Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Joyous

Advanced Members
  • Content count

    144
  • Joined

  • Last visited

Community Reputation

0 Neutral

About Joyous

  • Rank
    Advanced Community Member
  1. Yeah. I think I'm going to do that with my tax return. My son's pediatric GI appointment is on the 25th, so it'll be interesting to see how his results come back. If he tests positive, I'll be doing the diet even if my enterolab test comes back negative. And I may do it anyways even if his tests come back negative.
  2. "t-Transglutaminase IgG <1 f@" (and it lists 0 - 5 as negative, 6 - 9 as weak positive, and >9 as positive) "Endomysial Antibody IgA Negative @" It says the tests were performed at LabCorp in Burlington, NC.
  3. That's interesting, thank you.
  4. http://consensus.nih.gov/2004/2004CeliacDisease118html.htm
  5. My seven year old seems to have puffy eyes (mostly above his eyes) in the winter. How likely is it that this is connected to gluten intolerance?
  6. Oh yeah, and his girlfriend is a nurse and he says they have a friend whose a doctor who he wants to talk to about this. He'll most likely show them whatever I give him, and if they try to discredit it, he'll be much much more likely to accept whatever his girlfriend and the doctor tell him than any information I give him, so reputability/credibility of the source is extremely important.
  7. He told me to go ahead and set up a doctor appointment, and he wants me to email him some information. I need the most useful, simple, and accurate information from the most reputable sources. Any suggestions?
  8. Sorry, I was going to try to find a link when I posted it but had to get my kid to school and didn't know if I'd have time to google it (ended up being easy because apparently all you have to do with something like that is put quotes around a whole sentence and search for it, and it comes up right away). Here's what I've found: http://www.come-over.to/FAS/FASDnutrition.htm Anyways... I don't want to make it sound like I'm saying this DEFINITELY IS TRUE or anything like that. I don't know how credible the source is, but when I originally found it I had been reading similar things from other sources (no idea what they were anymore). The article isn't even specifically about Celiac Disease.
  9. I was under the impression that the blood antibody test often give false negatives. Can they see damage to the small intestine through a colonoscopy? I thought they have to do an endoscopy to see the small intestine? Either way, the colonoscopy is already scheduled (due to blood in my BMs which I'm fairly certain is just due to constipation).
  10. I will, thanks for the advice. I planned on it if I didn't get anywhere going the dr. route. I may just have my son tested with enterolab and if his tests are positive have both of us go gluten free. Or I may go gluten free even if his tests aren't positive and see if I feel significantly better after a couple months. Yes, I believe that's the problem. WTF does "you look healthy" mean anyways? I don't think I look healthy. My eyes are dull, the area under my eyes is dar, my skin is horrible... maybe I'm not wasting away but for crying out loud, since when does gluten intolerance mean you automatically "look" like you're obviously unhealthy? I did an experiment where I stopped eating gluten for a short period of time and felt better, but now I'm doubting myself. Maybe I just felt better because I was eating healthier in general? Maybe it really is in my head? Good point. Yep, that's the reaction I get for anything I go into a doctor for. "You take psychiatric medications, so this must just be related to psychiatric illnesses. Have you talked to your psychiatrist about this?" Then when I do talk to her about it she looks shock for a second, then shakes her head and asks why that complaint would be related to my mental health. lol
  11. My GI doctor told me that the only condition with alternating diarrhea and constipation is IBS (as evidence for why he doesn't think I'm gluten intolerant). I've read otherwise, but I'm curious as to people's actual experiences with this. Is this guy just simply wrong, or is the stuff I've been reading wrong, or is it sometimes the case?
  12. WTF He didn't give me a chance to explain things or ask questions, said a lot about Celiac Disease that contradicts everything I've read (and I've read a fair amount about it), said I probably didn't have anything other than IBS because I "look healthy", and even started talking about psychosomatic this and that. However, all I really expected out of the appointment was the antibody tests, which he ordered (he didn't order the gene test though), and I won't be surprised if they come back negative even though I probably am gluten intolerant. But... what if I'm not really gluten intolerant after all?
  13. Now that I think about it, I think the opioid peptides actually come from the gluten itself. They end up going through the intestinal wall and crossing the blood brain barrier. (I obviously need to learn more about this. lol) Let me see if I can find the article I read... Okay, got it. However, perhaps when we eat things that are poison to our bodies it's reaction to pain and/or danger is to be expected? I have read about how people who lack the enzymes to digest certain sugars can become addicted to them because of the release of endorphins, which can be addictive. Also, some people (especially people who can't absorb the nutrients from their food?) have low levels of norepinephrine (not to mentioned other neurotransmitters) because the proteins we eat contain amino acids that are precursers to neurotransmitters such as dopamine, norepinephrine, and seratonin. I've got a chart in my photobucket about how low levels of these things can cause addictions and other symptoms. http://i14.photobucket.com/albums/a317/cha...sanddogs003.jpg So yeah, a lot of food containing gluten are also starchy. Cravings for bread or pasta (among other things, as you can see) could be the result of malabsorbtion. Now, having said all that, I've read that many people go through a week or so of withdrawals when they stop consuming foods they're intolerant to. Taking certain supplements can help with this. When I stopped eating gluten for a week and a half as an experiment, I didn't go through any type of withdrawal, but I was taking some of the supplements listed in that chart as well as L-glutamine and a good multivitamin. The one that seems to help me the most is DLPA (listed in the chart as DL-phenylalanine).