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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. Be really careful about the gluten free diet and possibly other products as well. Keep in mind it can take a long time for the intestine to fully(or almost fully recover)from the damage caused by celiac disease.Probably years,but nevertheless you will probably feel quite a bit better within a few months.After being on the gluten free diet for awhile I felt like I was 20 years younger relative to how I felt before.Depending on your sensitivity level you have to be really careful about even trace amounts that may be hidden in certain products.Don't rely on lists,if there's any doubt ie questionable ingredients or processed foods,call the manufacturer.And don't add too many new foods to your list at once.This way you have a better idea of what you might be reacting to. My Gi doctor related a story about one patient who continued to have symptoms despite an ultra-strict diet.They eventually figured out that the problem was with her lipstick. Don't worry,it gets better and better the longer you stick with the diet.
  2. This has got to be a fairly major blast of publicity for our malady,but as my wife noted the references to celiac disease slipped by fairly quickly so one wonders what the retention of the general public will be.The case was fairly extreme but not totally implausible.I call House a diagnostic melodrama,and in speculating about their story line it came to mind that gluten sensitivity in rare cases can cause a type of epilepsy with brain calcifications(not necessarily in conjunction with villous atrophy)and thought that maybe that put them on this story track,but would have been too obvious if they ran a brain scan,so they went with a more hidden case of stomach lymphoma.The episode may have stretched the bounds of reality with respect to the disease but it did underline some serious complications esp GI lymphoma.I find my own family doesn't take celiac seriously,and my own sisters declined to get tested even though the GI doc said all my siblings and their children should be tested.The episode also had a pretty cool CSI type medical graphic of villous atrophy in progress.That supports the fundamentals of the disease.My GI doc had related that (hypothetically) if he had a device on the endoscope to squirt a small amount of gluten juice into the small intestine,and it had returned to normal after a long time on the gluten free diet,the biopsy results would revert to abnormal from normal in a matter of minutes.
  3. Anemia is a real possibility as celiac can interfere with iron absorption.This can really cause problems with low energy and sleepiness too.Is your doctor really familiar with celiac disease.Many are not and they tend to downplay symptoms like these.Bloodtests are probably a good idea.My doctors also checked for thyroid problems as mentioned above.I do construction work and I can vouch for the fact that anemia can really take a toll on your energy. good luck
  4. With those symptoms you should really see a GI doc.You can certainly have other serious conditions in addition to the celiac disease,or perhaps as a result of it.In reference to the heartburn,this is not something to take lightly.When they did an EGD and discovered I had celiac sprue they also discovered I had a condition called Barrets Esophagus which can be related to acid reflux and heartburn and is a significant risk factor for cancer of the esophagus.They take it seriously enough to check it with an endoscope every year.I also had severe abdominal pain during a crisis period that led to diagnosis.My original GI doc was skeptical about the sprue as a source of the pain and surmised that it might be referred pain from the Barrett's,but he wasn't sure about that either.Apparently nothing is too clearcut when it comes to the GI tract.I would advise seeing a doctor sooner rather than later with those symptoms.
  5. Yes,I had symptoms starting as pain in the right big toe which later became numbness and progressively got worse and affected the feet and lower leg on both sides.This progressed over a number of years,and my doctor did not come up with a reason for it.I had also ameliorated my digestive symptoms with a high fibre vegetarian diet,but was eventually diagnosed when I went in for severe abdominal pain and they discovered I was anaemic.This started them off to the races with the tests but it took a while to reach a diagnosis because celiac disease was near the end of their list of possibilities.Once I went on a gluten free diet the numbness was one of the quickest symptoms to go away and was almost 90% gone in a few months,but after seven months I still have some lingering neurological symptoms including a persistant tingling around the left ear and sometimes it affects the thumb and index fingers,but overall the severity was rapidly lessened with the gluten free diet.If celiac disease is the cause the gluten-free diet may help fairly quickly.My doctors didn't have much to say about these syptoms and seem to be waiting to see if they will go away from the diet.I did find some information relating to this on the Columbia University GI website which seems very informative. hope this is helpful, good luck
  6. Does anyone know if disodium EDTA is a safe ingredient.Its used in these beans that I like. Thanks in advance