This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
We've all had days like this. I am the only one in my household with Celiac's. I can't count the amount of times I have fed my children all thing's filled with gluten! And, not to mention the many restaurants where I can't eat a thing. I can feel for you. My suggestion to you is to bring anything that can fit into your purse, even if it's an emergency candy bar. No need for embarrasment because no one is going to say a thing about it. I hope you feel better!
I agree with everyone. The later the diagnosis, the worse off you could be. I was diagnosed at the age of 28. Six years later, I was diagnosed with hypothyroidism. So, the younger, the better. You are really lucky, and I hope that you stay healthy!
I just started homeschooling my son in April. He was diagnosed with P.D.D. which is a form of Autism. I live in Pennsylvania, but I found this wonderful cyber school. It's called Agora Cyber Charter School. They happened to be based in Virginia. They send you all of the materials that you need, including a brand new computer. They also reimburse for internet service. You are assigned a teacher for each child and they will help you if you have any questions. Check them out on the web at www.k12.com, or here is the two schools listed for VA state through them:
Halifax Virtual Academy
Halifax County Public Schools
PO Box 1849
Halifax, VA 24558
Joe Griles, Executive Director for Instruction
Nelson Academy of Virtual Learning
Nelson County Public Schools
PO Box 276
Lovingston, VA 22949
Shannon Irvin, Assistant Superintendent of Finance & Personnel
Just give them a call, and they will answer any questions. I hope this helps!
I loved this show! It was the first show to use slime, which is now Nick's trade mark. So your dad played the adult. My favorite role was when he played the stage manager. Tell him people do remember the show!
I'm sorry that your so hurt and angry right now. I agree with you 100% that it is difficult to watch others indulge in the best of foods. But, I agree with Nancym. There are a lot of people who are restricted with diet. I miss a lot of things, and I have been living this way for almost 12 years. I promise it will get easier with time. My entire househhold can eat anything, and I'm the only one who is gluten free. So, please don't despair! If you follow the trails on this website alone, you will find that many company's produce foods today that are very similar to what you remember as oh so good! I hope you feel better soon!
I really am glad that you have a positive attitude with life! You have it so rough. But, anyway, I see you have gotten some interesting responses. This is the first time in a while since I was able to use the computer. My kids have the majority of control now that it's summer! But, I did want to throw in something that I forgot about. I was diagnosed with mono in my senior year of high school. I was sick for almost a month! I remembered this by reading through this thread. Apparently doctors didn't see a connection, especially all of those years ago. I feel so ancient at 40! It's funny that the symptoms are similar. Oh, well, as you say, "That's Life!"
It was the birth of my second child that triggered mine. But, this is not the only trigger. Any kind of trauma to the body can bring out the beast. It is a genetic disease. It lays dormant in most people who have it, until an event that hurts the body. After having it for 12 years, I have read all of the research. It sucks big time, and there's nothing we can do! I also have hypothyroidism. Another dreaded effect of having this. I feel for you, though. You have it worse then most. It must be crazy to try and manage a diet!! Anyway, I conducted a survey on this site about Irish heritage and Celiac's, and you would be suprised by the amount of people with Irish genes! I hope that you get some more answers. Good Luck!
Hi and congrats!
Welcome to "The Club". It also happened to me after the birth of my second child. He was 9 months old when I was diagnosed. Horrible hospital stay, one week, many tests, biopsy, and diagnosis. That was 12 years ago. It has been proven that the trauma of childbirth brings out the Celiac's. You had it all of your life, but didn't know it until that special event. Anyway, 3 years ago I gave birth to a perfectly healthy daughter, so there is hope for more kids! Good luck!
Don't despair! 18 days is just a short period of time. You are only at the beginning of that long road to recovery. If you can, try and get as much rest as you can. Your body has been through a lot. Are you doing anything that is causing stress? Do you work? If so, did you return yet? If you did, ask your boss for light duty. Recovery is essential to your feeling better. You should not feel guilty about resting. Unfortuately for me, I could not do this during my recovery. I had two small sons at the time, and I was a stay at home mother. As for you energy levels, don't worry about it, it's all part of the process. Remember, your body has been through the war, now it has to build itself back up again. Trust me, in time you will feel better. I understand your brain fog issue, but as I said rest is the key. I hope you feel better with each passing day. Let me, or anyone else know, if you have any more questions.
Hi and Welcome!
My suggestion for you is to stick to simple foods: meats, veggies and fruits. It will take you a while to become used to this experience. As for the healing time, it really does vary, depending on you and not getting yourself glutened. For me, it took a year for my body to feel a difference. Now, I can tell you, having lived with this for twelve years now, that you will become an expert at handling everything. Just give it some time! Back in the day, there wasn't as much food availability as there is today. There are so many companies on-line where you can order some of the best cakes, cookies, and even breads. Try the Gluten Free Cookir Jar. This women uses her own baking facility in back of her home, and makes things that taste like the real thing. Do you have a Shoprite store near you? They do carry gluten free foods. Have you ever approached the grocery manager at you local supermarket, and asked if they could order you gluten free foods? I had to do this years ago, and they can be very accomidating just to keep your business. How about health food stores? Are there any near you? They also carry gluten free foods. It's just a matter of patience and time. Besides, we're all here to help! Never be afraid to ask, no matter how stupid you think it is. Good Luck!
I have to tell you that most PCP's are very under educated when it comes to Celiac's Disease. However, since your test results came back about the thyroid issue, there is no reason for the doctor not to trust the results. My PCP tested me several years ago and found that I had Hypothyroidism. There are a lot of us out there with other related problems linked to Celiac's, remember you are never alone. Now, there are several websites that have all kinds of answers that may help you. If you type gluten sensitivity into the google spacebar provided on this site, it will give you several sites that you may find very useful. Be bold, and print out the info for your doc! Never be afraid of educating a physician! I had to do it many years ago, and there was hardly any info out there at the time. I hope that this helps, at least a little. Good luck!
For all of you Catholics out there, here are some things you should remember:
1. NEVER take a host with gluten in it.
2. NEVER drink from the wine chalice, because of the broken bits of wafer in it.
3. ALWAYS voice you concerns with your priest, but don't get your hopes up with any understanding. Most of them
follow the rules.
4. Make peace with yourself. God will forgive you for not being a big part of the faith.
We have to accept the facts. Celiac's Disease NEVER goes away. This year I turned forty, and I feel very fortunate for having the opportunity to receive the host for all of the years I could. I have accpted that God is an understanding being, and that HE understands my not receiving the Body of Christ. I do feel very sorry for the children who will never get this opportunity. They are the one's truly left out in the cold. So, count yourself lucky you had this opportunity. Good Luck!