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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. Breakfast

    If you can find Lifestream Buckwheat Waffles (gluten-free, of course) in your organic or healthfood store's freezer I urge you to try them! I can even pop one in the toaster and eat it plain on my way to work - they are that good!
  2. LUAP - That was SO interesting! I really liked your comment on how all the doctors know to do is tell us not to eat gluten, which we are glad to know, of course, but it is so evident that more research is needed on this strange disease. One day, maybe even in our lifetime, someone will find the answer! LUAP and red345 - I agree about the beta blockers. I've heard bad things about them for years so when my doctor suggested I start them for hypertension I am SO glad I asked her for a different drug. Maybe this should be a warning to others who are asked to take them. There are almost always alternatives. red345 - I wanted to let you know that I had the symptoms of Lupus first, for about 2 years, before they found celiac. Going gluten free hasn't induced any further health problems for me and it's been nearly 15 years. As a matter of fact, going gluten free seemed to clear up many of my symptoms of Lupus. My weight and cholesterol are good (I follow a low carb diet) and I've never heard of hypertension (my only "new" health problem) being related to celiac disease.
  3. amfcsq - Hi! Good luck with your testing. Can I give some advice? If you are having ANY symptoms of celiac disease and your tests come back negative I urge you to still follow the gluten-free diet. Now, concerning the low carb diets - I have lost 25 pounds and kept it off for nearly a year by eating low carb (probably around 50 carbs a day, on average) and I just had a pretty extensive yearly physical and everything associated with my heart checked out great. I haven't heard of any kidney damage caused by a low carb diet, but I'll be on the alert for that. I've just always heard warnings of heart problems but my husband and I both checked out good in that area. (He also did the low carb and lost 30 pounds.) We eat sensibly, not a whole lot of red meat, mostly chicken and fish, and vegetables, but we do eat lots of "regular" dairy products instead of the light or low fat ones. (The light and low or no fat ones have more carbs!) I hate that you felt the need to abandon the diet and have gained your weight back. But all of us must do what we feel is best for our health. If you do have to go gluten-free, the low carb diet is really the easiest to do. Let us know how your test results come out.
  4. Sorry to bring the subject up again about beta blockers but I do want to make a definite point. Everyone, especially us celiacs, should take a HUGE role, as much as humanly possible, in our health care. Many of you have learned, as I have, that we can not completely trust our doctors (they are only human, afterall) and that we SHOULD question their advice and do our own research and at times, yes, even refuse to take the medication they have prescribed (or just given to us for free as samples to try). I know now that I will NEVER take beta blockers because, as I stated earlier, I had already heard negative things about them years ago, and now from Barbara and you, Kevin. Just to ease your mind, Kevin, I will explain that I am already taking medication to lower my blood pressure (the reason I was given the beta blockers) but am experiencing a negative side affect so when I called my doctor she said she had some samples of a beta blocker if I wanted to try them. I did go by and pick them up but had that nagging negative feeling about trying them. Reading those posts did help in making my decision but WAS NOT the sole reason! We celiacs are a pretty experienced and savvy group just because of our variety of medical problems. I would NEVER jeopardize my health by suddenly stopping a medication based on info I read in a post, even by someone who sounds as intelligent as you, Kevin. A lot of good info is coming out of this thread and I hope it continues.
  5. KEVIN - I have to thank you for the info on the beta blockers. My doctor just recently gave me samples of them to try for lowering my blood pressure. Thankfully years ago I had heard negative comments about them so I decided to hold off trying them. Now after reading your posts I know I will definitely NOT take them, especially since I have full-blown celiac disease and Lupus looming large behind the scene (no obvious symptoms now, just a HUGE jump in my ANA level, which my doctor knows about but still gave me the beta blockers). So, thanks again for the info. And at your young age, I don't see why you aren't pursuing a medical career. Do it while you're young!
  6. I'll answer just a few of your questions now, maybe more later as I find this VERY interesting. I was first thought to have systemic lupus as I had several of the main symptoms, including the blood marker. Doc had a wait and see attitude (thankfully) and about a year later the stomach trouble had worsened terribly and I was finally dx'd with celiac disease. Once I went gluten-free nearly all the symptoms of lupus went away, too. I took tetracycline from age 16 to 23 for acne (terrible mistake, acne wasn't even that bad, but a dermatologist prescribed it). Once I became pregnant with my first child I stopped the tetracycline and began having lots of digestive problems. (I lost weight instead of gaining for the first 3 or 4 months.) I was very sick with all three of my pregnancies, very anemic and never gained much weight, although all three children were born very healthy, thank God! After my third and final pregnancy I seemed to never recover, staying sick and anemic and then the lupus symptoms began, then the celiac disease. I've oftened wondered if the tetracycline or the pregnancy was my "trigger" for celiac disease. I may never know for sure, but I think this type of research is SO important and I hope you get many more responses. Good luck! Vicki
  7. Janine, my doctor also had trouble believing that B/P meds could cause an upset stomach. Thankfully she did say to stop the med for a few days and see if I got better. Of couse I did get better. Then when I try a new medication I get sick again. I'm now about to try beta blockers for the first time (with lots of trepidation). One thing, though, my doctor said to give my stomach a rest between trying meds to let it heal, even tho my B/P goes up. I wondered if you were doing the same. Please let me know if you do find a medication that you can take with no stomach problems and I'll be sure to do the same. Good luck! Vicki
  8. I was almost clinically diagnosed with lupus just before I found out I had celiac disease (about 15 years ago). Even though I had many symptoms of lupus my doctor was reluctant to actually dx it 'cause he would then HAVE to put me on medication which he said would make me feel worse than the disease. I had the malar rash, joint pain, extreme fatigue, and an ANA of 1:1200. BUT, after I was dx'd with celiac disease and went gluten-free just about all the symptoms of lupus went away too. Now, of course, I am so glad my doctor had a "wait and see" attitude and did not start me on steroids. However, my doctor is watching me closely because over the years my ANA still remains high, varying between 1:600 to 1:1200. (For those who don't know, the Anti-Nuclear Antibodies are considered the "marker" in the blood for lupus. The normal range for ANA is between 1:40 to 1:80, I believe.) Several doctors over the years have mentioned that when you have one autoimmune disease it is not uncommon to have others. They may even be linked, as it seemed celiac disease and lupus were for me. I truly wish that going gluten-free would help all the rest of you with your lupus symptoms as much as it did me. I'm told they could come back for me at any time, though. It's like a time bomb ticking inside.....I try not to think about it!
