, but that there IS light. You go, girl.
  4. Dry Skin

    I'm using Mill Creek Botanicals shampoo and rinse, from the health food store. No gluten, no soy, no testing on animals, organic... JNBunnie's Neutrogena Swedish Formula without fragrance works for me. I use Burts Bees salve liberally before I put on rubber kitchen gloves to go out & do yardwork & get a little "treatment" effect that way...I agree with Guhlia, it's great. And I'd think it would help chafed dry feet, which I get in the winter, too. I'm going to try that olive oil...
  5. Hi burnsey...there's a thread in "Coping" in which people are comparing symptoms, if you haven't found it yet. Might be worth a look. I had your severe fatigue and exhaustion symptoms, to a T, before I quit eating gluten. It took quite a while before my sleep improved in quality, maybe a month or a month and a half before I could notice that I woke up more rested. Depending on how bad off your GI tract was before you went gluten free, it'll be awhile before it's back to absorbing more nutrients from the food you eat I agree with everything everybody's posted. I really can't do without a multivitamin and those Bs in it...If I start to skip it, a day or 2 later I'm dragging
  6. I almost wonder if it would help to print out this and the July 2007 thread and take them to a doctor, if anyone needs to get her/his doctor convinced to consider their celiac-type symptoms. The two threads DO prove what the medical literature says, that symptoms from celiac disease vary from person to person, within a range. The list from before I quit eating gluten. --Extreme fatigue, way, way beyond excessively tired --Felt like I had the flu 24/7 --Slept but I didn't get rest --BAD case of brain fog --Muscle spasms, especially foot spasms at night --A lot of muscle, not joint pain; the fibromyalgia-like localized muscle pains that move around --RAVENOUS --Bloating, but minor compared to what I read for others --Stools matched the usual celiac description, but not much diarrhea --Mouth sores --Blisters on my elbows Nowadays my "geiger counters" that I've been glutened are --Those blisters on my elbows. They come out *immediately*, itch like crazy and take a long time to go away. --Immediate stool changes --I feel bad: aches are back, I'm just plain sick Minor milk intolerance, so get rumbly tum and bloating from that.
  7. Hello, Tanya Teddy Welcome to the site! What a difficult situation with your daughter. Of course you want to try everything that can help. The good thing about a gluten-free diet is that it's something that you do yourself, not something a doctor or hospital or clinic does for you. This means that you don't need a doctor to OK it. Your doctor doesn't write a prescription for it. You will find that many people posting on this board went the route of a formal diagnosis by a doctor, with blood tests and an intestinal biopsy, or just the blood tests, under a physician's care; but many did not. They discovered by their own observation and reading what they needed, and started eating gluten free without a diagnosis from a doctor. I'm one of those people. My doctor became convinced I had celiac disease because my health improved so dramatically on a gluten free diet; so if you like, the diet itself and its effects convinced the doctor. Obviously improved health, after you begin the gluten free diet is the final ~medical~ proof that a person's GI can't tolerate gluten, so what do you have to lose? Response to the diet and recuperation varies from person to person. It takes longer and sometimes has more ups and downs, before the system really begins to heal for some people. Since your daughter has a difficult time with digestion already, I'd encourage you to read some about the ups and downs some people have had in those first weeks of being gluten free. Everyone's different; your daughter may not have those symptoms at may be smooth sailing. But you'll want to have an idea of what you and your daughter might be going through. Go ahead and ask what the safest diet is to start a gluten free diet, one with less likelihood of upset, and how to add in food items. People are so helpful on this site. Here's a word-search for "autism" using the search function at the top, righthand side of the first page of the forum. It will get you to posts in which people were discussing autism and gluten intolerance. So glad you're here. What about starting a free standing "hello" post in some place like 'Pre diagnosis testing and symptoms" or "Coping," introducing yourself and your daughter, and asking some questions? I'm sure people would respond. All best, Centa
  8. Problems With Poultry

