This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I'm bumping this thread..when I posted in July 2009 the angus burger contained wheat, and 6 months later they changed the seasonings, which I only found out about now! My non-gluten-free daughter wants to go there, and since my gluten-free son wanted a toy and apple dippers, I decided to re-check the allergy info. I was wondering if anyone else has been brave enough to order a burger sans bun at McDonalds lately.
Sulfapyridine has some of the same side effects as dapsone, and it's probably pricey since it's an orphan drug.
Nicotinamide, from what I've searched, is used in conjunction with another drug like a tetracycline, not alone.
Antihistamines do nothing for DH (except if you take enough of them to make you fall asleep). DH isn't a histamine response, it's another part of the immune system. I've found that Sarna lotion (the one without the menthol) works great. It contains the painkiller that's in Neosporin Pain and it works great to dull the itching.
As for iodine, you don't need to go iodine free, just don't use iodized salt and avoid shellfish and seaweed for a few months. There's enough iodine in the rest of your food to make sure you get enough (you don't need much). NSAIDS also can aggravate DH, use Tylenol instead of Advil or Aleve for awhile too. Good luck!
I would go to glutenfreedrugs.com. Print out his list of gluten free drugs and send it to the hospital before you go, so the hospital pharmacist knows which meds to give you. Brand name Percoset is gluten-free according to the list. Because of the way they're formulated (liquids, not solid pills) injectable drugs don't have gluten in them, so if for some reason you have to have a c-section (I hope not), you don't have to worry about the spinal or the IV on top of everything else. Besides, they don't ever go though your digestive system so they're safe.
HEre's more info;
The drug companies are not required to list allergens on medications, so yes. If you look at your equate bottles, there's a toll free number on the back. Call them and ask if your medications are gluten-free. Any ingredient containing the word 'starch' is suspect, but it doesn't necesarily mean it contains wheat starch. Take a look at glutenfreedrugs.com, there's a list of gluten-free prescription meds and a list of ingredients that may contain wheat. Good luck!
If I didn't have those nasty side effects, my goal was to stay on it for a year and then taper off. I'd heard that it takes about a year for DH to totally clear up on its own (no dapsone), but that may be just anecdotal. I would think about how long you want to stay on, then taper off the drug (take 1/2 pill a day for a week or 2, the 1/4 per day for the same time). Did you know there is a topical dapsone? It's called Aczone and it's for a certain kind of acne. It's really pricey, but I have afew sample tubes from my dermatologist that I used on some particulary long-existing sores. I didn't have any active lesions so I couldn't check it. Search the forums for 'aczone' and you may get more results. Congrats on feeling better!
I agree with Richard, you must absolutely have blood tests, weekly for the first month then monthly after that. I had no problems with my bloodwork, but I had the other side effect, which is extreme muscle weakness. I couldn't walk without being out of breath and tired, and I pulled more muscles than I knew I had. I couldn't exercise and gained weight. I heard a story on these boards of a runner who had to give up running because his muscles were so weak. I was on dapsone for about 9 months and went off slowly, and it took me abother 6 months to get y muscle strength back. However, now that the gluten is out of my system I can eat iodine and shellfish with no breakouts. I didn't know if you knew to stay away from NSAIDS too, like Advil and Aleve. Both NSAIDS and iodine can aggravate your DH, but only when there's already gluten in your system. Strict gluten-free diet = you can eat iodine again, but if you think you've been glutened stay away from it for a week until the gluten gets out of your system. Good luck!
Hee hee, that's hilarious but so true! A lot of gluten-free beers are just too sweet for me. I've decided that redbridge and New Grist are my top two. Have you tried St. Peters Sorgam Ale? It's my very favorite, it's drier and a lot hoppier than the gluten-free beers out there. (PS, this isn't my blog, I'm just using it for reference: beer photo link)
I can't wait to try the Estrella Damm. On another note, I've told my husband that if a brewer doesn't make me a gluten-free stout soon I'm going to have to try making one myself!
One thing you may want to try are ciders, not the candy-a$$ stuff like Woodchuck, but hardcore like Strongbow or Woodpecker or anything from the UK. They are dry and not very sweet. My fave is from Ireland, it's called Magners. I have to drive to Wisconsin to get it, but I know a guy.
I wanted to post an update, I didn't end up going to CF because there was a snow/ice storm and we would have had to drive through it for an hour. Just FYI, the last time I was there I had the thai chicken lettuce wraps, which are fine as long as you ask for grilled chicken and no side sauces (the coconut sauce on the noodles is fine, and acc. to the list I linked to above maybe you can add a salad dressing so it isn't so boring). I usually stay away from places like this anyways.
YOgurt, some dried fruits, a lot of Aldi canned goods now say 'gluten free' on the label. They also have Fit and Active meatballs that appear to be gluten-free, I bought a bag to try. Some lunch meats and all their hummus is labeled gluten-free.
Are you eating iodized salt? When you first go gluten-free, to keep the DH from getting worse you need to stay away from iodine and NSAIDS(like advil and aleve) for awhile until all the the gluten gets out of your system, maybe a couple months. Iodine is found in vitamins, seaweed, and shellfish, as well as iodized salt. Once you're gluten-free for awhile iodine and NSAIDS won't be a problem and you can have them again.
As for personal care products, the gluten can't get into your system through your skin (seems logical, but a lot of people on these boards argue to the contrary), but if you then lick your fingers after eating or get some of your hair in your mouth then you're ingesting the gluten and that is bad. Watch for oatmeal too, no aveeno products anymore!
According to my link above, the Godiva chocolate cheesecake is not listed as gluten-free, but I think that's because Godiva states that all their chocolate is not gluten-free (I believe it's a CC issue, and so jas the Triumph guide's blog). I'll probably take the risk and get the cheesecake.