  9. Beelzebubble, are you currently taking those meds for high blood pressure and not having any negative reactions to them? The ones I've tried upset my stomach terribly. Thanks
  10. I am having a difficult time finding a medication I can tolerate for hypertension. The ones I've tried upset my stomach and my dr. seems baffled as to what to try next. If you are taking medicine for high blood pressure could you please let me know what you are currently taking? Thanks.
  11. If you have celiac disease and hypertension I need to know what medication you take for it. After several years of high blood pressure readings my doctor finally insisted I go on medication. (I had begged off to try losing weight, which I did, exercising more and cutting out salt but that didn't lower it enough.) The medications I have tried really upset my stomach. I started out on hydrochlorothizide and then switched to Univasc, which I only stayed on for 4 days because I would have needed to wear diapers! My dr. told me to give my stomach a rest for a couple of days and once I stopped taking it I was so much better so I know it is the medicine. My dr. seems baffled by this (she knows I have celiac disease, of course). Please let me hear from you. Thanks!
  12. LisaB, I began a low carb diet about the middle of August and by Thanksgiving I had lost a little over 20 lbs. That's a little slower than I had hoped to lose it but I have had no trouble keeping it off even with eating more during the holidays. So I am very happy with the results and especially with how I feel! I plan to get back to the low carb routine (under 50 a day) to lose my last 5-7 lbs. At first I only allowed myself 20-25 carbs a day and then once I really began losing I increased it a little. It honestly hasn't been that hard and I had tried other diets that were hard to stay on and I couldn't lose the weight. Good luck to you if you decide to try it and please let me know how you're doing!
  13. Tiffany, If I were you I would stay gluten-free since it is a real possibility that you could go through with the gluten-loading, have the blood tests again and even the biopsy and STILL end up with an inconclusive diagnosis or an incorrect one. But this is something that you have to decide for yourself. Frankly, after over a dozen years of dealing with celiac disease and about as many doctors I don't really care what they think or even if they believe me or not. I just look out for myself and do what I know I have to. Listen, I even had the "gold standard" for proving that you have celiac, (yes,a very positive biopsy) and still new doctors will look skeptically at me when I announce that I have celiac disease. So you could go through all that and still have the ambiguity and the skepticism. Make your decision and then confidently live with it. Good luck.
  14. LisaB, Allow me to add a few vegetables to Welda's list (I know these work because I just lost lots of weight while eating them!): yellow squash (which I lightly battered in cornmeal and fried - heavenly!), zucchini (also fried - remember oil has no carbohydrates!), green beans (French or Italian or fresh - the fresh ones are delicious roasted), and I use sweet onion in lots of dishes, just kept to a minimum, and also after I really began losing the weight I had no trouble adding in a few more carbs daily so I began eating fresh new or red potatoes (they have the lowest carbs of the potatoes) and I was still able to keep losing weight! It was amazing to me how well I could eat and still lose weight. I am within 5 lbs. of my goal and see no problem in maintaining. And the difference in how much better I feel since giving up sugar and all those carbs is unbelievable! If you decide to try it I hope it works as well for you.
  15. Losing Weight...

    Hi aball, I did the same as you, adding on lots of weight with gluten-free junk food once I became well again. But I just recently lost over 20 pounds following a low-carb high-protein diet. It's so easy to follow and stay gluten-free because you eat mostly meats, eggs, cheese, and low-carb vegetables. You have to stay away from starches (potatoes, rice, corn, etc.) and sugar, but the diet really works. I never thought I could drink diet Coke or leave sugar off entirely, but the amazing thing is how much better I feel now - more energy, sleep much better, etc. I've got several of the Atkins cookbooks and the great thing is I don't have to modify the recipes because they don't use wheat flour! Or hardly anything that contains gluten. It might be worth a try for you because you can lose weight and not have to go hungry! Good luck! P.S. I'm so glad they added this forum on weight control! Hooray - is GRRRRREATTTT!!!!!!!