    That sounds like a pretty direct reaction, Scotty. Here's something to check, since chicken and turkey can carry food borne illness unless they're cooked long enough at a high temperature. They need to be put in the refrigerator within about an hour or two of cooling off, too. Scroll down to salmonellosis to check if the symptoms might match. People with compromised immune systems can pick up foodborne illness easier than other people.
  9. Hello, tixm, I'm not in your area, so unfortunately can't suggest Middle Eastern or Indian places. But I do cook in those cuisines often at home, doing the traditional recipes. Those are two very good cuisines for celiacs, overall. Neither does those wheat thickened sauces in many dishes. I've had very good luck eating in both kinds of restaurants...just skip the naan and pita, the flat breads usually does the trick. And the dishes using bulgur, like tabouli. Heads up on falafel. It was one of my non-meat standards here at home until celiac developed. Some Middle Eastern restaurants make their own from scratch, and that will probably work just fine, because a lot of traditional Arab falafel recipes (as different from Israeli ones, which have bulgur) don't include wheat. But most ME restaurants I've been to so far use box falafel mix. I have an inquiry out to Tarazi, my favorite box falafel mix turns out that their ingredients are all OK, absolutely fine, but they've tested the ingredients and something is coming to them CCed....they haven't figured out which supplier is sending CCed ingredients to them yet. Sorry to get so into it, but I miss falafels
  10. I've seen waiting periods of 12 months, as well...
  11. There have been quite a few reporting in various threads that once they're fully on a gluten free diet, they're more sensitive to some things, not less. One of my theories about that is that a person on a gluten free diet's whole system isn't clogged up with additives that are in so many foods that celiacs have to avoid, and so a person can ~feel~ the effects of something that sets the body off more easily. Anyone coming off a fast will notice the effects of something that breaks the fast... From your list of things that you ate, in addition to the BK items mentioned, you had a couple diet cokes...they have caffeine in them. And there's that chocolate. I've seen little kids so hopped up on taking in sweet and chocolate later in the evening than are usual for their little bodies that they just can't sit still....parents of small children might weigh in on that. A lot of people can't take any caffeine at ALL after a certain time of day, if they expect restful sleep that night. My limit is about noon.
  12. Green Poo

    Little d, Pains like that suggest that you ought to get to a good doctor. I hope you make an appointment. As a rule-out, something to check that would give you that green stool but wouldn't give you those pains are lots of vegetables, as someone said. Especially raw green ones. Spinach, because of its high iron, is guaranteed to produce a green stool.
  13. Leaky Shwanz

    I hadn't wandered over to this thread until last night, started to read and then when the exercises started I fell off my chair. "Why, they're teaching a man Kegel exercises!!" A graceful response, DM And thanks for the tip about taking the probiotic at night.
  14. Nyxie, people on the board who are running mixed gluten/non-gluten kitchens do talk about "the gluten sponge"....and some are doing use and toss, too, but I don't think paper towels will get that macaroni and cheese pot. What about getting two Scuffies, a gluten one and a non gluten one? If that's a local brand name here, Scuffies are those round things loosely knit out of plastic yarn that you use to loosen things stuck on pots before you wash them. You could Scuffie that macaroni and cheese. Then soapy prewash with a paper towel, rinse and autoclave the pot in the dishwasher...speaking of autoclave, when I moved into my 50 year old house I didn't notice the button on the 25 year old dishwasher was on "extra hot"....I had a lot of melted plastic spoons and Salvador Dali plastic lids come out of that first run of dishes....good for attitude toward gluten cooties, though. Burn those little critters before they go down the drain. You can run Scuffies through a dishwasher BTW. I wouldn't run the Gluten Scuffie through, though...I'd tend to want to use it awhile, then toss. Sympathy about that headache. I haven't solved the ibuprofen problem yet, but you flag me that I had better do that now...we're headed into flu season.
  15. I understand. You take care.