This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I think because I'm allergic to dairy I cannot take enzymes that have lactase in them because I can take Pancreatin without any problems which digests proteins, starches and fats, so I am happy that FINALLY my problem is solved! So sharing this in case it helps someone else. :-)
So I did try the digestive enzymes with food. One time I didn't vomit although my stomach wanted to, the next I vomited. So no more enzymes for me. Both times I ate a big meal and still I vomited. It feels like it's burning in my stomach so not sure why I cannot take them. It's very disappointing.
I have a lot of muscle weakness...my muscles are disintegrating basically. I read that SIBO can cause problems with digestion of fatty acids and amino acids and I see bits of stuff not digested in the BM so figured it would be a good idea. When reading about how to heal the gut, they say that adding in a digestive enzyme is a good idea too.
lol Gemini that's not a dumb question. I used to take some digestive enzymes and they said that if you take them between meals it digests inflammation so I didn't take them right away after I ate...so that might be it. The company, I just talked to them, said to open up the pill and take a smaller amount. However, right now I'm afraid to take them, after spending a couple hours vomiting last night.
But it did feel like my stomach was burning....so you might have the clue to my mystery...hehe When I get up the nerve to try these again, I will do so but I wonder how I would be able to take a smaller portion..unless I sprinkle it on my food.
I know this is an old post but I bought Digest Gold and it makes me vomit everytime I take them. I also did the same thing with a Garden of Life Product...So I am stumped trying to figure out why. It takes several hours before it happens but this is the second time I tried to take them.
I wish I knew what a biopsy of DH showed if it wasn't taken adjacent to the rash area. I tried to google that lol but didn't work.
I agree with you...They don't want anyone being smarter than they are. The minute I mentioned a diagnosis, they shut me out completely.
I got the results of the biopsy. She said it was a food allergy of some sort. sighs............
When I know what foods I'm allergic to and hadn't eaten anything that I tested positive for. So that's the end of that. At least I was right, it wasn't shingles.
I'm sure it was a relief when you figured out it wasn't cancer.
That's kinda neat yours was an identical, mirrored image, did a doctor get to see that? Mine sorta looked like braille dots on one side of my torso and poison ivy every where else. I always have to be different so the docs have no clue. lol
I would've died if mine had been identical on both sides...yikes!
For years I thought I had poison ivy too, and just found out those are not poison ivy plants but boxelder saplings around my yard. And when the rash would show up somewhere else the next day and the day after, I thought I was somehow spreading the poison ivy. I did discover that very hot tap water was the only way to get any relief from the maddening itch but it works although drastic.
Yes I know squirmingitch. I think the VA used to be much better than it is now. Even the doctors that come in from the University of Louisville, they just seem to have no desire to help figure out what's going on. They really don't care I think. If I was a doctor, the unusual cases would intrigue me more.
One thing I've read about DH is, that it is symmetrical (both sides of the body), so I'm wondering does it mean that if it's on one shoulder it HAS to be on the other shoulder. For me, it was on the backside of both legs, both sides of my torso, although not in identical proportions, but was also on my right front thigh, arm and breast. I don't think shingles even goes that far. And because it was prominent on my left side of the torso, she declared it shingles, when she never bothered to look at the right side.
I didn't know that...that even though you had the rash, you must be eating gluten for it to show up as positive. The minute I got sick, I stopped eating anything gluten or anything that is SIBO aggravating. Because I have SIBO, I've never been able to tell if gluten bothered me because I get GERD, constipation, sick, etc., after eating bread but don't know if it's the SIBO or if it could be the gluten. My allergist (who is outside the VA) has pushed to have me genetic tested and pushed to get me the celiac tests and endoscopy because he felt I had celiac. I had that rash on my elbows in 1983 after they removed my gallbladder, which they said was scabies. So after doing some reading I thought, HEY! This could be the celiac rash after all. Because gluten-free now seems to be a fad to those who aren't sick, most doctors think we actually want to have celiac when that is not true. Who in their right mind would want to go gluten free without good reason!
Thanks Colleen....Yes but it would've been much simpler for them to just do a biopsy....while I was there...ugghhhh And the reason I had a cold sore (it was beneath my nose) was because I had been blowing my nose for two weeks due to the sinus infection.
Thanks Colleen. At this point I'm not sure what I'm gonna do. I'm still recovering from this cold. I'm on the 3rd week now.
I've had fever blisters which is the same virus as shingles. It does not itch until it starts to heal. Have you had shingles and found it itchy? What I have is excruciatingly itchy. But if I rub those spots, it's painful too.
@appletree...I think the problem was she shut me off the minute I said I would like her to do a biopsy for DH. I even asked what does it hurt to do a 2nd biopsy, you are doing one already, why not do one to test for DH? And she said No, and then gave me two different excuses. First she said a DH biopsy was a special test and secondly they weren't allowed to do a DH biopsy until they did a regular one first. I did tell them my allergist thought I had celiac disease in hopes they would take his word over mine but nope. I don't have insurance to go to another Dermatologist. I only have health insurance as a veteran and I have to go the Louisville, Ky VA Hospital. Which is really the worst health insurance to have but it's health insurance.
That doctor was determined it was shingles; even trying to give me medicine. I'll eat my hat if the biopsy comes back as shingles.
I've had a few biopsies over the years and half the time they come back with the wrong diagnosis though and when the biopsy is later redone it comes back with a completely different corrected diagnosis.
Well there went my last chance.
They said DH is only on the knees and buttocks. It can't be on the torso or anywhere else. She said it looked herpetic on my leg but like bug bites on my torso. Oh and she was also wanting to give me medicine for shingles but that's rash she thought it was bug bites. I don't think shingles itches, it's more painful like herpes. So that's the end for me....She refused to do a DH biopsy.