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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About burdee

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  1.   Which thyroid test results convinced you that your thyroid is 'normal'? Did you test free t3, free t4, TPOab, as well as TSH? What was your doc's normal range for TSH?    I struggled with constipation for years. Abstaining from gluten and my other 6 allergies helped somewhat, but I wasn't normal. Other digestive aid (betaine hcl for hypochloridia) eliminated bloating after eating.  Taking Magnesium aspartate insured a daily bowel movement, but I still didn't have normal stools.  Only after I was dx'd with Hashimoto's hypothyroidism and another year of getting the proper dose of thyroid supplement did I finally have normal stools, no matter how much fiber I consume, no matter.  I still take magnesium, but more for bone health than laxative effect.  I can also get diarrhea if I eat too many grapes or too many sweets. I never got diarrhea before thyroid supplements.    Besides constipation, I had all the classic hypothyroid symptoms: fatigue, fingernail ridges and tears, feeling cold except in 80 degree weather, feeling overwhelmed by simple tasks, etc.I didn't have weight problems, because I had digestive difficulties for years before dx'd with celiac, food allergies and hypochloridia (low stomach acid). Do you have any of those classic hypothyroid symptoms?
  2. Stomach Cramps

    I googled metformin side effects and found that 'abdominal cramps and discomfort was the top listed effect.  Try abstaining from that drug for a few weeks to see how you feel without that.
  3. Food Allergies

