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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About njbeachbum

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  • Birthday 07/03/1977

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  1. Bumping....   Hi again - surprised that I didn't hear from anyone else dealing with EoE and Celiac Disease.  I got my Basic Food Allergy panel results back on Friday and it was kind of a shocking punch in the gut (no pun intended).   The RAST testing shows that I'm having IgE responses to:   Corn - Class 2 Eggs, Soy, and Peanut - Class 3   And now my journey begins again - through food labels and frustration and grocery store woes!
  2. Good morning all!  It's been a long time since I've posted here.  I was diagnosed as Celiac at the end of 2007 and have since taken control of my disease and eating in a way that makes me very proud.  I host holidays like Thanksgiving, Christmas & Easter that are 100% gluten free and neither me or my family ever feels deprived.   But following up a month or so of recurring stomach pain, I made an appointment to see my gastro for the first time in a couple of years.  The pain was an upper abdominal burning sensation that would come and go and at some points was quite severe.  Of course, my gastro appointment was 3 weeks out, so I saw my primary care in the meantime.  He prescribed Nexium (shocker), drew some blood and sent me for an ultrasound which turned up nothing.  I had already put myself on a fairly bland diet to keep the acid to a minimum, was taking a 2 week course of Prilosec OTC, cut out drinking and limited my coffee/caffeine.   Fast forward to gastro appointment - he notes that in my bloodwork, my Eosinophils were high (the number was 12 and the high end of the range is typically 5-7), which he said indicates that I've most likely got some food allergies. He then flips through my chart and says that in my last endoscopy they found evidence of Eosinophilic Esophagitis (PS, I was never told about this finding... I did not get a copy of the report because the endo was just a follow up on my Celiac diagnosis... and at the procedure, he said there was no further evidence of Celiac disease present).   So now I had an endoscopy on Monday, 4/29 and he said there is clear evidence of EoE.  I had been sent for a "basic food allergy panel" blood test, but now I have no idea what the next steps are.  I'm 35, going on 36 in July.  Are there any other adults out there who have been diagnosed with EoE as adults?  I'm now eliminating things from my diet, but I feel very scattered.  What are the best ways to identify your EoE trigger foods?  This is much harder than Celiac because it's not just gluten and the trigger is now just a big mystery.   I found an allergist nearby that lists EoE as one of her specialties, so I will be reaching out for an appointment there.   I'm just very frustrated and looking to see if there is anyone that has dealt with this as an adult (most of what I read about EoE refers to very young children).  And also, my eosinophils were only a 12, which does not seem very high.  I wonder if that can indicate that my triggers may only be a couple of items.   Thanks for listening and for any help you can provide!
  3. Think Thin Bars

    I had a feeling these were a bigger problem for people than I thought! I've had larabars but they are low on protein... I'm looking for something with whey and up to 20g per bar if possible.
  4. Raven- I'm 33 years old and I was diagnosed 3 years ago... and I didn't truly find my cooking "mojo" until I was gluten free. I love watching Food Network TV and I pride myself on the fact that I've been able to make almost any recipe I see in a gluten free version. UNTIL you see those Phyllo dough recipes.... my partner is Greek, so he grew up with it. And it's impossible... there really is no gluten-free substitute! Sad... Building off that, I love to watch the show "The Best Thing I Ever Ate" on food network... and the Neely's were scarfing down a huge piece of pound cake with caramel sauce all over it.... and it looked SOOO good. I wanted a big huge bite, but then I realized that I could make it if I wanted to
  5. I've been eating Think Thin protein bars for awhile and I really enjoy the taste and the quick dose of protein you can get from one of them. I've always trusted them to be gluten free and healthy, and they are extremely filling. I work a 9-5 office job, and I would always have one at around 4 as a pick me up at the end of the day. But, in the past couple of months I started to notice that I would get very gassy and bloated in the evening. I didn't recall having any problems before, so I never made the connection to the Think Thin bars. Then I did some reading about the Malitol (sugar alcohol) that is used in these bars, and realized that it causes exactly those side effects. I stopped eating them and the symptoms subsided. Has anyone else had this kind of reaction to Think Thin bars? And more importantly, what other protein bars are you using out there? I loved that you got 20g of protein from one of those.... I tried the Jay Robb bars from Whole Foods and they were pretty good, but cost 2.99 each! Are there any other gluten free protein bars out there? I'd prefer whey protein to soy, but whatever I can get really!
  6. I agree with you 100%, it is always a very personal decision - and honestly, there are enough personal care products out there that don't have gluten in them, so it is easy to avoid. But if you are really stuck on one particular shampoo, then only you can decide.
  7. Let's be realistic here - think about the percentage of the shampoo that is made up of wheat... maybe 1 or 2% of the final product, but probably much less? Then let's think about how much shampoo you actually use for your hair in the shower. Then let's think about how much could POSSIBLY get into your mouth. You are probably looking at more risk from eating Tostitos that could be cross contaminated from equipment that handle wheat products. I'm not saying that my word is the "end all" of the conversation, but I'm saying that everyone is in charge of the risk that they are willing to take, and it's better to not cause mass hysteria on this site by telling people that using shampoo with wheat at the bottom of the ingredients will make them very sick. I've been gluten-free for 3 years and I have used on and off the Paul Mitchell Tea Tree Shampoo that has wheat in the ingredients. It doesn't make me sick because I don't eat it by the spoonful.
  8. If you're not eating it, then I really wouldn't worry about cross contamination.
  9. i definitely wouldn't say that Udi's is settling.... it's excellent sandwich bread! but for cinnamon raisin, try French Meadows... they have a great gluten-free version
  10. Whey Protein

