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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Genie75

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  1. Hey there! Glad to hear you have recovered, and have a supportive doctor. I agree wholly with the probiotics. I was told by my ND that I have to take them for the rest of my life. So I take them all the time. The Ultra Flamx did not work for me. As I have recently found out why is because I don't digest carbs. I have found the digestive enzymes work wonders, in particular the carb dig enzyme. However, with full strength regular dig enzymes they are too much for me and give me bad heartburn. Good to hear you have found what works for you!!!! Best wishes!
  2. Hello All, After wracking my brain over and over again, talking to doctors, people, and lots and lots of thinking, I have finally figured out why I have been so sick since last November, and why the previous few years I was doing so well on the gluten free diet. I am a self-diagnosed celiac, mainly because by the time they decided to start doing the small bowel biopsy on me, I had been eating gluten free for quite a while. However, my doctors do not consider me CELIAC because I don't have an official test result that proves it. So I don't get any support from the doctors as being CELIAC, and that in itself is very frustrating. And not only that, but it makes me doubt myself at time too, and gets me into thinking that maybe I am not Celiac. However, the results of eating gluten are too devastating to start eating them again. After wracking my brains out, and my doctor as well, as to why I have been doing significantly worse (she believes I am IBS), she thought I should go back onto my antidepressants again, as that was a significant change that happened early last year. Also, another change was that I got braces. I had actually been pondering to go back onto antidepressants as it is known that stress can worsen IBS syptoms. However, I was also reluctant because I don't like the side-effects and it was very hard to get off of them. After much thought, and then not thinking about it, it came to me. A significant change that I made was that I stopped taking my carbohydrate digestive enzymes, right around the same time I came off of Pantaloc (reduces acid due to hiatal hernia). My logic was that now I should have more acid in my stomach so I shouldn't need the enzymes anymore. So after talking with my bf, about going back onto the carbohydrate digestive enzymes (natural), and explaining to him that my body does not digest carbs very well (flours of any kind, veggies, even potatoes lately), the thought occurred to me to google "inability to digest carbs. The following article came up. I found several other people on forums with the exact same problem. And a doctor replied to one of them and referenced the following article: What an eye opener that was !!!!! I know many of you have told me to cut down on dairy products. However, I never realized the implications of eating dairy products when one is lactose intolerant. I had no idea it would cause one's body to stop being able to process carbs!!!! I had no idea!!!!! And the doctor also replied that lactose intolerance is common in those with Celiac disease. So I have now eliminated dairy products from my diet (and of course glutens long time ago), and I am a much happier healthier person! My pain in my left side is finally gone!!!!! (and I have not been eating any grains whatsoever for now either (Paleo diet). I just want to say I used to be cautious eating dairy products and watching what I eat. But since my bf, I have let me guard done and seem to be easily persuaded to eat stuff I normally would not eat. So I am learning to say "please don't cook for me", or "I'll cook for us", or refusing to eat some of the stuff on my plate . To everyone out there, never give up in your quest to figure out all of your food triggers. There is always hope! And the one big thing I want to say, is that if you are feeling really sick and tired of eating cause it is making you sick, fasting is a good way to give your system a rest. Janet
  3. I Eat Like a Bear Fish and fruit is mostly what I eat. Just like a bear. Think what you like of me. Don't try to fix me. If a bear ain't eating it, Neither am I. Ever see a bear eating mashed potatoes, beer or cake? Yup gonna eat like a bear!!!!
  4. Hello, I am just posting to say that I am feeling better today. In sheer exasperation I stopped eating and started fasting. I fasted for 24 hours, and I went into a health food store to buy a D-Tox kit. Inside the D-tox kit was the "Wild Rose Meal Plan". I think I have heard of this diet before, but it gave me renewed hope of how to eat and be happy at the same time . A lot of my problem is I get frustrated and start feeling like everything is making sick and then become scared to eat. I am happy to find that this Meal Plan allows me to eat as much fish as I like!!!!!! That really gives me a lot of hope. So I went home that night and had a can of Sockeye Salmon, minced onion and lemon juice, and then had peeled plums after that, and a probiotic capsule. And then started again on 1/8 tsp of 3Lac. And I felt really good. So I am going to follow that meal plan, and see how I do. I decided not to take the herbal remedies yet that come with the detox kit because I don't feel that my digestive system is stable enough to handle it. Will wait till I stabilize a bit. Thanx for listening. I need a lot of support in this. My goal is to get stabilized again, and to get rid of the pain in the left side. I can still sort of feel it. Probably the fasting is the best thing for the pain. So I'm trying to abstain from food for 12 - 14 hours each day. So no eating after 6:00 PM. Bye, Janet
  5. It's quite possible you have Irritable Bowel Syndrome as well. IBS is a very difficult condition to deal with, and there are special diets to deal with IBS, and many IBS triggers, and a lot of the triggers differ for different people. I have to deal with both IBS and Celiac Disease unfortunately, which makes things very tricky and I have a lot of days where I feel completely defeated as well. And I have had days where I was tempted to go back to eating glutens again, but I know I will only be so much worse if I do. I think the tricky thing about eating gluten free, is how to get enough fibre. In my own personal case, this is very tricky. I can't even handle gluten free breads, becuase they seem to stick in my insides and cause the IBS attacks. And if I get too much fibre, I don't do well either. I am pretty much stuck with eating whole foods and following the paleo diet. Meat, eggs, fruit, and root veggies. And my biggest problem is sticking to that diet! If I can get the hang of that, I would probably be a lot happier and healthier. I would recommend adding a soluble fibre supplement to your diet. That's what I have done recently and it has been making a huge difference.
  6. Anyone know of any good calcium and magnesium supplements? I was taking a really good natural product that came in capsules, and it really helped for me PMS a lot. However, since I have developed this pain in the side I have had to stop taking them because I get that pain in the left side (colon spasms) when I take them. Anyone know of any, preferably liquid calcium, that is not too prone to reactions? Also, magnesium as well. I did read that for IBS one should not take calcium and magnesium at the same time I bought some liquid calcium and Vitamin D at LD today, and I am going to try to sneak it into my blender drinks in the morning and hope I get no pain in the left side. If anyone has had experience with a good liquid calcium let me know. Thanx, Janet
  7. Depressed - Troubles Eating

