This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
As the result of a heart attack, I had 4 stents put into my heart last Monday. Since being in the hospital, I have had serious gluten reactions...heightened anxiety/aggressiveness, flue like symptoms w/ 2=3 degree temp, very achy, stomach very upset, and naturally, watery diarrhea 4-5 times a day. None of the "doctors" seem to have heard of Celiac disease, even though I keep explaining it and my reactions. I contacted Bristol-Myers Squibb who makes Paxil and Taxol (the latter coats the stents and is slowly released) and they could not verify that their product does not contain gluten.....how can that be possible. Anyway, have any of you guys had any experience with Plavix? Thanks.
I recently tried a wheat free/gluten free/casein free rice spaghetti under the "Mrs. Leeper's" brand (American Italian Pasta Company of Kansas City, MO)(www.aipc.com), and it was the best that I have tried. It wasn't mushy as most rice spaghetti's are. They also make other types of pasta such as elbow mac, but I haven't tried them yet. This was purchased from Publix in central Fl.
I eat "Tropical Chips", which are made from plantains....they are 100% natural and no preservatives (so it says on the package). Plantains look like bananas, but have to be cooked before eating. The ingredients list says that they are cooked in sunflower oil and/or rice bran oil and/or corn oil. They are available in "regular" stores.
Recently I was "glutenized", probably from cross contamination. In the process of trying to track down the culprit I contacted Motts re their "Mauna La'i" drink. Their response was that all of their products are gluten-free EXCEPT Mr & Mrs T Pina Colada and Clamate. Hope this helps.
I lost about 10 lbs after I started on a gluten-free regimen. Strangely, during the two years when I was suffering from really bad "D", I did not lose weight. I believe that most of the loss was fat. Re self diagnosis....I didn't use to believe that this was a good idea, but during my two years of " living in the bathroom", I sought help from four doctor specialists, in addition to a GP, and none of them even came close to identifying celiac disease as my problem, and all of them were aware of my symptoms which were classic celiac disease markers. Finally, I spent no more than 30 minutes on the web and fortunately reading sites such as this one, and self diagnosed. After going gluten-free, I started to get immediate relief. The thing that concerns me is the wrong diagnosis that were made and the unnecessary tests and medications that were prescribed, leading to more medications to counter the side effects of medications. Again, I would like to express my thanks to the people that contribute to this site and provide help that is otherwise not available.
The 'Progresso" brand of soup has several varieties that are gluten free, for example "Creamy Chicken w/ Wild Rice". They are very good about listing all ingredients, including soy and milk products, in large letters at the end of the ingredients list.
Minibabe....I also cannot take a deep breath w/o the feeling that my throat is closing up, but....I have pulmonary fibrosis. PF is listed as a disease probably associated with celiac disease. My celiac problemssss were exposed after I started taking prednisone and actimmune for the PF. So, the reason for my post is to suggest that if you are also having shortness of breath you should consider seeing a "good" pulmonologist. My PF went untreated for two years after it was noted by a radiologist, but my then primary doc didn't pick up on it.
Stick with the gluten-free diet....I had "relapses" several times during the first few weeks after going on a gluten-free diet, and I also had been very careful not to ingest any gluten. It took about a 3 - 4 weeks before I was confident that the diarrhea portion of my problem had been resolved.
Please don't "freak out". The good news is that you already have the answer to your problem, and the solution is simply a gluten-free diet. No medicine side effects to deal with! My celiac disease was missed by 5 (five) doctors....thanks to forums like this, I self diagnosed, and my problems are resolving.
I don't remember where I read the article, but in answer to "after damage by gluten/milk, how long before the villi and microvilli grow back?", the answer was "6 months to a year". In my personal case, the "D" persisted for at least a month, and then gradually got better. It all depends on how much damage was done, and probably also what triggered the reaction. Don't forget, gluten hides in many places.
ADevoto....I agree with Deb. While I don't have any children living with me now, if my children had ever exhibited the symptoms that you mention, I would certainly have them go gluten-free for a couple of weeks. The symptoms that you mention are all listed as gluten reactions. The tests can be false neg or pos. You won't be endangering your children on a gluten-free diet for a week or two.
I live in central Florida, and there are several stores in the Orlando area that have a lot of gluten-free products. Most of the chain grocery stores do not contain many gluten-free products. However, check http://homepage.mac.com/sholland/celiac/GFfoodlist.pdf for a list of "normal" food products that all grocery stores stock that are gluten-free. For example, some Progresso brand soups are gluten-free....their ingredients list states "contains wheat" when appropriate.
If you are coming to central Florida, let me know, and I will post the names and addresses of the stores that specialize in organic/gluten-free products.
By now you must realize that tooooo many people that suffer from celiac have found relief by self diagnosis. Everyone recognizes that this can be dangerous. However, I personally spent big bucks on lab tests and "specialists", and none of them ever came close to a diagnosis of celiac. You could do all of us a great favor, since most doctors don't believe patients, if you would present papers to the members of your profession regarding symptoms and treatment by going on a gluten-free diet. Thank you for your consideration.