    Awesome, thanks! Casein protein is the best at night because it's slower absorbing right? A good option is always a cup of greek yogurt before bed for a dose of about 15g of protein.
  11. Pie Crust!

    just an idea for a quick crust.... my partner made a quiche one day and for the crust he used corn chex - just pulverized them in the food processor with melted butter until it formed a sticky, crumbly mixture. He pressed it into the pie plate, filled it and baked and it was fantastic. The eggy quiche mixture seemed to seep into the crust and help it harden and stay together. It sliced beautifully... try it!!
  12. Hi Lisa - I know this thread is a couple of months old, but I saw that you stopped eating the Think Thin bars because they were making you sick. I've been eating these for over a year now and just recently started to notice that I was getting very gassy and bloated in the late afternoon/evening (I eat one everyday at 4pm when I'm at work, like clockwork). I finally realized that this could be causing the problem - I know a lot of people have trouble with Malitol and other similar sugar alcohols. Have you found a good substitute? Hope you are feeling well. -Joe
  13. Is There A List Anywhere?

    Hi Patti! Thanks for the info - I have lived in Lakewood near Ocean County Park for about 7 years or so. Your list is great... I did not know about Mileto in PPB, so I'll have to check that one out. I've eaten at Outback in Brick many times and I've usually felt fine afterwards. I usually just get the filet with a sweet potato and a plain salad with oil & vinegar, so I don't take many risks. But Carraba's has made me feel yucky most times that I've eaten there. I'll have to try the Italian place in the Stop & Shop plaza - that supermarket is great and has an excellent selection. I always get my Aleia's gluten free stuffing mix there around thanksgiving! (And various other wonderful items) Take it easy, Joe
  14. Whey Protein

    Hey thanks Wheatfreedude! I appreciate the response. I picked up some of the 100% Whey at Vitamin Shoppe this weekend and tried it out this morning. I might try out the 100% Casein for overnight workout recovery too. The 100% Whey really mixes much smoother than the other stuff I used and the Vanilla Ice Cream flavor is quite tasty! I use the Insanity workout program (from beachbody) in the AM and need a really substantial recovery drink to fuel my muscles and get myself moving through the rest of the day. I saw great results from that program in my first round and I never even used their nutrition guide - it's too difficult for a Celiac to "adapt" a meal plan like that. Anyway, thanks again and it's great to see other fit/active Celiacs out there
  15. Breakfast Out?!

    Breakfast is the one meal that worries me - most breakfast places are quick turnaround and they've got all kinds of stuff flying onto and off of the same grill. I like the idea of asking for a clean pan off of the main grill... shockingly, I never thought of that. What I do for breakfast that is almost always a safe bet - as for a couple of hard boiled eggs! Most places will do that for you. Then you can get some fresh fruit on the side - maybe a banana or some places sell melon, berries, etc. And of course, COFFEE!! the best part of breakfast Enjoy and good luck!