    Hi ShayFl, It is good to hear from you! If you can do it, I can do it! You have no idea how good it feels to hear of someone else who is on a very restricted diet. That is my main problem. I do not have enough support around me to eat the way my body feels best. And I suffer dearly for it. I have the gluten free thing under control, as I have been doing that for years. I don't really have a problem eating gluten free anymore. What I am experiencing now is very bad reactions to anything too fibrous. So I am leaning in the direciton of the paleo diet. Although even that is hard for me, because vegies that are too rough cause problems for me too. I do the best on root veggies. I thrive on potatoes. Eat at least one potato every day. And I am a big meat eater as well. And I seem to do really well on most fruits. It is hard for me to get that assertiveness in me, and to drop the people-pleasing, and the feeling of guilt when I have to turn down so much perfectly good food. I have had to remove red peppers out of my scrabbled eggs medley and put them in my bf's plate. He objected at first, but I explained to him that they cause me pain in my left side. He really doesn't understand. At times I feel like the little kid who is sneaking food to the dog under the table because I cannot eat it. I do not have the desire to go out to restaurants much. Yet people keep asking me, no matter how many times I explain the difficulties I have! I am tired of people trying to fix me! They have no idea that I have tried almost everything on this planet (ok I'm exaggerating a bit), and that everyday is a huge struggle for me, in coping with food and how to eat. They don't realize that it exhausts me. They don't realize I can't be what they want me to be. I had this one woman at work who brought me a hot chocolate, when I was desperately sick and losing weight like crazy. And she was upset because I declined the hot chocolate! Her and I are not friends and I can't be friends with someone like that who doesnt' understand. I used to go out of my way to spend time with people, and not look after myself. And they would eat while we were out, and I'm sitting there, hungry, and they're eating and I can't eat because the coffee shop sells nothing I can eat. Anyways, sorry for complaining. I have gotten the hang of carrying food I can eat everywhere I go. Because I never know when I'm going to get hungry, and the choice of foods for me out there are pretty slim pickings for me I'm tired of people trying to switch me to "healthy" foods. It's disconcerting that I have to tell them that I also react to Soy! Or whatever else solution they have for me. Unfortunately. I react to almost anything. What should I do! Wear a big placard that says "Please do not feed me!!!!" Ok I'm sorry. I'm dumping . I'm making things out to be way worse than they are. But I am just so frustrated I needed to vent.
  8. Hello, Just dropping by for support. I posted a bit around Xmas time. A month before Xmas I became a SelfDiagnosed Celiac. Before that I didn't know there was such thing. I had been eating fairly gluten free for 10 years, as it was the only thing that got the diarhea under control. Unfortunately, I don't know why, things got substantially worse last November. My body was rejecting almost all food I put into it. I didn't want to eat because I couldn't see the point of it if everything made me run to the bathroom. Unfortunately, even eating gluten free was not helping me this time. So I got very scared, because I did not know what was wrong with me. I have had the diagnosis of IBS for the past 12 years, and I have never obtained any positive test results for Celias disease, because I am unable to eat glutens for long enough for the test results to show positive results. So at the advice of the Canadian Celiac Association, they told me to accept that I will never get a positive diagnosis for it in my whole life, and to eat gluten free, since even eating small amounts make me sick. I do follow their advice now. However, my IBS has gotten really really bad. So much so that not only can I not eat glutens, but now I get a bad pain in my left side when I eat any food that is too rough. Like brocolli, red peppers, brown rice, etc. So I've been pretty depressed about it all. I can see the paleo diet is the way for me to go. Troubles is I have troubles sticking to it. I have bought Acacia Tummy fibre which has helped tremendously in reducing diarhea bouts. To that's a major plus. Unfortunately if I get too much fibre , I get these god awful pains in the left side. I have been told that they are colon spasms. I had a CT scan done and everything, and nothing was found. So that's what they are assuming I have. So I'm a bit depressed about this. My options for what I can all eat are so limited. I don't know what to do about the pains in the left side when I get them. I just sort of wait it out, and try to just drink gingerale and the RAT diet (or whatever it is called). Really it's the emotional part that is the hardest for me. If I could live in a shell and not have to interact with anyone else, I could just feed myself as I see fit. Then I think I would get better, but am not sure. Anyways, I'm down today because I had the pains in the left side again this morning. So now I'm scared to eat for fear they will come back again. I will just pare down on to gingerale, rice pablum, boullioun, etc. It is so frustrating. Thanks for listening. Janet
  9. Newbie Anger