      I have a diagnosed allergy to nutmeg. Like most of my other delayed reaction allergies, consuming nutmeg gives me days bloating and gut pain and sometimes diarrhea.  Many people have spice allergies.  I'm also allergic to vanilla.  I'm still recovering from my last accidental ingestion, which caused all the above mentioned symptoms.
  4.   Nope. I was diagnosed with celiac disease many years after I suffered enamel loss. My dentist and doctors all decided that I caused the enamel problem, because they decided I was bulimic and made myself throw up.  Actually I had thrown up often in early childhood. My mother decided I had 'stomach flu'.  My childhood dentist just repaired the teeth with enamel loss without considering a cause.
  5. Another common consequence of (or correlation with) celiac disease is autoimmune disorders.  One of those disorders is Hashimoto's thyroiiditis or low thyroid levels, which impair many metabolic functions. Common symptoms are fatigue, low blood pressure, low body temperature, difficulty losing weight, hair loss, and constipation.  Many docs overlook, misdiagnose or discount hypothyroid symptoms.  The usual test for hypothyroidism is a TSH level test.  TSH is a pituitary hormone which is inversely related to the amount of thyroid hormones in the blood.  However, the amount of thyroid hormone in the blood doesn't tell how much of those hormones actually enter the cells and regulate many metabolic functions.  So you could have a 'normal TSH level' and still have hypothyroid symptoms.  Also many docs and labs continue to use outdated TSH 'normal' ranges, which allows many people to go undiagnosed.    Long story short:  Your metabolism could have slowed down because of hypothyroidism.
  6.   I've never taken astragulus, because my ELISA (allergy/intolerances) test results for herbs and spices showed that I had a very strong IgG mediated reaction to astragulus.  That reaction was stronger than any other of my diagnosed allergens.  I've had obvious reactions after accidentally consuming my other diagnosed allergens. So I adamantly avoid astragulus.  Bottom line: You could very well be allergic to (or intolerant of) astagulus.    Many people who are diagnosed with celiac disease later in life developed other allergies/intolerances during the time they had undiagnosed celiac disease.  I wasn't diagnosed until age 56.  Subsequent tests showed I had 7-8 other allergens.  All those diagnoses were verified by my experiences with those foods, herbs and spices. 
  7.   I wasn't diagnosed till i was 56.  My dentist saw the enamel damage, asked me if i threw up. He decided I was buiimic, because i was thin and threw up.   He didn't ask if I threw up to get/stay thin.  (I had terrible reflux and nausea after eating certain foods, to which I was later diagnosed with allergies and celiac disease.)  When I told my doctor that i threw up after eating certain kinds of foods (usually baked goods), she also decided I had an eating disorder and suggested I see a therapist.(My allergies were later diagnosed as gluten dairy, egg, soy, cane sugar, vanilla and nutmeg, contained in many baked goods.) When I told my therapist that I didn't force myself to throw up, but i had gut pain and nausea frequently, she told me to talk to my doc about those symptoms.  My doc had already put me in the bulimia box.  Several years later, she told me my symptoms were caused by IBS, that everybody over 40 gets that and I should learn to live with it.  I also had hypothyroid symptoms all my life (cold, low blood pressure, low pulse, constipated), but was not tested for hypothyroid,, because I wasn't overweight.  Likewise I had celiac symptoms (short, thin, bloated belly), but wasn't tested for celiac disease because I didn't have diarrhea.  Instead I had constipation, caused by Hashimoto's thyroidiitis, an autoimmune condition correlated with celiac disease.    I just wish more docs could think outside the diagnositic boxes they learned in school or were given by their HMOs.
  8. If you're not ingesting any gluten, then you need to consider other possible allergens (or 'intolerances' for people who don't consider delayed reactions allergies). I was not diagnosed with celiac disease until my 50s after a lifetime of symptoms and misdiagnoses.  During that time all the gluten damage to my intestines helped me develop allergies to many common food ingredients. An ELISA blood test and another Enterolab test diagnosed my 6 additional allergies.   Those test results were confirmed by my reactions after abstaining from and then eating the diagnosed foods.      Also you might consider gut bugs, like bacteria, parasites and/or yeasts (like candida).  I was diagnoed with (stool tests) and treated for 8 different gut bugs over a 4 year period.  Then I learned that low stomach acid allowed food born bugs to go to my intestines and proliferate.  So improving my stomach acid also improved my digestion (eliminated gut cramps, reflux and indigestion).   I'm not saying that you have anything like i had after years of undiagnosed celiac disease.  However, you might consider other causes of your symptoms, if you know you're not getting any gluten.
  9.   I was gluten free (and abstaining from my 6 other diagnosed allergies) for 6 years and still struggled with constipation.Then I was finally dx'd with Hashimoto's. It took over a year for me to realize that I didn't do well on any T4 meds and switched to T3 only meds with my doc's approval. After that I was regular withmuch less magnesium and fiber. However, when I need to increase my dose, I still cn get irregularity which is unmitigated by magnesium or fiber. I can't tolerate laxatives which contain sorbitol, beause I get horrible cramping pain from those.
  10. I had chronic constipation for years. I tried all the recommendations for more liquids, more fiber, magnesium, exercise, everything except laxatives, which caused cramping pain.  6 years after I was diagnosed with celiac disease, i was diagnosed with Hashimoto's thyroiditis (autoimmune hypothyroid), which is highly correlated with gluten intolerance.  After I reached a stable dose of thyroid supplement, I was regular every day, no matter what I ate. However, I had to take the thyroid supplements at least an hour away from magnesium (and iron, which I don't take) and 30 minutes away from meals. Irregularity is a common symptom of hypothyroid. So, if you've tried all the other regularity remedies and still struggle, consider getting a full thyroid panel (free t3, free t4, TPOab and TSH, which is not as important as the first 3 tests).
  11. Yes, I have 6 other diagnosed food allergies besides gluten.  I also have 3+ day (actually 1-2 week) reactions after consuming any of those foods.  I've been gluten free for 9 years, but i still react just as severely to my other diagnosed allergens. Actually, like gluten, the longer I abstain from those allergens, the more severely and longer I react.    I suspect leaky gut, caused by gluten antibody damage, originally caused those other allergies. However, even after my gut heals (or healed?), the antibodies to those foods will still be in my blood. My body's immune system won't forget how to react to those foods. So the bad new is I will probably always react to my diagnosed allergens.   The good news is that I found tasty substitutes for all my allergens (which are usually ingredients in most processed foods and baked goods).  I don't miss any of my allergens, because I can make the foods which contained my allergens, without my allergens, but with safe substitutes. (That will make more sense if you look at my list of allergens.) Of course, I only eliminated my diagnosed allergens. So I can eat anything to which i don't react.  Getting an accurate allergy test was so much easier than trying to figure out my allergens with an elimination diet.
  12. I'm sorry that i just discovered this post. Hopefully you already learned that the Paddock T3 brand is safe for you. I've been taking Paddock liothyronine since 2011.  i've been on a T3 only regimen since 2012.  I'm sensitive/allergic  to gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg. I haven't reacted to Paddock T3 tablets since I started taking them. However, the lower dose tablets (esp. 5mcg) contain a higher proportion of cellulose than the higher doses.  Some people have problems with cellulose. I never did.  I hope you're doing well on T3 only now.
  13.   I don't think that effect is common. HOWEVER, I experienced heart palipitations and mild tachycardia after eating sugar for many years. Then I took an ELISA  (enzyme linked immunosorbent assay) blood test for food allergies.  I had a very high IgG mediated reaction to cane sugar. So i started avoiding cane sugar. i could still eat honey, beet sugar, agave, etc., almost any natural sweetner except cane sugar. The palpitations and tachycardia disappeared ... until I accidentally consumed some cane sugar (e.g. Tylenol or products which changed their ingredients by adding cane sugar).  So you might actually have an allergy (IgG or IgA mediated) to cane sugar.  Try avoiding all sources of cane sugar and see whether your symptoms disappear.  You'll have to carefully read labels. Cane sugar is widely used in processed foods.
  14.   I've been gluten free since celiac disease dx in 1994. After years of hypthyroid symptoms I was finally dx'd w/ Hashimoto's hypothyroidism in 2009. My first TPOab (antibodies) were at the top of the normal range. 2 years later they are low normal. I agree that avoiding gluten helps eliminate the antibodies. However if you had hypothyroid symptoms for years before diagnosis (and going gluten free) you may have sustained enough damage to your thyroid gland that you will need thyroid supplements.  I feel soooo much better with an effective dose of thyroid supplement. No more low blood pressure, low body temperature, fatigue, constipation and lousy fingernails.
  15. Low good bacteria is one explanation for continual dysbiosis. Are you still taking  high dose probiotics? (I'm still taking the Custom CP-1 formula, which you recommended.) After my history of 8 different gut bugs over a 4 year period, I left my previous ND and asked a new ND to figure out why I got recurrent gut (and respiratory) infections.  For me low stomach acid production, low levels of Vitamin D, Hashimoto's hypothyroidism, low white blood cells (esp. neutrophils) and low DHEA influenced my low immunity. Addressing all of those problems eliminated my gut bug problems and greatly reduced the number of colds for me.  Maybe you need to find a new doc who will actually look for causes of your continual dysbioses, rather than just test and treat (which my previous ND did).