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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About PixieChinchilla

  • Rank
    New Community Member
  • Birthday 11/17/1987

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  • Gender Female
  • Location Oregon
  1. Happy birthday and may God bless you today!

  2. I've been gluten free since October, when my blood test came back positive. [i believe my doctor said that of the four tests they run in the panel, one came back "slightly elevated" but I dont have the exact numbers in front of me right now]. Well, I couldn't get an appointment for a biopsy for a good two months, so I figured instead of the biopsy I would just go gluten free, and it would get better. Now, while I admit that my sickness has changed, it hasn't gotten any better at all. I'm still sick every, every day. I always feel like I'm about to throw up, but I never actually do, and no matter what I eat, it makes me feel sicker. BUT if I go more than three hours without eating something my stomach starts aching because it's empty. Also, I sometimes get stomach aches/cramps that spread across my stomach where my lowest ribs are, all the way around like a band. Usually when I get that ache, it's later in the evening. I've been struggling with this since September 2002. Being this sick for so long and having every test [minus celiac panel] come back negative has been ridiculously frustrating. None of the doctors can seem to come up with anything new to test me for, and I feel stuck in my sickness. I miss food. I want to be able to eat without worrying about how sick it's going to make me. I cant even keep a full time job because I'm too sick too much of the time. Does anyone have any insights as to what might be wrong, or what I'm doing wrong, or what I could do next, or if there's any hope for me at all?
  3. Believe me I know the feeling. I've been gluten-free for four months and I'm still sick every, every day. I know that I'm not slipping up, either. I've been VERY careful. OCD careful. I drive everyone I know crazy with how careful I am. I dont know what to tell you, because I'm ridiculously frustrated.. But sticking with it. I know people who didn't notice results for a full six months. I just hope I'm one of them... :/
  4. Hi. Sorry to hear that you are still struggling. I was finally diagnosed last Nov., and am also still very ill. Got so sick I couldn't work for a while. I read everything that I can get my hands on, and am still learning. Good luck and hope you feel better soon.

  5. Similar Interests?

    I'm definitely an artist at heart. I dont really draw much, though. My brother got most of the drawing skills in the family. I do ceramics and I paint. Also, I do a lot of photography, and photomanipulation. But I'm also into other forms of art. Theatre was a passion of mine in high school. I was really involved in all aspects. And singing has always been and always will be my favorite of all the arts. Without a doubt. :]
  6. Break Down

    I'm a chronic sniffer to! But I'm also VERY OCD about even being around gluten, so I try not to get too close when I'm sniffing. I've been gluten free for almost four months, and I'm still sick all the time, every day. It's been a struggle, but I'm almost 100% sure that gluten is not the only thing I cant handle, since right now I'm on an almost only potato diet because everything I eat makes me sick. But when my boyfriend makes sandwiches or something for his lunches I always lean over his shoulder and just LOOK at them. He thinks I'm totally insane, but is really supportive of everything. He always asks questions about whether certain things are okay or not, and stops eating gluten at least a couple hours before he's going to see me, as well as doesn't eat gluten while I'm around, AND brushes his teeth before I come over. He wont give up his gluten, and I dont expect him to, but he knows that it's been really hard for me to give up so many of my favorite foods, so he tries really hard not to rub it in my face. lol.
  7. So I'm VERY new to the Celiac life. New enough that I haven't gotten a complete positive on all the tests yet, but I'm doing the diet and living the life just in case. I've been trying really hard to eliminate gluten from my diet... but I didn't even think about kissing! Now, I dont have a boyfriend at the moment, but that almost makes it worse, because kisses are more spontaneous when you aren't with someone you're EXPECTING to kiss. o.o So is it true that I have to be careful who I kiss? I'm sure the answer is yes, so the real question is: How careful do I have to be? Thanks much. :]