    Sounds like you are suffering from depression, which can be a difficult thing to cope with. I too cannot eat any processed foods, even rice flour foods set me off. I am on as natural of a diet as possible. Root veggies like potatoes, yam, etc seem to go well with me, and I follow the paloe diet quite a bit. Lately I have been OK with millet. With gluten free oats it's been touch and go. The reason I mention depression for the symptoms you have described is because I have suffered from depression and was on meds for quite a while. I am not off of meds, hoping it would improve my digestion problems, but I'm not sure there's much difference. And now that I'm off of meds for depression, I feel emotions more than when I'm on them. And I'm quite sure I re-suffered a bout of depression in the past 2 months. The list of symptoms for depression is very long. Sadness is just one of them. Depression interferes with one's normal daily life activities. I would recommend that you try to get into group therapy or counselling, as it seems that it could be more than just the diet restrictions that is causing this in you. Best wishes
  10. Does This Ever Become "instinct"?

    Yes I think it is something I will always consciously think of whenever I eat. I still eat with people who do eat glutens, and I encourage them to eat as they usually would, and not to deprive themselves of anything cause of me. And I advise them that I can manage myself and what I eat. That they don't need to worry about that. So I do have to be careful not to get my food contaminated. But I've got the hang of it.
  11. Break Down

    Keep gluten free snacks around you at all times if possible. I love all kinds of dried fruits, dried mango, sun-dried figs, dates, nuts, seeds. Carry your special treats with you every where you go. Keep you own special gluten free stuff to eat when you get the cravings. That's what I try to do, cause I am most likely to inadvertently eat something with gluten in it, when I'm real hungry and can't find gluten-free food around. Rice cakes are a real good substitute for bread although they are hard and crumbly which is a pain. But you can put all sorts of spreads on them.
  12. All Tests Negative?!

    Hi there, All my tests are always negative as well. I've had the small bowel biopsy twice now, the blood tests, the allergy test. Always negative. Unfortunately, no-one told me that didn't mean I wasn't Celiac. That lead me to misundertstand, and eat glutens whenever I was "better', and then get sick again. What I finally learned is that I have to eat the glutens for 6 weeks to 2 months before the tests to get positive results on them (my doctors told me 1 to 2 weeks but the Celiac assocation informed me that a min of 6 weeks). I cannot do that cause I will be too sick. So I'm learning to accept that I will never have a diagnosis from the doctors in my entire life, and that I am "self diagnosed". I had a hard time dealing with that. I am now past that though, and have accepted it. I have now gone gluten free for the rest of my life, as I am too sick otherwise. Take good care of youself, and if you know they make you sick, stay away from them. Best wishes, Janet
  13. I found this interesting article at (or just google "Celiac Candida connection"). I found this article very interesting because I started taking 3Lac about a year and a half ago. 3Lac kills Candida overgrowth in the digestive system. I have had problems with eating glutens for 11 years now and am a self diagnosed Celiac. However, I still struggled with lots of digestive bouts. I started having night sweats about a year and a half ago, and when I googled "Night Sweats", it came up with 3Lac. Apparently, candida overgrowth can cause night sweats as well as a whole bunch of other symptoms including diarhea, which is something I have struggled with for years. I ordered the 3Lac, and took it for about a year, and tried to stay off the glutens. Because I didn't have a diagnosis from the docs that I had Celiac disease, I guess I was in denial, and when I would get better I would sometimes eat little bits of glutens. However, I learned that typically I would get sick from eating glutens. Anyways, to make a long story short, the 3Lac really made a huge difference in my life. If was one of the first things that really got my stools back to normal. Even eating gluten-free, I still struggled with loose stools. However, I fell off the wagon (so to speak) last year, because I didn't have a diagnosis for Celiac disease, and I had one dr tell me I should be able to develop a tolerance to small amounts of wheat, etc., I occassionally let all abandon go to the wind. Ie. I ate glutens when I shouldn't have. And to compound things, I went off my 3Lac, sort of accidentally, cause I ran out, and it took them so long to ship me more, that i sort of went off of taking it faithfully everyday. Not only that, I am a sweets lover, and we know how that feeds candida overgrowth. Anyways, I got really sick for all of November and December last year, that I have now sworn off of glutens for the rest of my life, and let the people around me know that. I cannot eat glutens for 6 weeks to 2 months to get a positive test for Celiac. I think it would kill me if I did that. Would be too sick. However, my last bout I noticed I wasn't really recovering, even though I had gone gluten free. Shortly after Xmas day, I finally realized that I had to give up sugar as well. Can't remember how I came to that conclusion. Anyways, I am now fighting the Candida in my digestive system. I up up to 3 packs of 3lac a day now, and hope to increase. I have been taking it since Dec 26. It has been a struggle but I am getting much better. Before Xmas, almost anything made me run to the bathroom. NOw I can stomach rice and veggies again. So the 3Lac is really making a difference. If anyone would like to talk about 3Lac, feel free to email me at
  14. Hello, I have lots of good things to say about ThreeLac. It is one of the few and only things that has made a difference for me. It is costing me a fortune, but I know it helps. I really want to discuss 3Lac with anyone who is currently taking it, or has taken it. I started taking 3Lac about a year or so ago. What happened was I was having nightsweats and googled "night sweats" and came up with ThreeLac for Candida overgrowths. I was surprised to see the list of ailments it could help, including diarhea, cause I have suffered from chronic diarhea for many years. Anyways, I did try it. I took maybe one or 2 packs everyday for about a year, and curbed my sugar intake, although I did not eliminate. You know what, I got better. After about I don't know how long. I could even occassionally eat some glutens without getting sick while taking it. My biggest mistake was stopping to take it after I was "better". I ended up getting very sick after a few months, and my insides were so inflamed that they were rejecting anything I ate. Anyways, it took a couple of months of eating striclty paleo to get the inflamation down. I am now back on 3Lac, and I am trying to increase by a pack every week, cause I want to beat the candida. I am currently up to 3 packs a day. I am doing very well. However, one thing I want to say, is that depending on how bad your candida is (how bad your symptoms are), you may have a period of time where your bowel movements are worse. This can be very discouraging. I believe what is happening when this happens is that the candida is dying off in the intestines, but that it is "sore or raw" inside, hence you body starts rejecting food. And it needs to heal. This is what I believe they call inflamed. It really doesn't take very long for the healing to take place. I got up to 3 packs, but then got a bad vaginal yeast infection and sores all around my rectum, and was running to the bathroom a lot, so I had to ease up on the 3lac for day. Did one day without any, then went back to 3 a day again. And the sores are all healed up. But be warned, that you may have an occassional diahrea spell if you are a bit inflamed inside. However, that is not because the 3 lac is making you sick. It is doing it's job. It's killing the yeast, and I believe, from my own experience, that some inflammation does occur with this process. But it is usually very short lived. Drink more fluids and avoid excess food and too much roughage till the inflammation goes down. The paleo diet is very good for that. Good luck with it! I swear by it! Janet
  15. I Think Im Cured !

    I had thought I was cured too several times. Be very careful. It is easy to think that when we are "better" and not having any problems, that we can eat glutens again. I agree getting rid of sugar and candida helps tremendously for digestive issues. But be wary, your symptoms may crop up again if you go back to eating glutens. I have noticed that my gluten symptoms take time to come back, but eventually they do. And when they do, I so regret eating the glutens again, cause it takes so long to recover once they're done their damage.Best to you